NHS experiences and waiting times
Me again! the resident drama queen/mariah carey if you will.
I just wondered what people are waiting for appointments. i paid privately to see a consultant about my suggestive MS and he instantly put me in for tests via nhs which all came through quickly. These conclude with my new mris being done on Friday. I have my follow up appointment that i was told would be second week in May, and its acutally send week in June. 4 weeks seems i know like im being petty but i cannot wait anymore time!!! i rang and asked if this was the absoloute soonest i could get seen and asked about cancellations to be told 'it doesnt work like that' I think asked if i could go private again to get my results and if so what would be the soonest all my collective results would be in. Again they have just told me that i 'have to wait'
I actually feel suicidal for the first time since my episode in November and what looks like relapsing symptoms since feb (started my steroids for those today...man are they gross) i feel like im going crazy which seems to be the norm for us all but until i get this diagnosis nobody will tell me whose care i am under? I cannot see MS nurses as i dont fit the critera yet, and my gp says im under neuros care. So now iv got numb limbs, a constant headache which flits between bad migrane pain and eye pain a hole in my vision. so many mental ailments i cant even list, mostly driving and forgetting where im going or how to get there. my loved ones try and give me sympathy which i hate as im not there yet, and my hubby just doesnt let me consider myself as poorly because i havent had the final diagnosis yet.
I would love to hear where everyone else is and if i really do have to wait, everytime i hear anything about having to wait, i can feel the pins and needles rise up my arm and i litterally go blind with rage, i cannot clam down and im worried the waiting is actually making me worse!

oh lord. my writing is bad. i apologise. dead fingers when cross. :)
@hayleyc85 , there is a reason why we're called patients. And, now you know why. :wink: But, seriously, sometimes you just have to wait. But, don't give up on the MS Nurses. They do understand what we're up against and they'll help where they can. Persevere with those steroids. They should kick-start your recovery. But, it needs you to take a deep breath and acknowledge that another couple of weeks isn't a great deal in the overall scheme of things. You just need to calm down and allow the recovery to occur. And, if there is a lack of sympathy from hubby, get him to look through this, https://shift.ms/forums/topic/describing-your-ms-symptoms . PS it could be worse. I had an Urology appointment, originally in February a couple of years back. After it got rescheduled six! times, I was eventually seen in November, some 9 months later. :shock: