#uncertainty - Shift.ms

30 Sep 2018 12:23Last reply 30 Sep 2018 20:17

Uncertainty

So, I'm managing well on Tysabri, being completely symptom free. On the one hand - I appreciate every moment more and am very grateful that I feel "normal", and hope it will stay that way for a long time. On the other hand - there is this uncertainty, I lived with Ms symptoms for a couple of year...

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@fzms93

28 Feb 2022 07:42Last reply 7 Jul 2024 02:15

Uncertainty and plans !

Good morning everyone hope it’s lovely Monday morning everywhere x. How do you guys come to terms with the uncertainty of the disease and making plans / goals for the future . Does it stop you from getting things done or you do it with caution? When it comes to relationships how do you manage ? Do y...

7

@ChiMum

14 Feb 2023 09:12Last reply 14 Feb 2023 13:23

How Do You Live With Uncertainty?

Forgive me if I am asking a silly question....but how do you live your day to day life and make plans for your future when you have no idea how tomorrow will look for you. I was diagnosed in December last year and I had two significant relapses last August and November. I am starting on Kesimpta w...

Sheffield, United Kingdom

4

@Luce_Rush

17 Jan 2022 18:19Last reply 21 Jan 2022 09:36

Undiagnosed - lots of waiting & uncertainty

Hi all, I’ve been reading a lot of posts and thought I’d share a bit about what’s happening with me and wanting to say hello and connect with others who might be experiencing similar. I’ve had lots of sensory symptoms, pins and needles, eye floaters and flashes, tinnitus, sensitive to touch, and at...

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@millar

16 Jul 2019 14:11Last reply 18 Jan 2022 13:44

Managing Uncertainty

Hi Guys! We're currently planning an MS Reporters series aimed at helping people with MS manage the uncertainty that an MS diagnosis brings into their lives. I'd be really keen to hear your thoughts on any or all (or none) of the questions below: How do you manage this uncertainty? What helps a...

10

@Wildgoose

2 Dec 2021 21:16Last reply 17 Jan 2022 16:40

Uncertainty, humour and coping strategies

Hi, everybody! This might be a chaotic post, but I hope you will bare with me. I guess I finally found the guts (or needs?) to reach out actively to fellow fellows. It might have been triggered by the fact that I have just now been watching some of the videos here at shift.ms and they made me laugh ...

17

@Amy_Feltham

29 Apr 2020 20:54Last reply 30 Apr 2020 20:28

Uncertainty/ hopelessness

I got diagnosed with MS about 5 years ago and at first I was really positive. Now I’m getting towards 30 and feel like I should be more grown up (!) but I worry about what my future looks like. I like to have a plan, and worry that my symptoms could get worse and the rug will be pulled from under me...

8

@SophieShift

17 Jan 2020 09:54

Does MS uncertainty affect you?

https://www.youtube.com/watch?v=qGn6GTZf2S0&feature=youtu.be In ep 2 of Managing Uncertainty MS Experts Dean and Heather explain how MS uncertainty affects them the most 💬🎙️ Check out the full 'Managing Uncertainty' series here 👉 https://shift.ms/ms-reporters-dealing-with-uncertainty

@SophieShift

9 Jan 2020 14:40

Why does MS cause so much uncertainty?

❗️Introducing our latest MS Reporters series ❗️➡️ 'Managing Uncertainty' 🎙️💬 We all know too well that with an MS diagnosis comes huge uncertainty 😕 every MSer experiences their condition differently and each persons condition progresses uniquely. In our first episode, MS Reporter Clare chats to...

@Sultan_Bahsi

31 Dec 2019 08:31Last reply 3 Jan 2020 17:40

Uncertainty of ms

I wish we had exact cure for ms. It's too hard to live with idea of what's going to happen?

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