Shift.ms

30 May 2025 13:33

So many questions

I have had 3 MRIs in 3 days. They found 1 lesion in my spinal cord and 4-5 in my brain. I'm so scared. I don't want this. Is 4-5 a bad thing. I want to walk my kids are young and we rodeo I'm not ready for this.

First posted on the Shift.ms app

@SohaiL89

30 May 2025 06:27

World MS Day (May 30th)

Happy World MS Day to all fellow fighters. Remember that your disability is not a weakness but just a roadbump which will allow you to propel further if you know how to utilize your “benefits”. God bless every one of you and stay strong. 💪🏽🙌🏽🤟🏽

First posted on the Shift.ms app

@carmenrivera

29 May 2025 23:44Last reply 30 May 2025 13:13

Relationships/marriage

Has anyone ended up getting/considered a breakup after getting diagnosed? Did anyone’s partner just stopped caring after seeing some type of improvement? In my case when I first got ny diagnosis I told my husband that if he wanted I would sign the divorce papers (I’m 28 he’s 40, Im the one who work...

First posted on the Shift.ms app

@chericeV

29 May 2025 20:22Last reply 29 May 2025 20:25

Looking for answers really

I feel like I’ve been misdiagnosed and the doctors are wrong about my fibromyalgia diagnosis…. These zings … zaps …. Tightness in my mouth like there is something constantly there…. Somedays I feel like if I turn into an arachnid maybe I’d feel better…. But the burn and the bugs is what I truly can’...

First posted on the Shift.ms app

@Elzbelz

29 May 2025 19:36

Any advice

Suffered with extreme pain in hand up to elbow. Attempted nerve op as we weren't sure if nerve was just trapped (all investigations were inconclusive). Now have what feels like a cheese grater in my elbow and extreme pain in hand. I've been on lots of medications and nothing seems to work :(

Rochester, United Kingdom

@Tianna

29 May 2025 12:37Last reply 29 May 2025 13:57

Remission and Relapses

I was diagnosed at 21, been 10 years now, I’ve been in remission for about 7 years now, and I’ve only ever had relapse while not on treatmen, so I am glad to say my treatment (Ocrevus) is working! What is the longest you guys have been in remission? I do occasionally have fears of relapses but ...

First posted on the Shift.ms app

@WINDUSS

29 May 2025 12:01Last reply 30 May 2025 07:21

I'm more than just MS.

Sorry for the long post but just need to rant to folk that can relate. Am I over reacting????? So a close friend has a special birthday coming up next year and mentioned a girls trip abroad. I said I'd be up for it but then everything went quiet. Then a few months ago they posted on Facebook the...

@goisgreat87

29 May 2025 04:37Last reply 30 May 2025 09:34

Trump taking away med care

Wow I hope this is not true,anyone know the facts? My nurse told me that ms care is north of about 100k a year that is crazy to me that this is one of the most expensive diseases in terms of yearly care!#keepfighting 🧡

First posted on the Shift.ms app

@izzleplop

28 May 2025 18:35Last reply 29 May 2025 13:04

Blood Tests!

Hi all, had my monthly treatment yesterday and had to get my bloods tested like I do every 6 months! I ended up not having them taken due to my blood pressure and my veins not doing what they are meant to, I also have bruises all over me too 😔 I’m a bigger lady so my veins are hard to find, any t...

First posted on the Shift.ms app

@nlong03

28 May 2025 12:33Last reply 28 May 2025 14:29

MS lesions

Just wondering if anyone had been diagnosed with MS if they do not have lesions ? Last MRI I had i had 2 small ones but the neurologist told me that they were fine and nothing to worry about and it wasnt MS related. Since then I have been getting more symptoms. I was just wondering if anyone has se...

First posted on the Shift.ms app

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