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@Aferna30

21 May 2025 22:17Last reply 21 May 2025 22:19

Flare or Doing Too Much?

How do you tell the difference between a flare (new lesions/concerning) or pseudorelapse?

First posted on the Shift.ms app

1

@Abz671

11 Dec 2024 09:28Last reply 17 Dec 2024 21:56

How on earth do I know if I’ve had a relapse??

Been diagnosed 3 years and this is still something I struggle with. Recently I’ve had pain and sensitivity to my skin on my neck going to my ear and down my arms in various places. I don’t even want clothes to touch it and I have had skin sensitivity before but not in this place. It seems whenever I...

First posted on the Shift.ms app

7

@Abz671

12 Jul 2024 07:16Last reply 12 Jul 2024 16:58

Relapse or pseudo relapse?

The one thing I struggle with the most is knowing what is a flare up and what is a real relapse. I started feeling a numbness in my leg over a week ago but I’ve had this before so didn’t think much of it. I then started to get numbness in my left hand up my arm and my shoulder is so sensitive to t...

First posted on the Shift.ms app

1

@Russell

14 May 2024 07:45Last reply 16 May 2024 05:01

Hospitalised with psuedo-relapse

I've been in hospital for 4 days now following two weeks of gradual escalation of symptoms. I ended up completely losing power in both legs, unable to walk a few meters with an aid, double vision and fatigue. An emergency MRI showed no new activity and it's still clinical stable which I'm really h...

London, United Kingdom

8

@AmyBR

13 Oct 2023 18:21

Gastroenteritis and Pseudo Relapse

Hi, I have RRMS- diagnosed October 2023 on Tysabri. I’ve had gastroenteritis but really struggling with the recovery of it and worried I’m not going to feel like I did prior. On anti sickness tablets from today due to nausea feeling. I’m exhausted with it and finding the recovery harder that having ...

Luton, United Kingdom

@AVFCotterill

24 Nov 2022 19:24Last reply 25 Nov 2022 11:07

Pseudo-relapse

Hi all, had a bit of a scary experience on Tuesday. Woke up in the middle of the night and couldn’t walk, fell over when I got up and couldn’t move my legs. I’ve been suffering from the flu and am under a lot of stress, an MS nurse told me it was most probably a pseudo-relapse. But this has totally ...

8

@AndreaG

22 Jul 2022 16:03

When is a relapse not a relapse?

Since I was diagnosed with MS 16 years ago, no-one has ever mentioned a pseudo relapse. I read this article from the MS Trust and now realise I experienced one earlier this year: https://mstrust.org.uk/news/views-and-comments/when-a-relapse-not-a-relapse?bblinkid=262219883&bbemailid=41416966&bbejri...

@selma15

21 Mar 2022 20:11Last reply 22 Mar 2022 02:19

ranting

Hi i’m selma, i got locked out my other account but i just wanna know if anyone else feels the same way like before i experienced ms - i never understood the whole “fighting your own body” thing but now it feels like a constant fight just to function like the average person. It’s so tough and i feel...

1

@Katherine_dT

26 Oct 2021 13:24Last reply 8 Nov 2021 14:53

Looking for an online MS nurse for consults

Can anyone suggest how I might find an online MS nurse/support person? I have pretty inactive MS (no new lesions for ages) but old symptoms are making themselves felt a lot, and I don't know if I can do anything. (I don't have any infections to trigger a pseudo-relapse.) So I'd like to draw on some...

Cape Town, South Africa

5

@Katherine_dT

6 Feb 2021 11:35Last reply 10 Feb 2021 19:22

Pseudo-relapse: Duration, and how to get over it

My neuro says I’m having a pseudo-relapse (no new lesions/inflammation on my MRI, experiencing old symptoms). It has been going on for over a month. Two questions: I keep reading that a pseudo-relapse usually resolves in 24 hours. Is it uncommon to have it go on for so long? Is it still called a ps...

Cape Town, South Africa

9

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