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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@kittyc 

Last reply

kittyc

Frustration with NHS

When I read that people are quickly getting treatment (I understand it might not feel quick to them) and I'm still waiting 8 months and 3 "severe" relapses later, I feel pretty isolated. Has anyone else had to push for treatment? How do you do this to get heard? I've had what I now know are symptoms...
  • Treatment
  • Symptoms
  • Diagnosis
  • Relapses
  • Work and play
  • Which DMT
29

@jumpingJacks 

EditedLast reply

jumpingJacks

NHS Ditching Tysabri infussions for everyone in UK.

So from what I have been informed. Tysabri infussion will no longer be available for MS due NHS cutting costs. Anyone on the generic version (Tyruko)which will be offered in the coming months. If so how's it going?
First posted on the Shift.ms app
28

@Kitty369 

Last reply

Kitty369

NHS Ill health retirement experiences

Wanted someone to talk to who has been through Ill Health retirement preferably with NHS Contract. I really want some help thinking this through and working out what to do, I am really struggling at work and don’t feel capable of doing it, I feel constantly guilty and like I am letting my team do...
  • Mental health
  • Symptoms
  • Work and Study
  • Work and play
  • Money
25

@MissC 

Last reply

MissC

MS & the NHS - wtf…

So. I’m newly diagnosed. My question that I can’t seem to find an answer to is this… what have you got to do to actually get on a DMD? Or I suppose, does anyone know what the neurologists have to actually do…? Since being discharged from hospital, I feel very much like - I’ve been given this diagn...
  • Diagnosis
  • Treatment
  • Which DMT
  • Newly diagnosed
  • Disclosure
  • Symptoms
  • Mental health
  • Brain fog
  • Relapsing remitting
23

@MattR73 

Last reply

MattR73

Awaiting for NHS neurologist appt.

Hi all, My names Matt i'm 44 from East Sussex. I've not felt well at all since summer 16. I started having a few dizzy spells at Christmas. In Jan i started having stomach and flank pain which i still have to this day. In Feb, March and April i had severe pain in my legs and going numb from the knee...
  • Diagnosis
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  • Healthy living
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  • Balance
  • Dizziness
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  • Pain
  • Spasticity
  • Work and play
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21

@lucycharlotte 

Last reply

lucycharlotte

MS diagnosis via the NHS?

Hi there, wondering if anyone else in the UK can share their experience… I’m on the waitlist to be seen by Neurology as I’ve had MS symptoms for over a year now. I’m 10 weeks into the waitlist and the average wait is 22 weeks. I just wondered if anyone else in the UK could share their experience of...
Derby, United Kingdom
First posted on the Shift.ms app
21

@Lomelindi12 

Last reply

Lomelindi12

I can’t donate blood as an MSer (regardless of the IRT treatment I’ve had). I would absolutely have done so, especially as the NHS is struggling with donations

First posted on the Shift.ms app
20

@Tortoise 

Last reply

Tortoise

NHS mobile MRI unit

Appt is 15th Jan (great!! I was expecting a longer wait). They're sending me to a mobile unit at the local rehab hospital and I'm wondering if that makes any difference to what I should take/wear etc. Anybody else had an MRI in an NHS mobile thing? Do you still have to wear a hospital gown? Do the...
Wolverhampton, United Kingdom
  • Symptoms
  • Spasticity
  • Diagnosis
20

@hayleyc85 

Last reply

hayleyc85

NHS experiences and waiting times

Me again! the resident drama queen/mariah carey if you will. I just wondered what people are waiting for appointments. i paid privately to see a consultant about my suggestive MS and he instantly put me in for tests via nhs which all came through quickly. These conclude with my new mris being done...
  • Diagnosis
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  • Healthy living
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  • Blurred vision
  • Mental health
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  • Pain
  • Relapses
  • Steroids
  • Work and play
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17

@Marigold_River 

Last reply

Marigold_River

NHS staff

I know we are supposed to respect NHS staff but some of them are just anger inducing. Some talk to you in a patronising way, some claim the hospital is over-run while they have been sitting and drinking cups of tea for awhile. Some staff are fantastic, some staff are great when you can actually get...
  • Disclosure
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  • Newly diagnosed
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  • Avonex
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15
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