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Recent activityNewest posts

@highheeledfagin 

27 May 2017 12:23Last reply 30 May 2017 11:29

highheeledfagin

How did you approach LEMTRADA?

Hi, People. I started Rd 1of Lemtrada (alemtuzemab) about 3 weeks ago and have been meaning to post something since then. When I get myself together and start putting my Lemtrada journal up on Tumblr, I'll post the link. I think that I was reasonably well prepared for this whole thing, but am inter...
  • Healthy living
  • Diet
  • Treatment
  • Lemtrada
4

@highheeledfagin 

17 Feb 2017 10:53Last reply 8 Mar 2017 15:05

highheeledfagin

MS Hacks: Dealing with Disability.

Hey, guys. I'm going to keep this broad for now but reckon it'll get broken down into categories later. Many of us will have varying degrees of disability - I have foot-drop and mobility issues, my hands become useless when cold, etc - so I suspect we are a treasure trove of tips and tricks for man...
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Hot and cold
3

@highheeledfagin 

20 Jan 2017 21:20Last reply 1 Apr 2017 20:42

highheeledfagin

MS Hacks: Next topic?

HI everyone. It's been a long time, but MS Hacks is back. This time, I'd like you all to tell me what you would like to see as the next topic. for those of you who don't know it, this feature is a way for us to share tips and lifehacks that we actually use in our own lives to make living with MS ...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Fatigue
  • Hot and cold
10

@highheeledfagin 

12 Feb 2016 17:00Last reply 14 Feb 2016 18:15

highheeledfagin

MS Hacks: Mood, anxiety and wellbeing

Whether you have MS, think you might, or love somebody who does, it's only natural that the constant upheaval and uncertainty can sometimes feel like a bit too much. Just as we (try to) take care of our bodies, it is important that we do what we can to keep our minds in a better position to deal wi...
  • Healthy living
  • Diet
  • Symptoms
  • Mental health
5

@highheeledfagin 

2 Oct 2015 15:42Last reply 9 Nov 2015 01:13

highheeledfagin

MS Hacks: MS in the workplace

HI everyone. It's been a while but, once again, we need your help and tips.This time around, we're talking about work. With relapses, fatigue, cognitive changes and a list of other symptoms that may need to be managed daily, whether you work 9-5 or part-time, working life requires a whole extra to...
  • Symptoms
  • Fatigue
  • Relapses
  • Work and play
  • Work and Study
7

@emaweston 

17 Jun 2015 12:14Last reply 18 Jun 2015 15:05

emaweston

Fatigue nonsense

Hey all! I hadn't honestly experienced 'real' MSfatigue until really recently. Some context: I'm a secondary school teacher and I went from part time to full time in January which, on reflection, was a stupid idea. At first I was putting the fatigue down to this but I've been off for a week and a h...
  • Diagnosis
  • Secondary progressive
  • Symptoms
  • Brain fog
  • Fatigue
  • Relapses
  • Work and play
  • Work and Study
6

@highheeledfagin 

19 Sep 2014 13:28Last reply 20 Nov 2014 20:17

highheeledfagin

MS Hacks: Anxiety and Mood

Hi everyone, it's MS Hacks time again. Many MSers are faced with anxiety issues or suffer from Depression, low mood and other emotional obstacles at some point. With Winter on its way, things can just feel a lot heavier if you are unprepared, so I'm after your tips and strategies for dealing with st...
  • Healthy living
  • Mind and body
  • Symptoms
  • Mental health
21

@highheeledfagin 

12 Jul 2014 22:34Last reply 12 Sep 2016 18:06

highheeledfagin

MShacks: Memory and Cognition

Hi there, Shifters. The theme of the next set of MS hacks is memory and thinking. As I'm sure many of you will have experienced, sometimes MS makes it just that bit more difficult to keep details in your head, keep track of conversations, or think of that oh so witty comeback quickly enough. So, if...
  • Symptoms
  • Brain fog
  • Relapses
11

@highheeledfagin 

21 Aug 2013 13:23Last reply 4 Feb 2014 08:05

highheeledfagin

MS Hacks vol.2: Taming Fatigue

Motivated by the wonderful response to Vol. 1: Beat the Heat, I've been trying to chose a topic for the next set of MS Hacks. There were a few possibilities - and I always welcome more suggestions - but I figured that fatigue seems to affect more of us MSers than any other symptom, so perhaps we cou...
  • Symptoms
  • Brain fog
  • Fatigue
  • Hot and cold
  • Relapses
  • Work and play
  • Fun drugs
  • Work and Study
20

@highheeledfagin 

12 Jul 2013 12:57Last reply 1 Aug 2013 05:11

highheeledfagin

MS hacks vol.1

So, a few weeks ago I asked you all for your tips for dealing with the heat. There a lot of really great responses and, with a lot of work and support from @Freddiems and @Rosie.Mossey, the seed of an idea that I had began to sprout and grow into something. If you all run over to the magazine sectio...
  • Healthy living
  • Exercise
  • Symptoms
  • Hot and cold
  • Work and play
  • Work and Study
2
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