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So, I have been offered / been enrolled on the StarMS trial. It’s a long shot but has anyone been on it, if so would they mind sharing their experience with it. I am very apprehensive, for those that don’t know it is a HSCT (Stem cell) trial involving a very intense process of chemotherapy and multi...

I'm not yet diagnosed but I'm pretty sure I've got RRMS and am currently experiencing a flare up of symptoms. I've been on the waiting list to see an NHS neurologist since January, I've got an appointment in December which will be the first time I've been seen by a specialist. I guess I want to kno...

I'm a 47 year old writer diagnosed in 2020 slap bang in the middle of lockdown. It was isolating and frightening but I found huge solace in mindfulness and journaling. I just wondered if anyone else can relate? I've designed my own journal based on the last 4 years and it's now available on Amazon ...

As we gear up to witness amazing feats of athleticism and perseverance at the Olympic Games, let's take a moment to appreciate the incredible strength and determination of individuals living with multiple sclerosis (MS). These everyday heroes face unique challenges with unwavering courage and resili...

I think I may need more than just a cane at the moment. I can walk for about 15m with the cane and stand up for about 5m. That's the time before my fall risk becomes a fall certainty and it's a 1/3 chance I'll pass out briefly with that too. I wouldn't be as worried about this if I didn't have to wa...

Hey my name is Josh, I was diagnosed last February. I was dealing with symptoms for along time they kept blaming my type 1 diabetes but I knew it was something more for Awhile. I got 3 older sisters and 2 outta 3 have diagnosed multiple scelrosis and my other sister might also have it but in denial ...

As a counsellor who lives with Multiple Sclerosis (MS) and the anxiety caused by that disease, I have long realized that stressful situations aggravate my MS symptoms. When I travel, for example, I take a wheelchair, a walker, and canes because I never know which mobility aide I will need when I get...

Hi all, I was diagnosed with relapse-remitting MS a year ago and still trying to deal with the uncertainty about what this means for my future. One question I have is around fatigue. I hear it's very common, but I can't really envision what that means. Does it only occur during relapses? Or also if ...

Hi lovelies, I feel like everyone here has probably felt at some point that their body has betrayed them on this MS journey. It’s really starting to mess with my head, I’m very fortunate when it comes to treatment and disability level but recently I don’t know what it is. Everyday I go to sleep and ...

I'm in my late thirties and mum to my son. I was diagnosed earlier this year after a lot of uncertainty. Before my diagnosis I enjoyed travelling, going out with my friends, spinning, weight lifting and had quite an active life running round after my son ( I think he has duracell batteries, he...