@Wildgoose 

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Wildgoose

Uncertainty, humour and coping strategies

Hi, everybody! This might be a chaotic post, but I hope you will bare with me. I guess I finally found the guts (or needs?) to reach out actively to fellow fellows. It might have been triggered by the fact that I have just now been watching some of the videos here at shift.ms and they made me laugh and cry and feel less alone, but also weirdly more alone in some sense. I want to deal with the news of my diagnosis (May 2021), and the diagnosis over all with humour and wit, and being thankful for all that is still well with my brain and body, but get caught by my sadness and feeling of grief, as well as the occasional fear whenever I feel something slightly out of the ordinary. How do you guys cope and deal? And how has it changed over time? I don’t have any symptoms yet so I also in a way feel alone in that (after my initial optical neuritis followed by my Donald Trump-channeling steroid-experience that is), and of course hope it will stay that way, but the uncertainty is always there, lurking under the surface. Every time my foot falls asleep (after I’ve been sitting on it mind you), when I have sore muscles for more than a couple of days after working out, when I can’t find the right words immediately - the MS-flag pops up in my brain.. Do you guys feel the same, or similar, or even rather the opposite? Will be so happy and thankful for thoughts, ideas, experiences and simply inspiration to keep living your best life.
@Nola83

Since I was recently diagnosed 4 months ago having a severe first attack not being able to control my left side in hospital for a month and residual sensory symptoms I have more of a MS alarm constantly in my mind so I am hoping to get back to a new normal in time but I am not quite sure how at the moment and just take one it one day at a time.

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@ZRichards

I also had Ocptic Neuritis as my first relapse... a few years back in 2018 mine! Luckily I've been okay since, only having to deal with the occasional ache/pain in and around my eye! For me that question of 'is that MS?' Whenever any sort of weird happening with my body pops up is still here now... I guess we all have that in common, that it's always a sort of guessing game with MS? I still find myself wondering if it's brain fog I'm getting or is it just me being forgetful? 😂 On a whole MS has given me a more appreciative look at life... I appreciate everything much more nowadays! You've done it right coming on here though as it's a great place to read up/chat with others who are going through similar experiences!