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Found 111 results

@Gijs

30 Sep 2018 12:23Last reply 30 Sep 2018 20:17

Gijs

Uncertainty

So, I'm managing well on Tysabri, being completely symptom free. On the one hand - I appreciate every moment more and am very grateful that I feel "normal", and hope it will stay that way for a long time. On the other hand - there is this uncertainty, I lived with Ms symptoms for a couple of year...
  • Symptoms
  • Mental health
  • Steroids
  • Work and play
  • Work and Study
5

@Sultan_Bahsi

31 Dec 2019 08:31Last reply 3 Jan 2020 17:40

Sultan_Bahsi

Uncertainty of ms

I wish we had exact cure for ms. It's too hard to live with idea of what's going to happen?
22

@Wildgoose

2 Dec 2021 21:16Last reply 17 Jan 2022 16:40

Wildgoose

Uncertainty, humour and coping strategies

Hi, everybody! This might be a chaotic post, but I hope you will bare with me. I guess I finally found the guts (or needs?) to reach out actively to fellow fellows. It might have been triggered by the fact that I have just now been watching some of the videos here at shift.ms and they made me laugh ...
  • Diagnosis
  • Symptoms
  • Mental health
  • Work and play
  • Numbness
  • Going out
  • Healthy living
  • Blurred vision
  • Spasticity
  • Mind and body
17

@millar

16 Jul 2019 14:11Last reply 18 Jan 2022 13:44

millar

Managing Uncertainty

Hi Guys! We're currently planning an MS Reporters series aimed at helping people with MS manage the uncertainty that an MS diagnosis brings into their lives. I'd be really keen to hear your thoughts on any or all (or none) of the questions below: How do you manage this uncertainty? What helps a...
  • Diagnosis
  • Newly diagnosed
  • Work and play
  • Symptoms
  • Work and Study
  • Relapses
10

@Luce_Rush

17 Jan 2022 18:19Last reply 21 Jan 2022 09:36

Luce_Rush

Undiagnosed - lots of waiting & uncertainty

Hi all, I’ve been reading a lot of posts and thought I’d share a bit about what’s happening with me and wanting to say hello and connect with others who might be experiencing similar. I’ve had lots of sensory symptoms, pins and needles, eye floaters and flashes, tinnitus, sensitive to touch, and at...
  • Symptoms
  • Mental health
  • Treatment
  • Diagnosis
  • Numbness
  • Work and Study
  • Work and play
  • Relapses
  • Limbo land
10

@Amy_Feltham

29 Apr 2020 20:54Last reply 30 Apr 2020 20:28

Amy_Feltham

Uncertainty/ hopelessness

I got diagnosed with MS about 5 years ago and at first I was really positive. Now I’m getting towards 30 and feel like I should be more grown up (!) but I worry about what my future looks like. I like to have a plan, and worry that my symptoms could get worse and the rug will be pulled from under me...
  • Diagnosis
  • Newly diagnosed
  • Research
  • Symptoms
  • Mental health
  • Work and play
  • Accessibility
  • Family and children
  • Work and Study
8

@fzms93

28 Feb 2022 07:42Last reply 2 Mar 2022 18:07

fzms93

Uncertainty and plans !

Good morning everyone hope it’s lovely Monday morning everywhere x. How do you guys come to terms with the uncertainty of the disease and making plans / goals for the future . Does it stop you from getting things done or you do it with caution? When it comes to relationships how do you manage ? Do y...
  • Work and play
  • Work and Study
4

@SophieShift

17 Jan 2020 09:54

SophieShift

Does MS uncertainty affect you?

https://www.youtube.com/watch?v=qGn6GTZf2S0&feature=youtu.be In ep 2 of Managing Uncertainty MS Experts Dean and Heather explain how MS uncertainty affects them the most 💬🎙️ Check out the full 'Managing Uncertainty' series here 👉 https://shift.ms/ms-reporters-dealing-with-uncertainty
  • Work and play
  • Symptoms
  • Diagnosis
  • Work and Study

@SophieShift

9 Jan 2020 14:40

SophieShift

Why does MS cause so much uncertainty?

❗️Introducing our latest MS Reporters series ❗️➡️ 'Managing Uncertainty' 🎙️💬 We all know too well that with an MS diagnosis comes huge uncertainty 😕 every MSer experiences their condition differently and each persons condition progresses uniquely. In our first episode, MS Reporter Clare chats to...
  • Diagnosis
  • Symptoms
  • Relapses
  • Work and play
  • Work and Study

@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

Clare80

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Healthy living
  • Treatment
  • Limbo land
  • Coronavirus
  • Which DMT
  • Work and play
57

@HocusPocus

20 Jul 2019 18:12Last reply 28 Aug 2019 10:22

HocusPocus

Not diagnosed - but truly convinced!

Hi there, Team Shift.MS, First of all - just wanted to say what a nice, upbeat site this seems to be. I've been sniffing around a few other MS/other random symptoms websites, but the vibe here seems really positive. :) So, hello, first-time poster. At the mo, the only MS I have stands for 'myster...
  • Diagnosis
  • Limbo land
  • Newly diagnosed
  • Symptoms
  • Mental health
  • Numbness
  • Pain
  • Spasticity
21

@ChezN87

16 Mar 2019 11:15Last reply 26 Mar 2019 09:13

ChezN87

Housing

Hi everyone I’m in need of some impartial advice, I’m currently in a 2bed end terraced private let I’ve been pressing on with the council over the past couple of months (getting support letters etc) because a few months ago my landlord told me they’ll be needing to sell the house I’m in plus I have ...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Family and children
  • Relationships
21

@s11taylor

12 Aug 2012 01:10Last reply 12 Nov 2020 13:24

s11taylor

Gay and MS?

Well, since all of you know I am dealing with maybe being diagnosed with MS, I just thought I would come out of the closet too on here while I'm at it.... LOL!!! Just trying to make connections :) My partner and I just got married last week... it's truly a bittersweet time. :) She has been so ...
  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Disclosure
  • Relationships
  • Work and play
  • Fatigue
  • Family and children
  • Numbness
20

@Aaron_Paul

3 May 2020 17:26Last reply 5 May 2020 20:52

Aaron_Paul

Limbo and fed up!

Hey I'm struggling with a positive outlook or general positive vibes. Just not having the best week with numbness, eye ache, fatigue etc and still no where near diagnoses and super low irrational mood swings I won't go into too much detail as you all know!!! So what's the best way to deal with a di...
  • Diagnosis
  • Limbo land
  • Symptoms
  • Fatigue
  • Pain
20

@nicholaschh

26 Apr 2016 17:49Last reply 2 May 2016 11:20

nicholaschh

New User - hello!

Hi, I'm Nick and have SPMS, and am now wheelchair bound, having been diagnosed 16 years ago at the age of 42. I am married with three children, the youngest of whom is now 21. So the disease struck in the middle of their childhoods, which was the toughest part of it for me and my wife. We have been ...
  • Relapsing remitting
  • Healthy living
  • Diet
  • Exercise
  • Mind and body
  • Symptoms
  • Mental health
  • Pain
  • Spasticity
  • Work and play
  • Accessibility
  • Family and children
  • Positives of MS
  • Relationships
  • Brain health
  • Repurposing
17

@sritawk

7 Apr 2021 23:28Last reply 10 Apr 2021 09:01

sritawk

Hi, from Scotland

I was pointed towards shift.ms as a great community and resource for MS. I’ve been newly diagnosed, and will be on Ocrevus once I’ve had my vaccinations. I stay near-ish Edinburgh, but will at least be having my infusions at there. Bit of a rubbish hand we’ve been dealt, haven’t we? Some days I’m f...
Edinburgh, Scotland, United Kingdom
  • Diagnosis
  • Disclosure
  • Treatment
  • Newly diagnosed
  • Work and play
  • Symptoms
  • Ocrevus
  • Balance
  • Which DMT
  • Work and Study
14

@londonlad

7 Jun 2017 15:23Last reply 8 Jun 2017 14:25

londonlad

First relapse and diagnosis, worried.

Dear all, I am a male 33 old year old. 3 months ago; unaware of what was about to happen,one day I felt off balance and within a week was hospitalised. The balance issues were accompanied with nystagmus causing double vision. I also had Horrible vertigo and vomiting even when drinking water. Of ...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Blurred vision
  • Dizziness
  • Mental health
  • Relapses
  • Treatment
  • Work and play
  • Going out
  • Money
  • Work and Study
  • MRI
13

@ashia2013

14 Mar 2017 12:28Last reply 19 Mar 2017 23:16

ashia2013

Feeling like no one understands

Feel so crappy today. I'm on a few online groups that are supposed to be there to support people with MS. However, there always seems to be individuals that are not yet diagnosed that are disappointed when they are told that their doctor doesn't think they have MS. I find the behaviour of wanting an...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Work and play
  • Family and children
13

@Noah

25 Jan 2017 04:14Last reply 27 Jan 2017 19:44

Noah

When To Tell Friends?

Hi everyone, I was diagnosed with MS in October after a couple months of uncertainty. I was just wondering how you decided who to tell about your MS. I have been having trouble with this lately. My Immediate family knows, and I did tell my close friends about the symptoms I was experiencing before m...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Work and play
  • Family and children
13

@lightningduck

2 Nov 2012 22:53Last reply 3 Nov 2012 22:13

lightningduck

Relapse Reaction?

I've only had one real 'relapse' as such in that I noticed it. It was my first real noticeable relapse and the symptoms of such were what sent me to the hospital in uncertainty of what was happening, and led to my DX. So that means I don't have a lot of experience When you have a relapse, how d...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Relapses
13
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