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@LAKola1213

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I see a lot of comments about exercise. When I was first diagnosed I could not walk more than 5 feet. I was in great shape prior to my 7 week hospital stay. As time went on I got stronger by doing cardio with weights (no more than 10 pounds). I have access to a treadmill and now do a walk/run on the treadmill and it's actually my "pain medication of choice!" I do skip a day every 3 or 4 weeks to let my body recover and replenish. I also really watch my diet avoiding fats and salt which isn't good for you anyway. Id happily help any of my MS Sisters & Brothers with fitness. It gets into your mind and keeps the stress down. I work out first thing in the morning after I eat a high source of protein such as an egg or cottage cheese with fruit. After my workout I eat a serving of oatmeal with chia seeds and fruit. The chia seeds have a high source of protein and fiber which keeps you regular. Gimme a shout out!

Newark, United States

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9

@Anxiousnikki46

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Who else has what feels like your nerves are jumping from the inside but is not seen on the outside ? And what is this condition called ?

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6

@alag15

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So I finally went to a neurologist and he didn’t give me options. He automatically told me he was going to give me OCREVUS infusions. I have never had any other treatment besides steroids for a flare. What do I do? I have insurance but it’s not going to cover very much or the medication and / administration of the infusion. I don’t want to be in complete debt for this disease !!!

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8

@michelelise

Anyone else feel like their MS symptoms are ruled by their hormones? I've always noticed my symptoms vary with my cycle, but now I'm in perimenopause and everything is trash, and I'm SO over it.

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@RobertHu

I was trying to find someone to talk to,to educate myself on retinol diet. To try and find some recipes or the different foods , I can prepare my dad. Because recently his kidneys have been bad and so they put him on the retinol diet? I'm not sure if this is the right place to look or not , but if anybody could help me your appointment direction , I'd appreciate it.

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@Dana1971

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I have RRMS with bowel, bladder, pelvic floor issues. Just a couple of weeks ago, I was at the ER 3 times in 2 days because I had gone a week without having a BM. They did an xray checking for a bowel obstruction. There was no obstruction but it did show major back up. They did an enema (sorry! It was very degrading) with little results. I went back that night because I was worse and looked like I was pregnant. They did a ct scan and it showed the Sam as the xray. Another enema with no results. The next day I was even worse so I went back. I was basically told that there was nothing they could do and it was considered medically necessary to admit. I was given a Linzess pill and a cup full of oily medicine and sent home. Later that night I did go, but not much. Now, it’s been 9 days. I’ve hardly eaten anything since I don’t have an appetite. I’ve drank prune juice, hot Apple juice…. Nothing works. I have been in communication with my GI doctor which is who found that I had MS after losing complete bowel control at 49. He is on Christmas break but I plan to see the NP hopefully Monday. Does anyone have any suggestions or can anyone relate?

First posted on the Shift.ms app

9

Deleted

@Tia

Anyone not on medication and doing well?

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@Mytinyspotted

Your not the burden your the super hero of your story

Nurturing your own well-being is the greatest gift you can give your loved ones. Focus on incorporating natural vitamins, limiting saturated oils, and opting for natural sweeteners like date syrup. Monitor your progress and remember: mental wellness lays the foundation for physical health, but it's ...

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@Brite79

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Can anyone give me some information on some rental assistance programs. I’m been in and out of work and I fell behind on my rent. Now I have an eviction notice. Please can someone help me.

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6

@JMon

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I'm not faking it !!!

So pain is non stop for me . Has been for years. Always out it down to my back. MS was only discovered because of a lower lumber fusion that recovery wasn't going as well as anticipated. Ive been fighting an uphill battle with back pain for over 2 years and I finally put my foot down and went bac...

, Ireland

First posted on the Shift.ms app

2

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