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Registered Company: 06000961

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@BearyBunny 

Last reply

BearyBunny

just.. a lot.

I was diagnosed March 31st, 2025, And I don't know how to get my family to realize I might never be better... I understand that it's only been a few months, the first year of diagnosis is the first, and this is hard on them too. I am blessed to have a family who can assist me and help provide for ...
Newburgh, United States
11

@jumpingJacks 

EditedLast reply

jumpingJacks

28 Days Later, 28 Years Later: The MS Edition

They didn’t catch a virus. They caught MS. It started with a tingle. Then came the mysterious fatigue no one took seriously. By 28 days in, society hadn’t collapsed but a concerning number of people were falling over for no reason, losing feeling in random limbs, and quietly Googling “why does my e...
First posted on the Shift.ms app
15

@dyl7891 

Last reply

dyl7891

Anyone just... go to work and er..leave with MS?

First post, new to the "scene" 😅 I've heard lots of stories of people being diagnosed with MS and using language such as "finally being diagnosed" etc.. but i haven't heard a story similar to mine before.. so A) i wanted to share that for those who may have experienced similar. And B) it's wild.. ...
First posted on the Shift.ms app
54
Unpublished

@Michellejohn35 

Michellejohn35

ecently had my MRI results and (as I kinda suspected after a rough few months) had new lesions.I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard few months I've really isolated myself from people (some I'm unsure even how to reach out to again now) and live alone alone some of the time when my four children are at their mum's. Positive news is, they've mentioned Ocrevus and Kesimpta, which are obviously higher efficacy treatments. Could I ask for any advice people have around these DMTs, please? If you've seen me ask on Facebook or Instagram, then feel free to ignore and not repeat yourself.

First posted on the Shift.ms app

@MK24 

Last reply

MK24

Ocrevus or Kesimpta

I recently had my MRI results and (as I kinda suspected after a rough few months) had new lesions. I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard fe...
, United Kingdom
First posted on the Shift.ms app
15

@Girathina 

Last reply

Girathina

New here

Hey everyone! I'm kinda brand new here. Just seeing how this is. I haven't yet got an official MS diagnosis, but the MRI scans of my brain shows demyelinating disease.i do have a lot of the symptoms for MS. Im going back to neuro on the 9th.idk just scared of it all. Idk if my wife really quite unde...
First posted on the Shift.ms app
4

@Kalen 

Last reply

Kalen

Hello again everyone

So it's been like two to three months so far since I've been diagnosed and throughout that time everything just feels fake, like I don't know how to put it I feel kinda detached kinda like first person Sims basically, here's my question, has anyone else experienced this fakeness feeling and if so, h...
First posted on the Shift.ms app
22

@knyte 

Last reply

knyte

Curious

How does everyone cope with having MS? I spend alot of time alone and even though that's been most of my life, it's become alot more difficult to deal with it. When I talk to people about it, I know they are trying to help but at the same time they always seem to kinda brush it off with some simple ...
First posted on the Shift.ms app
15

@Jpboise09 

Last reply

Jpboise09

Sensation in feet

I'm scheduled to establish with a neurologist in early July, however, right now my feet feel like their always waking up from being asleep. Kinda like ever so light fluttering that feels like they are moving when laying or sitting. Anyone else experience this? What helps?
First posted on the Shift.ms app
4

@mssyAmanda 

Last reply

mssyAmanda

MRI update

I have no new lesions on my brain. Yay. Sad update: my brain is apparently smaller than average. In the 26th percentile. Idk if it’s MS related or not. But the amount of brain excercise I am doing now is kinda tiring. I don’t really discuss this last part with anyone. I don’t want people to comm...
First posted on the Shift.ms app
18
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