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How safe and thought through are they? Some drugs are given out with little thought for their wider effects on us. Another great post from the MS-Selfie. Gavin is super kind because if you can't afford a subscription just say and he'll let you follow for free. https://gavingiovannoni.substack.com...

Pay for an aromatherapy/massage/reiki session for your friend/relation. Can give an instant uplift!

Great article from Gavin Giannoni on this topic. Applies to Kesimpta and rituximab as well. If you have Substack, you can read for free. https://open.substack.com/pub/gavingiovannoni/p/serious-infections-on-anti-cd20-therapies?r=2f3ys&utm_medium=ios Bottom line - there is a 7% risk of serious infe...

AI stands to make some massive impacts in MS, often in levelling up the standard and consistency of the care we receive. I am on the board of a UK based trial examining the icobrainms tool in looking at MRI. This article is about a similar wider reaching project in Europe. The TL;DR version is as...

Hi, I'm 54, male, diagnosed RRMS 4yr ago but probably had MS for decades & on Tysabri. I was on Amantadine (after a battle with my ex-GP) for a couple of years, well tolerated but the "brain fog" started getting worse so a few weeks ago I was switched to Modafinil (100mg @ 6:00AM), only available vi...

Hello everyone I hesitate to post this, since I know a lot of people are struggling with relapses and all sorts of problems, but if I can't say it here, then where can i share? My latest MRI was, in the words of my taciturn and overworked GP "estable", which I think can be understood by the anglo...

I recently came across the below: https://scitechdaily.com/can-this-medication-reverse-multiple-sclerosis-brain-biomarker-shows-it-can/ Please note the section "Ten years following the discovery of a common antihistamine, clemastine, as a potential treatment for multiple sclerosis by scientists at U...

Hello! I'm newly diagnosed and my worst symptom is profound fatigue. I understand why it's the most common reason pwMS stop working. Does anyone know of any good courses to take on managing fatigue, pacing, etc in MS? Or other good resources? Thanks

Its been over 2 years now that i posted anything here. Sorry!!! I wish I could've been more active. I am pursuing a Fellowship in Disability since a year and have been advocating for the Rights of persons with MS with the MS Society of India since 2018. I have something really exciting to share with...

As many of you know - search it all using the magnifying glass on the top right - about 3 years ago I got very worked up at the Rail Delivery Group (RDG) which manages the Disabled Persons Railcards. They make it appear on the website that you need to hit certain thresholds of disability to get the...