Just wondering if anyone has been offered Ponvory as a DMD? How has it been? I was offered it today and given a leaflet to take home with me. The side effects seem too good to be true
Been referred to addenbrooks to see the consultants there and discuss Dmd
I really don't know what to do,
So worried that it will close my world up due to avoiding catching things and how it will effect my immune system!
But then the flip side i have no idea what
My Ms will be up to
This resulted ...
Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus?
I asked ...
My leg again begin to get stiff in the cold we had snd I fell over broke some ribs snd hurt my shoulder shortly Arthur my legs became numb in patch’s I have other numbness which had not gone away finally had another mri it’s not too bad and finally on two lots of meds making me feel like a zombie an...
I’ve been recently diagnosed with RRMS. I am overweight and really would like to lose some before having ACL surgery (no date yet) but I’m really struggling.
I also have PCOS - I wondered if anyone has any experience of living with the two conditions?
I feel as though my hormones are all over the ...
Hi everyone I’ve been using Copaxone now for nearly 10 years with really good results, but I’m running out of skin to inject because of scar tissue and lose of fat around my stomach. I’ve been diagnosed as secondary progressive now so my MS nurse says I’m not eligible for Oral DMD’S has anyone else...
Hey, so I’ve been neglected for years with my MS however I’m now hopefully on route to get it sorted… o just gave birth and I’m having some side effects (yaay) anyway we’re about to start Gabapentin at 100mg night time use - has anyone used it? What’s your experience?
I’m also now reading I to DMD...
I was diagnosed with MS at the end of November & am currently awaiting my appointment with the MS nurse to discuss DMD treatment options. In the meantime I was offered a short 5 day steroid course….currently on day 4 but am now concerned by some stories I’ve read regarding dreadful withdrawal sympto...
I'm overthinking.
My first DMD was Rebif 12 years ago... it knocked me around, I stuck with it for a year and the side effects didn't ease.
Four years later I was part of the Tecfidera trial which I was pulled off half way through for the side effects.
For the last 8 years I've been going it al...
Hi I was diagnosed with RRMS Oct 96 over the years been on various DMDs told 4yrs ago now SPMS went on STATII Trial 2019, which I researched and asked Neuro to contact hospital doing Trial. Husband Diagnosed with Parkinsons feb 2020 at 54 1 year later June 2021 I was also diagnosed with RA had to ...