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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Sort approximately 14113 results by
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@julie1975 

21 Jul 2025 14:13Last reply 22 Jul 2025 00:53

julie1975

Legs feel lovely

Currently on a 2 week holiday from work and my legs feel like they did in 2018, before I was diagnosed. No pain, no ache and no stiffness. Not sure whether it's because I'm not standing for 8 hours a day or whether physio is helping or abit of both but my legs haven't felt like this for months. Feel...
First posted on the Shift.ms app
4

@Elisabeth1997 

21 Jul 2025 13:56Last reply 22 Jul 2025 00:51

Elisabeth1997

Diet Suggestions for RRMS

I am in need of diet suggestions for my RRMS. What works the best to prevent inflammation in the body & relapses? In need of a diet that will help manage my weight also. I've read a few things on foods that should help with inflammation. But not sure which direction I need to go bc this is new for m...
First posted on the Shift.ms app
9

@sharons 

20 Jul 2025 12:14

sharons

I'm confused

Following an episode of 6th nerve palsy I have been diagnosed with ms. This is classed as my 3rd episode in 20 years as I've had transverse Mylitis, bells palsy and now this. I have been offered medication by one neurologist but another neurologist has said that my recent mri scans show old Ms lesi...
First posted on the Shift.ms app

@kyrgyzkiwi 

20 Jul 2025 05:47Last reply 21 Jul 2025 03:26

kyrgyzkiwi

Anyone getting the MS hug?

I’ve heard folk talk about this and am not 100% sure what it is. I have a continuous tightness around my waist, its only relived by lying down. Is this the MS hug?
First posted on the Shift.ms app
11

@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
9

@Trevor 

18 Jul 2025 18:04 Edited

Trevor

Aimscharity.org is a brilliant registered charity which WILL benefit a cohort of MS suffers.

Obviously each person must choose their own treatment pathway. I AM NOT ADVISING AND WILL NOT TRY TO, I’m only informing you of the treatment that I underwent just over 9 years ago. I’d been in a variety of DMDs having had MS for about 6 years before hand. Since having HSCT, I’ve not needed a singl...
First posted on the Shift.ms app

@ktdolly 

18 Jul 2025 17:40Last reply 20 Jul 2025 00:35

ktdolly

Oral surgery question

Hi everyone. I’m new here and am looking at a probable MS diagnosis. I have some additional testing to get done, but everything is pointing in that direction. In addition to that, I am scheduled for a gum grafting procedure next week. My neurologist said it’s fine to have it done, but I’m anxious ...
First posted on the Shift.ms app
11

@TracyD 

17 Jul 2025 16:10Last reply 18 Jul 2025 12:44

TracyD

I'm not sure how 6 years went by

It's been a long time since I posted here but I got a notification about getting fitter and since that's exactly what I'm doing right now I logged in for a read. After Lemtrada in 2015/16 I've been on Ocrevus for 5 years now, diagnosed for over a decade, I'm also 10 years no new activity on my MRI's...
Reading, UK
5
Unpublished

@MayaCardwell 

17 Jul 2025 00:55

MayaCardwell

Blast Away Your Boredom: How Block Blast Takes Match-3 to a New Level

Website: https://block-blast.online/ In the ever-expanding universe of online puzzle games, finding one that truly stands out can feel like searching for a needle in a digital haystack. Yet occasionally, a gem emerges that manages to polish a familiar concept to a brilliant shine. Block Blast is pr...
New York, United States

@jgrieser 

16 Jul 2025 18:07Last reply 19 Jul 2025 07:03

jgrieser

Medications

Hi everyone, I hope you all are doing well:) My neuro prescribed me Cymbalta for the nerve pain I’ve been having in my arms. I’ve been on it for over a month, and I am not feeling any different. Have any of you tried Cymbalta? My other option is Gabapentin. Has that helped with nerve pain? TIA🫶🏼...
First posted on the Shift.ms app
8
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