Hi everyone! I have RRMS and I found out that I had MS after going completely numb on my left side. Even then the Doctor was still uncertain and chose to call it Tranverse Myelitis. 5 years later, same symptoms. Only this time, I was sensitive to hot and cold. I had an MRI, Spinal tap, and evoked po...

Hi guys, here with my first post and just needing to get some things off my chest as I'm struggling. Background is that I am newly diagnosed but not yet on DMT. Last summer had a bout of optic neuritis, and MRI results in January showed 2 lesions. I've since had two appointments with a neurologist ...

I met someone and it’s getting serious. We talked about my MS and what it might mean for our relationship. I made it clear from the start that I am afraid of becoming a burden. It took me by surprise how understanding and supportive she was. She also talked about me to her family and they are c...

Had my full body MRI with constrat 2 weeks ago and have an appointment at the hospital tuseday 3rd Dec about results. I know I myself and the symptoms I am getting I have MS. The uncertainty about my future is painful. Me and my partner want to try for our first child and it's been put on hold due t...

So I have been to the neurologist today, have two lesions on brain, one on spine. Numbness in legs and burning pain so intense. Bladder issues, headaches and extreme tiredness and vision problems. He has told me it's not ms and I fall in the category of not knowing what I have. And no further tests...

So, I have been offered / been enrolled on the StarMS trial. It’s a long shot but has anyone been on it, if so would they mind sharing their experience with it. I am very apprehensive, for those that don’t know it is a HSCT (Stem cell) trial involving a very intense process of chemotherapy and multi...

I'm not yet diagnosed but I'm pretty sure I've got RRMS and am currently experiencing a flare up of symptoms. I've been on the waiting list to see an NHS neurologist since January, I've got an appointment in December which will be the first time I've been seen by a specialist. I guess I want to kno...

I'm a 47 year old writer diagnosed in 2020 slap bang in the middle of lockdown. It was isolating and frightening but I found huge solace in mindfulness and journaling. I just wondered if anyone else can relate? I've designed my own journal based on the last 4 years and it's now available on Amazon ...

As we gear up to witness amazing feats of athleticism and perseverance at the Olympic Games, let's take a moment to appreciate the incredible strength and determination of individuals living with multiple sclerosis (MS). These everyday heroes face unique challenges with unwavering courage and resili...

I think I may need more than just a cane at the moment. I can walk for about 15m with the cane and stand up for about 5m. That's the time before my fall risk becomes a fall certainty and it's a 1/3 chance I'll pass out briefly with that too. I wouldn't be as worried about this if I didn't have to wa...