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So, I'm managing well on Tysabri, being completely symptom free. On the one hand - I appreciate every moment more and am very grateful that I feel "normal", and hope it will stay that way for a long time. On the other hand - there is this uncertainty, I lived with Ms symptoms for a couple of year...

Good morning everyone hope it’s lovely Monday morning everywhere x. How do you guys come to terms with the uncertainty of the disease and making plans / goals for the future . Does it stop you from getting things done or you do it with caution? When it comes to relationships how do you manage ? Do y...

Forgive me if I am asking a silly question....but how do you live your day to day life and make plans for your future when you have no idea how tomorrow will look for you. I was diagnosed in December last year and I had two significant relapses last August and November. I am starting on Kesimpta w...

Hi all, I’ve been reading a lot of posts and thought I’d share a bit about what’s happening with me and wanting to say hello and connect with others who might be experiencing similar. I’ve had lots of sensory symptoms, pins and needles, eye floaters and flashes, tinnitus, sensitive to touch, and at...

Hi Guys! We're currently planning an MS Reporters series aimed at helping people with MS manage the uncertainty that an MS diagnosis brings into their lives. I'd be really keen to hear your thoughts on any or all (or none) of the questions below: How do you manage this uncertainty? What helps a...

Hi, everybody! This might be a chaotic post, but I hope you will bare with me. I guess I finally found the guts (or needs?) to reach out actively to fellow fellows. It might have been triggered by the fact that I have just now been watching some of the videos here at shift.ms and they made me laugh ...

I got diagnosed with MS about 5 years ago and at first I was really positive. Now I’m getting towards 30 and feel like I should be more grown up (!) but I worry about what my future looks like. I like to have a plan, and worry that my symptoms could get worse and the rug will be pulled from under me...

https://www.youtube.com/watch?v=qGn6GTZf2S0&feature=youtu.be In ep 2 of Managing Uncertainty MS Experts Dean and Heather explain how MS uncertainty affects them the most 💬🎙️ Check out the full 'Managing Uncertainty' series here 👉 https://shift.ms/ms-reporters-dealing-with-uncertainty

❗️Introducing our latest MS Reporters series ❗️➡️ 'Managing Uncertainty' 🎙️💬 We all know too well that with an MS diagnosis comes huge uncertainty 😕 every MSer experiences their condition differently and each persons condition progresses uniquely. In our first episode, MS Reporter Clare chats to...

I wish we had exact cure for ms. It's too hard to live with idea of what's going to happen?