Looking for
something specific?

New video online! Today I talk about my story... about the things MS has taken away from me and how I adapted to being chronically ill and STILL doing what I love. Yes, its motivation wednesday 😄 Check it out 🧡 https://youtu.be/clIF5jOVu0c

I had a really bad day yesterday with fatigue and brain fog. Everything was a battle, but I still had to go to work and just get through it somehow. I got home, my husband asked how my day was and I told him how I had really struggled. He said "oh I get that too sometimes". Like...no. I love my ...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

Hello all. New to the site. Just thought I'd tell you alittle bit about myself. You have all, I'm sure, had similar stories. 2 years ago I started having extreme heart palpitations to the point that I thought I was having a heart attack and crazy fatigue. My pulse went down to 36 bpm and oxygen 87. ...

I had optic neuritis in left eye back in April of 2020, I was in between insurance coverage and couldn't get treatment so it lasted 5 long weeks. I have slight damage to that optic nerve. Well, I had two MRIs after that showing no lesions. My neurologist told me to wait to see if I developed any new...

What's the difference between never having to work again versus never being able to work again? During out #makeworkworkcampaign in London we asked members of the public What would you do today if you couldn't work tomorrow? Let us know in the comments below https://www.youtube.com/watch?v=zvsgVpm8...

Hey everyone 💚 I wanted to reach out to people who have ‘I might have MS’ on their profile. I remember how overwhelming it was to have a million questions. I want to remind you that you're not alone while you’re waiting. If you have any questions or concerns, drop them in the comments below and I'l...

Second week of return to work now, and barely been able to do anything, yet the pressure is on now to build up. This morning’s effort of staring at a computer screen and attending a Teams meeting has caused an almighty exacerbation. Worrying not going to get easier. Anyone else going through this...

Hey! This is my third week now of being severely unwell. Ive had loads of tests done, and neurologist have mentioned ms to me. I’m struggling massively with my eyesight, blurred vision and double. Walking is a no no too, it’s really hard to explain as to why I can’t walk. I’ve gone numb today in my ...

I can't keep myself still I keep twitching and jerking, I'm having trouble swallowing too . This has been gradually getting worse since yesterday. I started Ocrevus in Nov/Dec, I'm on Duloxetine 120mg and Gabapentin 300mg 3x daily. I've left a message with the MS nurse as its Sunday.

Hi MSers, Hope you are well. In the UK MS is a disability by law. Such as certain cancers and HIV, if you didn't know we are protected by the Equality Act. I have relapsing-remitting multiple sclerosis and I am not in a wheel chair. However, I have difficulties walking but you won't really notic...

I don’t know how to speak to or relate to humans.. I’m completely serious. but yeah there is literally no reason for me to try anymore. I’m just like meant to be alone and lonely. I’m zero tech savvy and actually don’t care or want to be. I want to be a bird watcher. So that’s what I’m going to do....

So I pretend everything is ok and smile. because deep down, on my right side. My sock is sliding down. 🤔

Horses EHV1 please look if you see conexing?

Well, I seemed to have hit a brick wall -sniffy nose, facial neuralgia, fell getting into bed last week and fell getting out this week (side transfer to and from wheelchair) and bloody legs refuse to respond to move. Tomorrow’s got a different name, things will improve, interesting to find this new...

I've had PPMS since 2005, I'm 35 now and still can't seem to fit in. I don't really fit in with people my age cuz I can't keep up all the time and I don't party like people in their 30s. I need to take breaks about every 20 min of walking or doing anything physical but at the same time I don't fit i...

Hi, I was diagnosed in early December 2022 with MS. Last August 2022 I had a 2 week period where I could smell an ashtray. Since it went away on its own the Dr. Thought it could have been covid but I did not have a chance to get tested. Yesterday it started again. Today I was tested for covid and...

I was diagnosed last May and still not on medication for MS but instead I have been prescribed Pregabalin which only hides the symptoms. I am still waiting to see a consultant (been a joke so far) so I’m only aware of what I have researched on the internet about MS. I didn’t know if I am currently e...