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Recent activityNewest posts

@lkr6 

29 Jun 2025 06:45Last reply 30 Jun 2025 01:48

lkr6

Optic neuritis

Hello, looking for some words of wisdom, am fairly recently diagnosed (March this year) luckily symptoms have been fairly manageable so far. However Thursday morning I woke up without much sight in my right eye, trip to eye casualty later and diagnosis of optic neuritis. They’ve said it will heal it...
First posted on the Shift.ms app
19

@dcgreen714 

23 Jun 2025 14:29 EditedLast reply 24 Jun 2025 17:18

dcgreen714

Hello

Hi everyone, I’m new here 👋 I was diagnosed in December 2024, my first symptom was numbness in my legs back in 2021-22, then optic neuritis in 2023 had landed me in the hospital and so began my MS journey. During that time I was just a few wks shy of moving from upstate NY to the UK for school - it...
First posted on the Shift.ms app
8

@NadineBeck 

12 Jun 2025 15:36Last reply 14 Jun 2025 13:16

NadineBeck

Is this optic neuritis?

I don't know if I'm over reacting/panicking, but Tuesday i had a grumbling headache, that twice gave me sharp pain to the right side of my head, grumbling very mild headache since. Yesterday I felt like there was 'jelly' in my right eye making sight a little off, but not awful, resolving after a f...
First posted on the Shift.ms app
13

@CasaBlanca 

7 Jun 2025 03:20Last reply 7 Jun 2025 11:33

CasaBlanca

Relapse, maybe?

Hi everyone, looking for advice and experiences. On Monday, I did my first workout after not being active for about 4 years. I had normal muscle soreness after, nothing unusual. On Wednesday, I started sweating a lot and had pain in my right eye. I have had optic neuritis in that eye before. I als...
First posted on the Shift.ms app
2
Deleted

@BlackPhoenix 

1 Jun 2025 12:24Last reply 1 Jun 2025 13:14

BlackPhoenix

Emotions.

I’m struggling to articulate today. Bear with me. I can’t stop crying. I don’t feel like there’s anything going on that is worthy of such a strong emotional response. New. Optic neuritis. Ocular migraines. One point away From being legally blind with corrective lenses. Photophobic. Dizzy. Na...
First posted on the Shift.ms app
2

@SmoothJoes 

28 May 2025 01:44

SmoothJoes

Thankful for my father

At 12 I saw a Dr. Who said my optic neuritis could be a sign of MS. We left his office not trusting him because something seemed funny about this guy. 2 weeks later getting hair cut I see him on the news, being arrested for Pedophila in his practice.Thanks Dad for having my back, I wish we could of ...
First posted on the Shift.ms app

@angela79 

27 May 2025 19:55Last reply 28 May 2025 01:50

angela79

Im currently waiting to see a neurologist.

For those of you in the days before diagnosis did you ever have mild optic neuritis or eye problems My GP suspects i have Ms I have a pulling type of pain in one eye alongside blurred vision and peripheral vision loss and dull colours and face pain. The pain has never been severe but the symptoms ...
Birmingham, United Kingdom
6

@Lauren21 

23 May 2025 11:56Last reply 23 May 2025 18:05

Lauren21

MRI post relapse

I have a scheduled MRI next weekend which is 6 weeks after symptom onset. I attended the eye hospital with suspected retrobulbar neuritis which is optic neuritis behind the optic nerve. However when I returned for a 2 week check up, the Dr who examined me said my optic nerve appears to be firing- wh...
8

@carilyn1970 

16 May 2025 23:27Last reply 25 May 2025 13:02

carilyn1970

I have been falling down.

I have been diagnosed since 1994. My past flare ups have involved going numb on the right side. Then vertigo, then opticneritis. (forgive the spelling) now. I don't know if what is happening is MS or something else entirely. But, I have fallen down twice in the last 6 weeks. I am going to see...
First posted on the Shift.ms app
13

@AWAYWITHMS 

16 May 2025 17:04 EditedLast reply 23 May 2025 20:00

AWAYWITHMS

Vision loss

Anybody experience vision loss at any point because of MS? I’ve been partially blind in my left eye since last year. I experienced optic neuritis late July 24’, did 5 days in the hospital on high dose steroids. Vision went from blurry to dim to dark. The iv steroid did little affect leaving my vi...
First posted on the Shift.ms app
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