#msdepression - Shift.ms

@DiyozaGarfield

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Why is MS depression so bad?

MS depression is hitting me hard!

First posted on the Shift.ms app

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@FallenAngel

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Does anyone else have a hard time with depression and anxiety due to their ms? I have been having to get hugger depression pills and nothing is helping so I just get to deal with suicidal thoughts daily.

Kalispell, United States

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@AndrewNewton

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MS & depression

Is it a condition caused by the MS? Is a condition developed because of the restrictions given because of MS? How can it be combated?

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@HeidiHelps

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SAD?

Seasonal Affective Disorder, appropriately commonly known as SAD, is a main sub-type of Major Depressive Disorder (MDD) (Pinel & Barnes, 2018). SAD typically occurs during the winter months and can be caused by reduced daylight hours and changes to circadian rhythms, impacting levels of neurotransmi...

Kamloops, Canada

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@maljam2002

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Sitting in the Sun

Sitting in the sunshine helps recharge my psyche, if I can feel MS Depression beginning to creep up on me. https://team-gherkin.blogspot.com/2021/11/sitting-in-sun.html #MSDepression

Sydney, Australia

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@LisaSD

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Talking With My Family

I can separate my family into three groups. First up are my siblings and my daddy. Daddy and my older sister will ask sometimes how I am doing, but I feel it is mostly like an obligation to them. My two older brothers never ask and I never bring it up. Next up are my in-laws. They always ask and th...

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@isaacson72

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Question about depression

Good morning from the states! I have a question about MS depression. I have experienced moments of what I think is depression over the last year or so. I had postpartum depression when my son was born 15 years ago (for a very short time... maybe 2-3 days), so I think I recognize what it feels l...

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@Ripley

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Depression

Hi everyone, I'm just wondering is there anyone who suffered with depression before they got MS, I did and with MS depression on top it, just wondering how to cope ?

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@sheetal

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Depression

hi friends since couple of day i have too much depression, is it due to MS? I frustrated too much when i hear voice , by watching face of people they did something wrong, said wrong words to me. will it happen IN MS. Depression happen in MS? please let me , help me in it

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@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app

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