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Just wondering if anyone has said no to medication and treated their MS solely with diet? Is it better to take the opinion of "treat as early as possible" or "wait for more progression and then treat" Just trying to get as much info on this so I have all questions prepared for when I next meet w...

Alright so I’ll keep it short and sweet, im suppose to start my first DMD (Dimethyl fumarate) I’ve got them but reading through the huge leaflet has left me scared. I’ve found myself saying I’ll start taking them but another day goes by and I don’t take them. I’m just looking for others to share the...

Hope youre all well. Saw my Neurologist last week. I've had a lot of relapses in the last couple of years. He thinks a change of DMD. Ocrevus and also Kesimpta has been mentioned. I'm getting info about it in the post. I know one is an infusion and the other to inject it myself. Does anyone know a...

I was diagnosed back in 2009 with RRMS after a mri, no medication prescribed ,just been getting on with life, I've been struggling recently with my fatigue and my balance so phoned my gp to ask to be referred to neuro as wanted to speak about dmd after reading up on it on the ms site. I was surprise...

I got the info on Kesimpta and Ocrevus yesterday. Theres alot to read. I find Ocrevus info very easy user friendly. I can get dexterity dropping things so I don't know if I trust myself using an injection pen. I'm leaning to Ocrevus. I like that you can eat snacks while you have the IV drip! I've sa...

Dear colleagues I have posted a recent blog on the subject of risk: how we deal with choices regarding disease modifying drugs. You can see the posting on http://www.whatmsmi.com. I would welcome your own comments.

Is anyone a relapsing remitter and DMD free? I've been having large and itchy site reactions with Copaxone, which last for weeks. I look like a battered woman when going to the swimming pool as I have all of these purple marks on my legs where the reaction hasn't fully gone...High dose antihistami...

Hi all, sorry not been about much just been really busy with the holidays drawing near. I saw a lady Doc at the hospital yesterday for a review. My on and off symptoms have slowed down a lot, my main ongoing problem is my right leg which is decidedly dodgy most days especially when walking any...

Hi, Has anyone chosen not to be on dmd s and if so how do you manage your condition without dmds ? My neurologist has not offered me them unless I have another relapse which I can see his way of thinking . Do any of you go against the neurologist and not take them and how do you manage ? Rachael �...

Hi all, Feeling a little scared after finally managing to read all the DMD booklets last night! So I was offered Fingolimod or Tecfidera. I chose Fingolimod without reading fully about all possible side effects. The side effects seem a lot more extensive - Cough, headache, back pain, diarrhoea, i...