@kittyc 

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kittyc

Frustration with NHS

When I read that people are quickly getting treatment (I understand it might not feel quick to them) and I'm still waiting 8 months and 3 "severe" relapses later, I feel pretty isolated. Has anyone else had to push for treatment? How do you do this to get heard? I've had what I now know are symptoms of MS for 20+ years, and pushed for a diagnosis due to relapses similar to a stroke for 2.5 years, and my life has had to completely change. The lack of urgency with this is both physically and emotionally harmful. Has anyone else had similar experiences?
@Irish34

Fuckin hell, what happens when you present to a hospital while you are having a relapse ? Surely they would start you on something

@kittyc

@Irish34 I need to build up trust with my local A&E again, because I just get passed around when I go and nothing gets done, even when I have been taken by ambulance or my GP has sent me, so I didn't go when I needed to last week. It might have pushed neurology. I do have contact with the MS team, who put me on steriods a couple of months ago and said my official treatment might start the following week... I eventually speak to them every relapse (they're busy), but they didn't want to put me on steriods again so soon. It's just continuously calling and emailing them to push.