Optic Neuritis
I’d love to hear people’s stories with optic neuritis. Like when did it start? Do you experience it with Uthoffs? How long?
One of the major first symptoms I had was double vision. I got it after getting COVID. The double vision went away but I still experience brightness, especially when hot. If I’m at the gym jogging, it’s so bright I can hardly see text or clearly at all. I have my fingers crossed it may go away but at this point it’s been many many months of it and I don’t think it’s improving. I am an artist and I have a son ( though I imagine anyone would feel this way) the thought of losing my vision or a great decline is really upsetting. Just looking for anecdotes - good or bad — some shared experiences.
Hellooo, my experience with it was just a little strange to me at least I've had it twice, the first time I thought nothing of it because I have astigmatism, then it happened in the opposite eye, it was more so just like pain whenever I'd move my eye and I had a little black spot in the lower centre of my vision and it lasted about a week and now my vision is back to how it was before the optic neuritis😊
This is also how I ended up with my diagnosis last year