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Recent activityNewest posts

@PoppyJo 

19 May 2025 07:38

PoppyJo

Hi, has anyone got experience of starting a DMD after years of finishing and essentially opting out? I've been assigned a new consultant and I'm looking into being approved for one? Has anyone been turned down? Back in the day I had Copaxone and Avonex for a few years.

First posted on the Shift.ms app

@Hough1981 

4 May 2025 09:19Last reply 4 May 2025 18:52

Hough1981

Copaxone side effects

Morning all. I was using Copaxone for many years, but stopped around three years ago due to experiencing awful side effects. I used to inject myself in privacy when nobody was at home. One occasion I injected into my right thigh, then experienced what can only be described as a feeling that I was h...
First posted on the Shift.ms app
9

@JJPac 

15 Mar 2025 21:39Last reply 15 Mar 2025 21:40

JJPac

Alternative/Complimentary treatments.

It’s been a year now since I was last on a conventional dmt. In the earlier years of my multiple sclerosis before my first dmd, I just tried taking vitamins and supplements, Bowen technique (massage) and Reiki energy healing to treat MS. I’m wondering if anyone has had experience of having other alt...
London, United Kingdom
1

@shanai 

5 Mar 2025 09:42Last reply 7 Mar 2025 16:35

shanai

Kesimpta ofatumumab

I recently started kesimpta, it's my first dmd and I'm wondering how people who have taken it, if they have had any side effects from long term use.
, United Kingdom
First posted on the Shift.ms app
22

@Lisaminni 

14 Feb 2025 12:42

Lisaminni

Hello I’m new here dx back in 2000 has anyone else gone of dmd after many years of use ?

First posted on the Shift.ms app

@Jackson40 

25 Jan 2025 12:28

Jackson40

Hello legends haven't been on for a while just thought I check in I have a positive up date on my DMD and finally after a constant battle I am pleased to say I have started Kesimpta feeling a little rough with it but it's my 1st dose so it can only get better in time. Is there any pointers out there about dealing with side affect as I'm doing the regular paracetamol etc so other advice would ve great many thanks ???

First posted on the Shift.ms app

@Snakeeyes 

25 Jan 2025 11:47Last reply 27 Jan 2025 03:05

Snakeeyes

Just Started Kesimpta

Hello legends haven't been on for a while just thought I check in I have a positive up date on my DMD and finally after a constant battle I am pleased to say I have started Kesimpta feeling a little rough with it but it's my 1st dose so it can only get better in time. Is there any pointers out ther...
Nuneaton, United Kingdom
9

@Matt_Boyd 

24 Jan 2025 07:06 EditedLast reply 27 Jan 2025 03:16

Matt_Boyd

Mavenclad

Hey, I'm soon to switch DMD's from Brabbio to Mavenclad. I'd appreciate any feedback from people that either use Mavenclad, or have stopped using Brabbio. I'm also wondering; how do you tell what is a side-effect from the DMD itself rather than a symptom of MS in general? I've been having some ver...
Leianovergion, Greece
7

@Princesstlr 

13 Dec 2024 20:13 EditedLast reply 17 Dec 2024 07:02

Princesstlr

Hello everyone

Hope everyone is well, I’m new to the app, I was diagnosed RRMS in 2004 been on DMDs ever since, rebif for 20yrs recently changed to Avonex 👋👋
First posted on the Shift.ms app
3
Deleted

@ball858 

6 Dec 2024 14:14 EditedLast reply 6 Dec 2024 15:22

ball858

Neuro appointment today DMD advice

So just seen the neurologist and it’s confirmed as Tumification MS and rapid evolving MS (having had 3 episodes in 2 years). Reading everyone’s stories I think I’m lucky as it’s only been 7 weeks since my first scan and I have seen the neurologist and neurosurgeons. Now to look at DMD options, I’m l...
First posted on the Shift.ms app
1
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