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So, I'm managing well on Tysabri, being completely symptom free. On the one hand - I appreciate every moment more and am very grateful that I feel "normal", and hope it will stay that way for a long time. On the other hand - there is this uncertainty, I lived with Ms symptoms for a couple of year...

Forgive me if I am asking a silly question....but how do you live your day to day life and make plans for your future when you have no idea how tomorrow will look for you. I was diagnosed in December last year and I had two significant relapses last August and November. I am starting on Kesimpta w...

Good morning everyone hope it’s lovely Monday morning everywhere x. How do you guys come to terms with the uncertainty of the disease and making plans / goals for the future . Does it stop you from getting things done or you do it with caution? When it comes to relationships how do you manage ? Do y...

Hi all, I’ve been reading a lot of posts and thought I’d share a bit about what’s happening with me and wanting to say hello and connect with others who might be experiencing similar. I’ve had lots of sensory symptoms, pins and needles, eye floaters and flashes, tinnitus, sensitive to touch, and at...

Hi Guys! We're currently planning an MS Reporters series aimed at helping people with MS manage the uncertainty that an MS diagnosis brings into their lives. I'd be really keen to hear your thoughts on any or all (or none) of the questions below: How do you manage this uncertainty? What helps a...

Hi, everybody! This might be a chaotic post, but I hope you will bare with me. I guess I finally found the guts (or needs?) to reach out actively to fellow fellows. It might have been triggered by the fact that I have just now been watching some of the videos here at shift.ms and they made me laugh ...

I got diagnosed with MS about 5 years ago and at first I was really positive. Now I’m getting towards 30 and feel like I should be more grown up (!) but I worry about what my future looks like. I like to have a plan, and worry that my symptoms could get worse and the rug will be pulled from under me...

https://www.youtube.com/watch?v=qGn6GTZf2S0&feature=youtu.be In ep 2 of Managing Uncertainty MS Experts Dean and Heather explain how MS uncertainty affects them the most 💬🎙️ Check out the full 'Managing Uncertainty' series here 👉 https://shift.ms/ms-reporters-dealing-with-uncertainty

❗️Introducing our latest MS Reporters series ❗️➡️ 'Managing Uncertainty' 🎙️💬 We all know too well that with an MS diagnosis comes huge uncertainty 😕 every MSer experiences their condition differently and each persons condition progresses uniquely. In our first episode, MS Reporter Clare chats to...

I wish we had exact cure for ms. It's too hard to live with idea of what's going to happen?

“I know that having mobility issue down the road is likely. I have a super-long bucket list of things I want to do. So, if anything it’s honestly lit a fire under me.” 💚 This week's episode is with the amazing @HotMesswGrace who shares her journey of being diagnosed and how she lives each day at ...

Hey all, Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani. I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada) Once he’d assessed...

As a counsellor who lives with Multiple Sclerosis (MS) and the anxiety caused by that disease, I have long realized that stressful situations aggravate my MS symptoms. When I travel, for example, I take a wheelchair, a walker, and canes because I never know which mobility aide I will need when I get...

So today I had my first appointment with my MS Nurses who are both amazing. They didn’t rush my appointment or fob me off, they took the time to explain everything to me & make sure any uncertainty I had was resolved. So what’s next? I’m currently waiting on the MLT to discuss what treatment I’ll be...

I'm 24. That's pretty young and I should be bouncing around, no? Lol. But most days I feel as though I have zero energy, not even enough to move my hand. But I do it any way. I have to work to feed myself. I have responsibilities. I work from home so that's a bit easier, but simply getting up from t...

Hi Ms shift community 👋🏻 This is my first post but I have been reading many of your experiences for the last two years. I want to get these feelings off my chest. First I’d like to introduce you to my particular case. I have been diagnosed with ms on August 2020, after having wrong diagnosis o...

Hi everyone! I just wanted to say Hi and introduce myself. 😊 I’m Roxanne and live with my daughter and partner is home of a weekend (RAF). I was diagnosed last October with relapsing, remitting MS after about 8 months of tests and uncertainty, fearing I was either having a stroke or had some for...

Hello all. I am interested in hearing about the experiences of women who have had babies after diagnosis. Everything! (Well, everything you're willing to share.) Was it planned or a happy accident? What advice did you receive from your doctor's? How was your MS affected during pregnancy/post-natal? ...

Hi everyone! I am 34 years old and was diagnosed with MS in 2018. I have my ups and downs but at the moment a lot of the feelings seem to be downs! The fatigue makes me feel useless and I hate the uncertainty that MS brings. I just wondered if there was anyone out there that might be interested in ...

As part of #WorldMSDay 2019 Shift.ms released #Relapses24x24 - 24 stories of relapses as told by MSer's. We've stitched these stories together so you can see the various stages MSer's go through with relapses. What we learnt from these stories is that if you're experiencing symptoms that are not nor...