@SarahMay 

Last reply

SarahMay

First Day of DMD

Well had my first loading dose of Dimethyl Funarate yesterday morning. End up looking like a the red version of Violet Boregard. Forgot about flushing but I also imagined it would be like a meno flush. Hell no. Red from top to toe. Panicked called 111 and MS team. Advised not to take anymore until consultant said. So fingers crossed cooking dinner now and will try dose 2 this evening. Have aspirin and anti histamine at ready. 😂😂😂
@SarahMay

Update- second dose one hour later and flush has begun. Take aspirin and seems to be calming.

1
@squigonometry

My first time was the scariest, thinking a week later the dosage would double. I've noticed that extra spicy food will sometimes make it worse.