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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Deleted

@89scott 

2 Aug 2023 17:42Last reply 16 Oct 2023 21:36

89scott

Diagnosed

How old was everyone when they got diagnosed with MS and what was the first symptom?
59

@Nmarsh 

19 Dec 2022 19:04Last reply 20 Dec 2022 19:45

Nmarsh

Diagnosed

Diagnosed Friday and don't know what's next I can't even remember anything after them words.
  • Newly diagnosed
  • Diagnosis
10

@S3ll3ry 

10 Nov 2022 16:40Last reply 10 Nov 2022 17:45

S3ll3ry

Diagnosed

Hiya, Just on my way home from neurologist. Just been diagnosed after having CIS for the last 2 years. Not sure how to feel or what to do really. Anyone out there a believer of energy work or Gabor mates work? UK based
  • Newly diagnosed
  • Diagnosis
  • Work and play
  • Limbo land
  • Work and Study
  • Symptoms
1

@Kevb 

18 Nov 2021 09:06Last reply 20 Nov 2021 18:44

Kevb

Diagnosed

Resently diagnosed in August 2021 Don't know what to do next, or what happens next. Any advice would be great.
  • Newly diagnosed
  • Diagnosis
  • Treatment
13

@Ireneb74 

10 Nov 2021 18:34Last reply 10 Nov 2021 22:49

Ireneb74

Diagnosed :-(

Monday I got my confirmation I have MS. Another MRI has been requested by my doctor. I had an MRI of my brain and spine in July. The new MRI will be used to confirm any progression from July to new MRI results. I saw the results of my July MRI when I was in the meeting on Monday (thankfully my f...
Edinburgh, UK
  • Diagnosis
  • MRI
  • Newly diagnosed
  • Treatment
  • Ocrevus
  • Work and play
4

@Carla_Luedtke 

29 Sep 2019 21:34Last reply 30 Sep 2019 03:16

Carla_Luedtke

Diagnosed

I was diagnosed officially with MS in April. Can't walk well. Use walker and wheelchair to date. Can't do steroids have bad reactions. Been on Aubagio since June with really no change. What are odds I will at best walk with a cane?
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Steroids
  • Treatment
  • Work and play
  • Accessibility
  • Aubagio
3

@Ahmed 

26 Aug 2015 13:51Last reply 26 Aug 2015 15:31

Ahmed

Diagnosed

Hello everyone, I was diagnosed last month when I went to hospital with a bad case of optic neuritis and dizziness My left pupil was not moving and I couldn't take 10 steps without tripping. It felt alien to me as I don't remember being admitted in hospital before. I have always been a healthy ...
  • Diagnosis
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  • Diet
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  • Blurred vision
  • Dizziness
  • Fatigue
  • Mental health
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  • Which DMT
  • Work and play
  • Family and children
  • Going out
  • Money
3

@RoseRivera1214 

1 Jun 2025 03:03Last reply 1 Jun 2025 07:24

RoseRivera1214

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app
3

@QueenTonique50 

31 May 2025 00:41Last reply 31 May 2025 17:12

QueenTonique50

I was wondering, do anyone else suffer from severe sinus problems? I’m wondering, is it any connection to me being diagnosed with relapsing and remitting?

First posted on the Shift.ms app
13

@cooksey32 

31 May 2025 02:52Last reply 31 May 2025 10:26

cooksey32

Hi all. I’m new to this app. I’m 26 years old and have been diagnosed since the age of 18. My MS nurse has said I have one of the most aggressive cases she’s ever seen, which doesn’t bother me personally, I live life as “it is what it is” what I’m wondering is does anyone have plans for future life when it gets worse? For me my plan is when I feel I can’t live a good quality of life I will happily just end my life. I hope it doesn’t get to that point but I am prepared for it. What’s everyone else’s plans? .

Middlesbrough, United Kingdom
First posted on the Shift.ms app
10
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