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Hope everyone is well, I’m new to the app, I was diagnosed RRMS in 2004 been on DMDs ever since, rebif for 20yrs recently changed to Avonex 👋👋

So just seen the neurologist and it’s confirmed as Tumification MS and rapid evolving MS (having had 3 episodes in 2 years). Reading everyone’s stories I think I’m lucky as it’s only been 7 weeks since my first scan and I have seen the neurologist and neurosurgeons. Now to look at DMD options, I’m l...

I got the info on Kesimpta and Ocrevus yesterday. Theres alot to read. I find Ocrevus info very easy user friendly. I can get dexterity dropping things so I don't know if I trust myself using an injection pen. I'm leaning to Ocrevus. I like that you can eat snacks while you have the IV drip! I've sa...

I had my annual check up with my consultant 2 hours ago at RUH Bath. Here is a brain dump of our discussion, while it's fresh in my mind, in case it helps anyone else with RRMS/SPMS who takes a T Cell based DMD: - Lymp count was 1.3 and right where they want it. - The very slow annual increase in...

Hope youre all well. Saw my Neurologist last week. I've had a lot of relapses in the last couple of years. He thinks a change of DMD. Ocrevus and also Kesimpta has been mentioned. I'm getting info about it in the post. I know one is an infusion and the other to inject it myself. Does anyone know a...

How long from diagnosis to starting treatment please (ovreverus) only choose dmd on Monday.. need to have futher tests chest xray and bloods before they will start it. Thnakyou Also what age was everyone when they were diagnosed and have you stayed at rrms, or progressed.. Thankyou

I have secondary MS for the Last. I think 10 years it has progressed worse and I’m seeing my neurologist. I have been on nine different DMD over the 27 years of having MS and I did not stay on them for long because I found that they were giving me side-effects. Because I hear there is a lot of new ...

Hi, I'm new to the app. I was diagnosed with RRMS in August 2019 but my journey began in April 2017. I have been very fortunate and have had no relapses since beginning my DMD in October 2019 with my MRIs remaining "stable" since then. I have spent the last 4 days with a severe stomach bug, not...

Just wondering if anyone has been offered Ponvory as a DMD? How has it been? I was offered it today and given a leaflet to take home with me. The side effects seem too good to be true