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Registered Company: 06000961

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Found 353 results

@jennymay1548

Last reply

jennymay1548

DMD

Alright so I’ll keep it short and sweet, im suppose to start my first DMD (Dimethyl fumarate) I’ve got them but reading through the huge leaflet has left me scared. I’ve found myself saying I’ll start taking them but another day goes by and I don’t take them. I’m just looking for others to share the...
  • Which DMT
  • Treatment
  • Mental health
  • Betaferon
  • Relapses
  • Relapsing remitting
  • Work and play
  • Symptoms
  • Rebif
10

@Emmaloo74

Last reply

Emmaloo74

DMD

I was diagnosed back in 2009 with RRMS after a mri, no medication prescribed ,just been getting on with life, I've been struggling recently with my fatigue and my balance so phoned my gp to ask to be referred to neuro as wanted to speak about dmd after reading up on it on the ms site. I was surprise...
  • Diagnosis
  • Newly diagnosed
  • Which DMT
  • Symptoms
  • Relapsing remitting
  • Balance
  • Fatigue
  • Exercise
  • Treatment
  • Healthy living
1

@katrinaf93

Last reply

katrinaf93

DMD

Just wondering if anyone has said no to medication and treated their MS solely with diet? Is it better to take the opinion of "treat as early as possible" or "wait for more progression and then treat" Just trying to get as much info on this so I have all questions prepared for when I next meet w...
  • Healthy living
  • Diet
  • Treatment
  • Which DMT
  • Work and play
  • Meet ups
32

@Rustymoo

Rustymoo

DMD’s

Anyone been using ocrevus and found any benefit from it? I have RRMS and have difficulty walking. Due to start the infusion mid jan
  • Treatment
  • Ocrevus
  • Relapsing remitting
  • Healthy living
  • Which DMT
  • Exercise
  • Diagnosis

@ClaireS

Last reply

ClaireS

Which DMD????

So I saw my neurologist today and he said I’d only qualify for the highly effective DMDs if I have a new active lesion, otherwise it’s the slightly less effective treatments. My initial thought was don’t bother with an MRI at this stage to see if I have active lesions, go onto one of the drugs I do ...
  • Which DMT
  • Treatment
  • Diagnosis
  • MRI
  • Fun drugs
  • Work and play
  • Relapsing remitting
  • Symptoms
3

@Preeya

Last reply

Preeya

DMD making me feel worse?

Hi everyone, I was diagnosed January 2022. I started Tecfidera in June and have been on the high dose (240 mg 2x/day) for about a month now… I feel worse and worse every day. The nausea, fatigue, joint pain, brain fog, flushing, stomach issues… I don’t feel like myself anymore. The ms nurses have t...
  • Healthy living
  • Diet
  • Symptoms
  • Diagnosis
  • Fatigue
  • Pain
  • Treatment
  • Newly diagnosed
  • Going out
  • Brain fog
1

@WINDUSS

Last reply

WINDUSS

Starting DMD nerves...................

Hi everyone, well I've done it I made the decision to start Tecfidera after lots of questions and worries fired at my MS Nurse this seemed the most effective option to me at present and with regular monitoring risks seemed a bit more manageable to process. But now I've been contacted to advise my f...
  • Treatment
  • Which DMT
  • Mental health
  • Work and play
  • Tecfidera
  • Going out
  • Symptoms
  • Plegridy
  • Fun drugs
  • Betaferon
4

@WINDUSS

Last reply

WINDUSS

DMD - Decisions, Decisions????

I was diagnosed with RRMS in October 2020, following my last MRI there was no new lesions (yay!) however there was signs of silent activity (didn't even know this was a thing results and conversations always focused on lesions) and further brain atrophy has now lead to my MS team encouraging me to s...
  • Treatment
  • Which DMT
  • Diagnosis
  • Tecfidera
  • MRI
  • Newly diagnosed
  • Work and play
  • Relapsing remitting
  • Aubagio
  • Symptoms
12

@MrsR

EditedLast reply

MrsR

DMD's

Hi, diagnosed Aug 21, in denial - refused meds. Now almost certainly having a sensory relapse (numb face/side of head -how long will this last!!) and the anxiety is off the scale. They don't want to give steroids as it's 'just sensory'. :( My question is that I have only really been offered plegridy...
  • Treatment
  • Numbness
  • Symptoms
  • Which DMT
  • Newly diagnosed
  • Diagnosis
  • Relapses
  • Plegridy
  • Steroids
  • Mental health
3

@ks2108

Last reply

ks2108

Change of DMD - advice please?

Good afternoon all! I am new here so please go easy on me! :-) I was diagnosed with RRMS back in August 2007 and have been on numerous DMDs over the years with the latest one being Brabio (glatiramer acetate). After a recent appointment with my MS consultant he has suggested / advise for me to m...
  • Which DMT
  • Treatment
  • Relapsing remitting
  • Diagnosis
  • Newly diagnosed
  • Tecfidera
  • Work and play
  • Mental health
  • Symptoms
  • Relapses
7

@julespickering5

Last reply

julespickering5

Changing DMD | Ocrevus

Hello I haven’t actually written anything on here but always gone on for support, information and to understand what other people are going through. I have been on Tefidera for little under 2 years now, which hasn’t helped in anyway as I am still getting lesions on the brain and spine. I’ve now d...
  • Ocrevus
  • Treatment
  • Healthy living
  • Tysabri
  • MRI
1

@Will_Berard

Will_Berard

DMDs: Ask the Expert

I'm making podcasts for the MS Trust, a couple of the episodes are starting to come out. MS Nurse advisor Nikki Embrey on DMDS: https://mstrust.org.uk/resources/podcasts-ms-trust/will-asks-expert-about-disease-modifying-drugs Or listen straight in 'wherever you get your podcasts': Apple Podcasts:...
  • Fun drugs
  • Work and play
  • Relapses
  • Which DMT
  • Treatment
  • Research
  • Symptoms
  • Diagnosis
  • Myelin repair

@mara

Last reply

mara

Anyone using LDN as their only DMD?

I am on some symptom relief drugs for MS like Baclofen and Ampyra, but as my last round of Rituxan wears off, LDN will be the only pharmaceutical protection between me and a relapse. I am nervous as my disease was quite active before the LDN and Rituxan. I have been stable for 5 years or so now, but...
  • Treatment
  • Unlicensed
  • Relapses
  • Work and play
  • Fun drugs
  • Gilenya
  • Symptoms
  • Which DMT
  • Relapsing remitting
13

@Stephanie

Last reply

Stephanie

DMD’s for new diagnosis & mental health

Hello, I am newly diagnosed with MS & would like some perspective on treatments & mental health resources. Some background: I’ve been incredibly fortunate that from contacting my GP about symptoms and being admitted to hospital for tests (incl MRI & lumbar) then discharged from hospital with stero...
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Blurred vision
  • Mental health
  • MRI
  • Lemtrada
  • Disclosure
  • Ocrevus
7

@kersh100

Last reply

kersh100

RRMS Never Been Offered DMD’s

Just puzzled... diagnosed 2014 at 54 after a chronic idiopathic event left me virtually paralysed from the chest down 2 days after arriving in Oz. Had to abandon my new life and come home to UK. I’ve had on average 1 Neuro appointment a year. I’ve suffered various symptoms like all of us but find m...
  • Symptoms
  • Relapses
  • Which DMT
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Pain
  • Work and play
  • Relapsing remitting
  • Mental health
3

@Foxes84

Last reply

Foxes84

DMDs

Hi, just wondering about peoples experiences of the following: Ocevus (which I think I'm ruling out because I want to try for a family at some point in the near future). Tecfidera Capoxone Many thanks
  • Treatment
  • Tecfidera
  • Family and children
  • Work and play
  • Which DMT
  • Diagnosis
9

@andyl

EditedLast reply

andyl

Making the first DMD choice

Hi everyone. i'm so pleased I came across shift.ms :). I'm Andy and diagnosed with RRMS a month ago. As i'm sure you all know, i'm on a complete rollercoaster right now but i'm feeling positive and focused on getting on the right DMD's (along with diet, vitamins and managing stress etc). I've done ...
  • Treatment
  • Diagnosis
  • Ocrevus
  • Relapsing remitting
  • Which DMT
  • Mental health
  • Newly diagnosed
  • Healthy living
  • Tysabri
  • Symptoms
7

@ncm22

Last reply

ncm22

Started dmds 8 years after diagnosed hel

Hi, I have rrms, diagnosed in 2010, symptoms since 2007. I started copaxone in 2018, had MRI new lesions. So started tecfidera in February this year. I just wondered as i have not been on dmds for 8 years after being diagnosed. Whether the dmds would be less effective going forward, I know t...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Symptoms
  • Treatment
  • Copaxone
  • Tecfidera
  • Which DMT
  • MRI
6

@katfight

Last reply

katfight

Info needed on 3 DMD's

Okay so we all know were different and that ms varies between us but jus want personal opinions, I have read all info from the mstrust, ms society and even Dr bosters advice. .. But I'm after personal specific findings for the following dmd's: .. Gilenya (Fingolimod) Ocrevus (Ocrelizumab) Mavenclad...
  • Symptoms
  • Relapses
  • Treatment
  • Gilenya
  • Unlicensed
  • Which DMT
  • Ocrevus
  • Mavenclad
4

@Moomin71

Last reply

Moomin71

Side effects of DMDs

Hello everyone I joined this group about 10 days ago after being diagnosed with rrms. It’s taken 20 years from possible ms/cis with very few relapses that have always been put down to other things ie migraine or shingles. Last year I developed nystagmus and from there, following a third mri was giv...
  • Diagnosis
  • Disclosure
  • Limbo land
  • Newly diagnosed
  • Relapsing remitting
  • Symptoms
  • Fatigue
  • Treatment
  • Which DMT
  • MRI
6
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