#diagnosed - Shift.ms

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@89scott

2 Aug 2023 17:42Last reply 16 Oct 2023 21:36

Diagnosed

How old was everyone when they got diagnosed with MS and what was the first symptom?

59

@Nmarsh

19 Dec 2022 19:04Last reply 20 Dec 2022 19:45

Diagnosed

Diagnosed Friday and don't know what's next I can't even remember anything after them words.

10

@S3ll3ry

10 Nov 2022 16:40Last reply 10 Nov 2022 17:45

Hiya, Just on my way home from neurologist. Just been diagnosed after having CIS for the last 2 years. Not sure how to feel or what to do really. Anyone out there a believer of energy work or Gabor mates work? UK based

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@Kevb

18 Nov 2021 09:06Last reply 20 Nov 2021 18:44

Diagnosed

Resently diagnosed in August 2021 Don't know what to do next, or what happens next. Any advice would be great.

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@Ireneb74

10 Nov 2021 18:34Last reply 10 Nov 2021 22:49

Diagnosed :-(

Monday I got my confirmation I have MS. Another MRI has been requested by my doctor. I had an MRI of my brain and spine in July. The new MRI will be used to confirm any progression from July to new MRI results. I saw the results of my July MRI when I was in the meeting on Monday (thankfully my f...

Edinburgh, UK

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@Carla_Luedtke

29 Sep 2019 21:34Last reply 30 Sep 2019 03:16

Diagnosed

I was diagnosed officially with MS in April. Can't walk well. Use walker and wheelchair to date. Can't do steroids have bad reactions. Been on Aubagio since June with really no change. What are odds I will at best walk with a cane?

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@Ahmed

26 Aug 2015 13:51Last reply 26 Aug 2015 15:31

Diagnosed

Hello everyone, I was diagnosed last month when I went to hospital with a bad case of optic neuritis and dizziness My left pupil was not moving and I couldn't take 10 steps without tripping. It felt alien to me as I don't remember being admitted in hospital before. I have always been a healthy ...

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@ClaireBailey

21 Jun 2025 17:30Last reply 18 Sep 2025 23:10

Hello, I’m new here I was diagnosed in may 2023! Is anyone else struggling with the heat? X

First posted on the Shift.ms app

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@Kaye153688

17 Sep 2025 11:09 Edited

When you work in the neurology department as a scheduler, and your manager shares an anonymous patient feedback review with you: (Your scheduler, Kaye, is amazing. Initially, the soonest appointment was mid December. I think that's crazy for having a STAT referral and she was able to get me in much sooner due to a cancellation. She was very empathetic and understanding to my situation, I wish more people could be like her!) I have a feeling I know which patient this was. Little do they know I am advocating for patients more and more each day. I’ve been working on an email over the weekend (staying up until 3am the night before last, hoping I would have it done in time for one of their meetings with all the practice managers at all four locations) to upper management about my suggestions on a new approach to the waitlist and how often gaps are still left open on providers schedules, even when there are 200-300 new patients just desperate to be seen. They’re not only patients with MS, of course, but I remember what it felt like, not knowing what the cause of the numbness and tingling in my lower extremities were. I was diagnosed at 25, only five years ago. We are telling patients we do not have any appointments available until March, 2026 but patients who need to cancel last minute leave gaps in the schedule and there is no accountability or structure in place when it comes to the waitlist. I filled four 40-min new patient spots just last week, so patients did not have to wait until 2026, and already this week, I’ve filled two more. I am planning to make a proposal of taking on the project of waitlist management across all four locations, because I want to ensure it will actually be done right. I work from home, the clinic is only 30 minutes away, but the primary purpose of my current role is non-clinical support that answers incoming calls from patients who are looking to schedule appointments, request medication refills, ask for results from tests, etc.I would much rather be trying to get these patients in as soon as possible, while the others handle the medication refill calls, and assist with scheduling routine follow up appointments. I never knew what I wanted to do career-wise until now. When I was first experiencing the neuropathy at 25, I still don’t know how they managed it, (I was not working in this department yet, but it’s why I choose to work in it now) but I was able to be seen ONE month later. I remember how scared I felt. I went to the PCP first after the symptoms did not go away for two weeks, and then she referred me to neurology. Looking back, if they told me I had to wait MONTHS to be seen, I honestly don’t know what I would have done. There are times I wish I could tell patients that I have MS too, especially when they talk about their neuropathy. They will say: “Can you imagine if your legs felt like that?” and all I can think to myself is, “24/7.” 😂🙈I will never stop advocating for patients. They need someone to speak up for them, especially when the world can be so unfair already. It costs nothing to be kind. 💕

First posted on the Shift.ms app

@MadMunchkin

16 Sep 2025 01:07Last reply 16 Sep 2025 07:39

Newly Diagnosed

Hi all!, My Mayo Clinic neurologist told me about this MS test that predicts accurately the likelihood of an attack or new lesions within the next 2 months. I'm excited and hopeful to hear the results. I'm hoping it will assist in my treatment plan. I was diagnosed June 3rd of this year with RRM...

First posted on the Shift.ms app

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