Uncertainty and plans !
Good morning everyone hope it’s lovely Monday morning everywhere x. How do you guys come to terms with the uncertainty of the disease and making plans / goals for the future . Does it stop you from getting things done or you do it with caution? When it comes to relationships how do you manage ? Do you build your life around it say future proofing a home to cater to disability or so ?
@andreag that’s one of the frightening things . The fact that it doesn’t have any trajectory or normal pattern is what scares me to my core . I guess what you can change you have to move make the best with it
Hi. I agree it is hard to plan anything, when life feels uncertain. This uncertainty helps me to live in the present. Unfortunately, people around me want me to make long term plans, which I find difficult sometimes. I try to live each day. This is a shift in attitude to life. Good luck.