@Hi fellow clumsy folks! I am 30 years old and was diagnosed in October of 2020. I live in South Africa and have been on 3 different DMT's. 1st was Betaferon, second Fingolimod, currently on my 3rd(Kesimpta - Ofatumumab - in S.A we call it Bonspri), but there are signs of another flair, more activity and new lesions on my brain - waiting to see my Neurologist on the 4th of February. Can someone offer some insight to what my options are from here? If they have had a similar journey perhaps? Also, any advice regarding questions to ask my doctor would be much appreciated! on Shift.ms

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@Cherb21

28 Jan 2025 19:29 EditedLast reply 12 Feb 2025 12:50

Hi fellow clumsy folks! I am 30 years old and was diagnosed in October of 2020. I live in South Africa and have been on 3 different DMT's. 1st was Betaferon, second Fingolimod, currently on my 3rd(Kesimpta - Ofatumumab - in S.A we call it Bonspri), but there are signs of another flair, more activity and new lesions on my brain - waiting to see my Neurologist on the 4th of February. Can someone offer some insight to what my options are from here? If they have had a similar journey perhaps? Also, any advice regarding questions to ask my doctor would be much appreciated!

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@JJPac

I was dx April 2000 I think, quite a while ago now. I started on my 1st dmt in 2009, it was betaferon too. Lemtrada in 2018 and Kesimpta in 2023; I’m no longer on any dmd. I actually noticed, I had more relapses/flare-ups being on dmts than not being on any whatsoever. Maybe it was just coincidence but, I believe not all MS sufferers respond in exactly the same way to all of these powerful medicines. I’m done with dmds for now tho, good luck with your next dmt or not, best regards.

28 Jan 2025 20:31

@TomDonahue

I would research HSCT. You’re still really young and have a recent diagnosis, thus, you have a high chance to stopping the MS and possibly repairing some of the damage. There are over 60 Clinics/ hospitals around the world performing HSCT. Let’s connect and I can help with your questions.

28 Jan 2025 20:47

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