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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@BFShadow 

Last reply

BFShadow

Tysabri

What are your thoughts on this? I’ve been told I’ll be out on this and next week I’ll be seeing MS nurses about the next step and booking me in for IV’s.
First posted on the Shift.ms app
13

@steviilillian 

Last reply

steviilillian

Tysabri...

Sooooo.... im finally starting my DMT next week. Any tips or advice before I start natalizumab subcut? Both anxious & weirdly excited so any words of wisdom welcomed! 😘
First posted on the Shift.ms app
8

@TNShill 

Last reply

TNShill

Tysabri

I was diagnosed in April of this year and due to the number and location of lesions, recommended infusion Tysabri once a month. I had my first infusion and felt like I had a hangover for a month with some heaviness in my legs. My second infusion was a week ago and three days after my infusion I woke...
First posted on the Shift.ms app
7

@ShortStuffLou 

Last reply

ShortStuffLou

Tysabri

Just came back from my ms appointment with the neurologist and I'm gonna be starting Tysabri potentially after blood tests? Is this a good medication? As I have no idea what's best treatment. I've looked at some of the potential side effects and worried as I already have some of the issues it says...
First posted on the Shift.ms app
52

@aaron000 

Last reply

aaron000

Tysabri

I’ve just started tysabri, it’s been good so far but my body still aches so I’m just wondering if I could still use cannabis?
First posted on the Shift.ms app
1

@Jimmyp47 

Last reply

Jimmyp47

Tysabri

Hey everybody. Ocrevus for 2 years and sadly didn't work now spine been really attacked from t11 and lower. Now neurologist has mentioned Tysabri as the next option after the Ocrevus fail. Has anybody experienced Tysabri and if so what can I expect from this treatment?? Thank you all in advance.....
Melbourne, Australia
32

@bex1890 

Last reply

bex1890

Tysabri

I was on tysabri injections every 4 weeks but I have now become JC virus positive so they switched me to every 6 weeks I have opted to switch treatment (can't remember the name) but I injections myself it's every month & I no longer have to go to the hospital which is a bonus!! I know I can't rememb...
First posted on the Shift.ms app
4

@Hollie18 

Last reply

Hollie18

Tysabri

I had my third infusion of Tysabri today and I’m noticing the side effects getting worse than before. Is anyone else on Tysabri? What are your experiences? I was also curious on when they started to feel the full effects of it. Did it take 6 months to a year until you felt the positive change?
Joliet, United States
  • Tysabri
  • Treatment
  • Symptoms
  • Positives of MS
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  • Relapses
  • Mavenclad
  • Unlicensed
  • Healthy living
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13

@Ddott 

EditedLast reply

Ddott

Tysabri?

UPDATE: Thank you, everyone, for sharing your experiences. I know everyone is different but it really does help give me a sense of it and what I could experience. Hi everyone. I started my first Tysabri infusion today. The i fusion itself went seamlessly. I was wondering if anyone else was on Tysab...
Ottawa, Canada
  • Tysabri
  • Disclosure
  • Diagnosis
  • Treatment
  • Ocrevus
  • Relapsing remitting
  • Work and play
  • Symptoms
29

@Donna_Marie 

Last reply

Donna_Marie

Tysabri

Hello I am new on here. I am on tysabri the question is if I tested positive to JCV what other DMT's are available in the UK 🇬🇧 I've been on ocrevus they had to take me off it as it wasn't working quick enough, so I don't think they'll put me back on that. Thank you for your time
Sutton in Ashfield, United Kingdom
  • Treatment
  • Ocrevus
  • Which DMT
  • Tysabri
  • Work and play
  • Diagnosis
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  • MRI
  • Positives of MS
1
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