Shift.ms

8 Oct 2024 15:03

Drugs that are prescribed willy-nilly to PWms

How safe and thought through are they? Some drugs are given out with little thought for their wider effects on us. Another great post from the MS-Selfie. Gavin is super kind because if you can't afford a subscription just say and he'll let you follow for free. https://gavingiovannoni.substack.com...

@Millie

22 Feb 2009 20:03Last reply 12 Oct 2012 15:13

to friends and relations of PWMS

Pay for an aromatherapy/massage/reiki session for your friend/relation. Can give an instant uplift!

2

@mellowmedusa

17 Oct 2024 11:13

Ocrelizumab and serious infections

Great article from Gavin Giannoni on this topic. Applies to Kesimpta and rituximab as well. If you have Substack, you can read for free. https://open.substack.com/pub/gavingiovannoni/p/serious-infections-on-anti-cd20-therapies?r=2f3ys&utm_medium=ios Bottom line - there is a 7% risk of serious infe...

First posted on the Shift.ms app

@DominicS

26 Aug 2024 12:04Last reply 26 Aug 2024 14:55

AI-driven personalized care for people with multiple sclerosis

AI stands to make some massive impacts in MS, often in levelling up the standard and consistency of the care we receive. I am on the board of a UK based trial examining the icobrainms tool in looking at MRI. This article is about a similar wider reaching project in Europe. The TL;DR version is as...

1

@4ecks

16 Sep 2022 06:06 EditedLast reply 26 Jun 2024 06:56

Amantadine AND Modafinil for fatigue?

Hi, I'm 54, male, diagnosed RRMS 4yr ago but probably had MS for decades & on Tysabri. I was on Amantadine (after a battle with my ex-GP) for a couple of years, well tolerated but the "brain fog" started getting worse so a few weeks ago I was switched to Modafinil (100mg @ 6:00AM), only available vi...

4

@alanzapata

2 Nov 2023 08:06Last reply 8 Dec 2023 21:12

Five years with no activity

Hello everyone I hesitate to post this, since I know a lot of people are struggling with relapses and all sorts of problems, but if I can't say it here, then where can i share? My latest MRI was, in the words of my taciturn and overworked GP "estable", which I think can be understood by the anglo...

Mairena del Aljarafe, Spain

8

@Leeb

30 Jul 2023 11:40Last reply 31 Jul 2023 20:30

Research Without Urgency?

I recently came across the below: https://scitechdaily.com/can-this-medication-reverse-multiple-sclerosis-brain-biomarker-shows-it-can/ Please note the section "Ten years following the discovery of a common antihistamine, clemastine, as a potential treatment for multiple sclerosis by scientists at U...

10

@Sarah_Brynn

15 Feb 2023 14:58Last reply 15 Feb 2023 15:58

Help with managing fatigue resources

Hello! I'm newly diagnosed and my worst symptom is profound fatigue. I understand why it's the most common reason pwMS stop working. Does anyone know of any good courses to take on managing fatigue, pacing, etc in MS? Or other good resources? Thanks

2

@AnjaliVyas

31 Dec 2022 18:46 Edited

Happy New year 2023 : Purple Fest 2023 in Goa, India

Its been over 2 years now that i posted anything here. Sorry!!! I wish I could've been more active. I am pursuing a Fellowship in Disability since a year and have been advocating for the Rights of persons with MS with the MS Society of India since 2018. I have something really exciting to share with...

@DominicS

9 Sep 2022 08:43 EditedLast reply 9 Sep 2022 09:04

Disabled Railcards - the saga continues

As many of you know - search it all using the magnifying glass on the top right - about 3 years ago I got very worked up at the Rail Delivery Group (RDG) which manages the Disabled Persons Railcards. They make it appear on the website that you need to hit certain thresholds of disability to get the...

2

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