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Pay for an aromatherapy/massage/reiki session for your friend/relation. Can give an instant uplift!

Hello! I'm newly diagnosed and my worst symptom is profound fatigue. I understand why it's the most common reason pwMS stop working. Does anyone know of any good courses to take on managing fatigue, pacing, etc in MS? Or other good resources? Thanks

Its been over 2 years now that i posted anything here. Sorry!!! I wish I could've been more active. I am pursuing a Fellowship in Disability since a year and have been advocating for the Rights of persons with MS with the MS Society of India since 2018. I have something really exciting to share with...

Hi, I'm 54, male, diagnosed RRMS 4yr ago but probably had MS for decades & on Tysabri. I was on Amantadine (after a battle with my ex-GP) for a couple of years, well tolerated but the "brain fog" started getting worse so a few weeks ago I was switched to Modafinil (100mg @ 6:00AM), only available vi...

As many of you know - search it all using the magnifying glass on the top right - about 3 years ago I got very worked up at the Rail Delivery Group (RDG) which manages the Disabled Persons Railcards. They make it appear on the website that you need to hit certain thresholds of disability to get the...

Before I was strong and fit physically and mentally fit and as an adult, never needed or would dream of asking for help. After 20 years into PPMS and all but wheelchair bound, I need plenty of physical assistance but the great thing is I’ve found people are so willing to help and feel so good ado ab...

Hi all, I was really lucky to interview my friend Dr Aaron Boster. Aaron runs a super YouTube channel for pwMS and he convinced me to start a patient-led channel just over a year ago. We just did a video together giving 5 tips from a patient (me!) and 5 tips from an MS neurologist (Aaron). Check ...

Hi you lovely folk, this may sound an odd question but I know I’m amongst other pwms & you’ll all say ‘no question is a silly question!!’ (Least I hope you do!) I’m still walking albeit with difficulty, aids & the obvious risk of falls due to a less than effective left leg & of course balance issues...

Morning all I've been prescribed Amitriptyline for neuropathic pain in feet and hands which seems to be getting worse and I'm getting on a daily basis. Having read about possible side effects I am really reluctant to start taking this. Chronic fatigue is my most difficult symptom together with p...

Hi all, just wondered if anyone had any advice on probiotics, specifically for pwMS? There is a glut of info on the internet and I feel like I've waded through half of it... Would be interested to crowdsource people's thoughts! (Specific brands, etc.) I'm currently taking one BioKult a day and hav...

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

I have a conflict of interest to declare: I am on the UK MS Register committee. - The MS Register here struggles to get more sign-ups. Everything you share is to further the cause of MS research. Your data is secured properly and never ever shared, outside of the anonymised research data. - The Fre...

I'd like to hear first or at most second hand an account of what it's like for a PwMS to go through COVID. I'm surprised and a bit concerned that I've not seen one here yet. Either we're very good at shielding, or we tend to die of COVID, or both. Or it's just a quirk of stats, and the rate of inf...

Afternoon all, - Not sure when I ought to drop the Covid-19 tag from the headline. I think it should last as long the lockdown lasts. We see the conversation subtly changing now to more of the looking ahead. You can’t panic forever. ------ MS Stuff ------ I still see people asking about the risks – ...

Morning All, - Such a gorgeous day. Mrs S and I were out walking alongside the river just before 0700. A frost but the lovely sun. C was wrapped up, I was in shorts as my summer dress sense is driven by my inner-Canadian. 7.5km as halfway to the planned turning point we looked at one another and si...

Ni sa bula vinaka (A warm hello in Fijiian - but I reckon you lot already knew that), - Reports of my demise have been greatly exaggerated. I feel markedly better today. And than you for the many felicitations I have received. I appreciate them. - I watched the MS Society webcast with Prof Evangelou...

Nǐ hǎo, - I am waiting for this sudden mist to burn off so I can do my walk in better visibility. In other news, my bread is getting better. Incrementally. After 3 weeks of living in one another's pockets, Mrs S and I have been rather techy with one another this morning. To be expected. Imagine our ...

Merhaba, - Yes, it is April fools day. No, I haven't got a trick for you. Yes, I am a humourless bastard. no, I don't really care what you think ;) --------- MS Stuff --------- I just finished interviewing a consultant neurologist at Imperial College London about the supercritical MS Register (https...

https://multiple-sclerosis-research.org/2020/03/mscovid19-updated-abn-guidance-on-ms-dmt-during-the-pandemic/ Reproduced below as well: Thanks to @drruthdobson I’ve just received the new ABN guidance on MS disease modifying treatment during the COVID-19 crisis. This updates last week’s document s...

Not something to worry about, just something to be aware of. It is the last 2 or 3 sentences of the abstract (below) to internalise and raise with your Neuro. https://www.frontiersin.org/articles/10.3389/fimmu.2020.00124/abstract >> At the population level this enables the drug to work in mo...