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Alright so I’ll keep it short and sweet, im suppose to start my first DMD (Dimethyl fumarate) I’ve got them but reading through the huge leaflet has left me scared. I’ve found myself saying I’ll start taking them but another day goes by and I don’t take them. I’m just looking for others to share the...

I was diagnosed back in 2009 with RRMS after a mri, no medication prescribed ,just been getting on with life, I've been struggling recently with my fatigue and my balance so phoned my gp to ask to be referred to neuro as wanted to speak about dmd after reading up on it on the ms site. I was surprise...

Just wondering if anyone has said no to medication and treated their MS solely with diet? Is it better to take the opinion of "treat as early as possible" or "wait for more progression and then treat" Just trying to get as much info on this so I have all questions prepared for when I next meet w...

Anyone been using ocrevus and found any benefit from it? I have RRMS and have difficulty walking. Due to start the infusion mid jan

So I saw my neurologist today and he said I’d only qualify for the highly effective DMDs if I have a new active lesion, otherwise it’s the slightly less effective treatments. My initial thought was don’t bother with an MRI at this stage to see if I have active lesions, go onto one of the drugs I do ...

Hi everyone, I was diagnosed January 2022. I started Tecfidera in June and have been on the high dose (240 mg 2x/day) for about a month now… I feel worse and worse every day. The nausea, fatigue, joint pain, brain fog, flushing, stomach issues… I don’t feel like myself anymore. The ms nurses have t...

Hi everyone, well I've done it I made the decision to start Tecfidera after lots of questions and worries fired at my MS Nurse this seemed the most effective option to me at present and with regular monitoring risks seemed a bit more manageable to process. But now I've been contacted to advise my f...

I was diagnosed with RRMS in October 2020, following my last MRI there was no new lesions (yay!) however there was signs of silent activity (didn't even know this was a thing results and conversations always focused on lesions) and further brain atrophy has now lead to my MS team encouraging me to s...

Hi, diagnosed Aug 21, in denial - refused meds. Now almost certainly having a sensory relapse (numb face/side of head -how long will this last!!) and the anxiety is off the scale. They don't want to give steroids as it's 'just sensory'. :( My question is that I have only really been offered plegridy...

Good afternoon all! I am new here so please go easy on me! :-) I was diagnosed with RRMS back in August 2007 and have been on numerous DMDs over the years with the latest one being Brabio (glatiramer acetate). After a recent appointment with my MS consultant he has suggested / advise for me to m...

Hello I haven’t actually written anything on here but always gone on for support, information and to understand what other people are going through. I have been on Tefidera for little under 2 years now, which hasn’t helped in anyway as I am still getting lesions on the brain and spine. I’ve now d...

I'm making podcasts for the MS Trust, a couple of the episodes are starting to come out. MS Nurse advisor Nikki Embrey on DMDS: https://mstrust.org.uk/resources/podcasts-ms-trust/will-asks-expert-about-disease-modifying-drugs Or listen straight in 'wherever you get your podcasts': Apple Podcasts:...

I am on some symptom relief drugs for MS like Baclofen and Ampyra, but as my last round of Rituxan wears off, LDN will be the only pharmaceutical protection between me and a relapse. I am nervous as my disease was quite active before the LDN and Rituxan. I have been stable for 5 years or so now, but...

Hello, I am newly diagnosed with MS & would like some perspective on treatments & mental health resources. Some background: I’ve been incredibly fortunate that from contacting my GP about symptoms and being admitted to hospital for tests (incl MRI & lumbar) then discharged from hospital with stero...

Just puzzled... diagnosed 2014 at 54 after a chronic idiopathic event left me virtually paralysed from the chest down 2 days after arriving in Oz. Had to abandon my new life and come home to UK. I’ve had on average 1 Neuro appointment a year. I’ve suffered various symptoms like all of us but find m...

Hi, just wondering about peoples experiences of the following: Ocevus (which I think I'm ruling out because I want to try for a family at some point in the near future). Tecfidera Capoxone Many thanks

Hi everyone. i'm so pleased I came across shift.ms :). I'm Andy and diagnosed with RRMS a month ago. As i'm sure you all know, i'm on a complete rollercoaster right now but i'm feeling positive and focused on getting on the right DMD's (along with diet, vitamins and managing stress etc). I've done ...

Hi, I have rrms, diagnosed in 2010, symptoms since 2007. I started copaxone in 2018, had MRI new lesions. So started tecfidera in February this year. I just wondered as i have not been on dmds for 8 years after being diagnosed. Whether the dmds would be less effective going forward, I know t...

Okay so we all know were different and that ms varies between us but jus want personal opinions, I have read all info from the mstrust, ms society and even Dr bosters advice. .. But I'm after personal specific findings for the following dmd's: .. Gilenya (Fingolimod) Ocrevus (Ocrelizumab) Mavenclad...

Hello everyone I joined this group about 10 days ago after being diagnosed with rrms. It’s taken 20 years from possible ms/cis with very few relapses that have always been put down to other things ie migraine or shingles. Last year I developed nystagmus and from there, following a third mri was giv...