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Found 14 results

@Hels

Last reply

Hels

Ocrelizumab and ‘pseudo’ relapse

Evening All! I’ve developed an old symptom since my first half dose. My MS nurse says they’ve had reports of old symptoms popping up after infusions and not to worry unless it persists. They’re calling it a ‘pseudo’ relapse. Anyone else experienced this? X
  • Symptoms
  • Relapses
  • Ocrevus
  • Treatment
  • Diagnosis
4

@AVFCotterill

Last reply

AVFCotterill

Pseudo-relapse

Hi all, had a bit of a scary experience on Tuesday. Woke up in the middle of the night and couldn’t walk, fell over when I got up and couldn’t move my legs. I’ve been suffering from the flu and am under a lot of stress, an MS nurse told me it was most probably a pseudo-relapse. But this has totally ...
  • Symptoms
  • Relapses
  • Exercise
  • Healthy living
  • Balance
  • Disclosure
  • Mental health
  • Diagnosis
  • Work and play
  • Going out
8

@Katherine_dT

Last reply

Katherine_dT

Pseudo-relapse: Duration, and how to get over it

My neuro says I’m having a pseudo-relapse (no new lesions/inflammation on my MRI, experiencing old symptoms). It has been going on for over a month. Two questions: I keep reading that a pseudo-relapse usually resolves in 24 hours. Is it uncommon to have it go on for so long? Is it still called a ps...
Cape Town, South Africa
  • Symptoms
  • Relapses
  • MRI
  • Mental health
  • Diagnosis
  • Treatment
  • Newly diagnosed
9

@JessB

JessB

Relapse vs pseudo-relapse

New YouTube video out explaining the difference between a relapse and a pseudo-relapse and also the different types of ms! https://youtu.be/YElY88_ujC0 #relapse #pseudorelapse #youtube
  • Symptoms
  • Relapses
  • Treatment
  • Relapsing remitting
  • Going out

@RosieM

Last reply

RosieM

Pseudo-relapse?

Hi everyone, I wonder if anyone here has experienced a pretty bad pseudo-relapse and how do you know it's that? I had 2 very bad relapses in the space of 4 months in 2016 (the second one happened 3 weeks after starting Gilenya). I had just started to regain more mobility before Christmas and finall...
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Hot and cold
  • Pain
  • Relapses
  • Treatment
  • Gilenya
4

@AndreaG

AndreaG

When is a relapse not a relapse?

Since I was diagnosed with MS 16 years ago, no-one has ever mentioned a pseudo relapse. I read this article from the MS Trust and now realise I experienced one earlier this year: https://mstrust.org.uk/news/views-and-comments/when-a-relapse-not-a-relapse?bblinkid=262219883&bbemailid=41416966&bbejri...
  • Symptoms
  • Relapses
  • Newly diagnosed
  • Diagnosis
  • Treatment
  • Pain
  • Which DMT

@selma15

Last reply

selma15

ranting

Hi i’m selma, i got locked out my other account but i just wanna know if anyone else feels the same way like before i experienced ms - i never understood the whole “fighting your own body” thing but now it feels like a constant fight just to function like the average person. It’s so tough and i feel...
  • Relapses
  • Symptoms
  • Work and play
  • Mental health
  • Hot and cold
1

@Katherine_dT

Last reply

Katherine_dT

Looking for an online MS nurse for consults

Can anyone suggest how I might find an online MS nurse/support person? I have pretty inactive MS (no new lesions for ages) but old symptoms are making themselves felt a lot, and I don't know if I can do anything. (I don't have any infections to trigger a pseudo-relapse.) So I'd like to draw on some...
Cape Town, South Africa
  • Symptoms
  • Relapses
  • MRI
  • Diagnosis
5

@angieH

Last reply

angieH

Cognition and emotion

Hello! I am feeling like all things brain related are wrong. Folks I have been doing really well that’s why I haven’t posted much however lately feel I’m going downhill. That ‘mushy brain’ feeling is back. How does one know if it’s a relapse, a pseudo relapse, a transition to sp? To make things m...
  • Symptoms
  • Relapses
  • Brain fog
  • Work and play
  • Fatigue
  • Relationships
  • Dizziness
  • Copaxone
  • Treatment
  • Work and Study
7

@Blagaman182

Last reply

Blagaman182

What is a relapse?

I am experiencing pain and aches in legs and arms and have got the annoying skin tingles and burns I have had this on and off before. Is this likely a relapse or is it just part and parcel like pseudo relapse? I guess it’s nothing new it’s just more severe than it has been and that makes me worried ...
  • Symptoms
  • Pain
  • Relapses
3

@Tamsin

Last reply

Tamsin

Control of MS & sharing with each other

Hello everyone I’m currently on steroids after having a sensory relapse with pins and needles, numbness and pain in my legs. I really really want to have some more control over my MS rather than it having control over me. I got double vision (fourth nerve palsy) a few years ago then was diagnosed...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Blurred vision
  • Dizziness
  • Numbness
  • Pain
  • Relapses
  • Steroids
  • Treatment
  • Tecfidera
  • Work and play
  • Family and children
  • Meet ups
  • Relationships
  • Travel
  • Plegridy
2

@brickbybooks

Last reply

brickbybooks

Pseudo or real relapse?

Hi everyone, I was diagnosed with rrms February last year, at which point I had had two known relapses. Since beginning avonex I've had one more evident relapse. Christmas eve I caught a cold and since then I've had no feeling in both of my feet. Now the cold has cleared up and the feeling in my fee...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Symptoms
  • Hot and cold
  • Relapses
  • Treatment
  • Avonex
2

@emaweston

Last reply

emaweston

Work / Guilt

A bit of history. Dx 2008, at the time working as a teacher (secondary, English). Went down to 3 days a week in 2010. Had a ‘devastating’ relapse in 2013 and in 2015 finally admitted defeat and have been a supply teacher since then. Over the last few weeks, I’ve had a pseudo relapse so at the moment...
  • Diagnosis
  • Newly diagnosed
  • Secondary progressive
  • Symptoms
  • Relapses
  • Work and play
6

@thinkfree

Last reply

thinkfree

have to attend a 2nd pip tribunal

Where do I even start to explain ! I applied for pip in November 2014 , almost 23 months ago & since last December when I had my first tribunal for it , they have never provided me with the full statement of reasons to justify their refusing my claim Incidentally they awarded 4 pts in both cate...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Secondary progressive
  • Symptoms
  • Balance
  • Hot and cold
  • Pain
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Family and children
4
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