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@Markae 

EditedLast reply

Markae

Superpubic or not

Been told and offered on several occasions a catheter bag done superpubic route as my dexterity is not going to do the job the other way. But I am stuck as I definitely do not feel old enough 45 year young!
First posted on the Shift.ms app
1

@paddymac999 

EditedLast reply

paddymac999

Hi guys, i am new on this. I've been taking fampyra for two weeks now. At first I seen sme positive effects,but for the last coupleof days my mobilityis not great. Im wondering how long does it take for it to really work. I've got a months experimental course. Will I have to take the whole four week course before I find out for sure

First posted on the Shift.ms app
5

@Cosine 

Last reply

Cosine

To stick or not to stick

Ok so im having issues walking . If I shuffle slowly and take small steps Im ok but if i try to walk normally I lose balance. I've been like that for 5 days now. I noticed that i can walk faster ( almost normal pace)with a stick . Should I use it? My doc did tell me in the past its best to stay off ...
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27

@zazariche 

EditedLast reply

zazariche

Neurologist told me it’s not about memory.

Have you ever had memory problems? I’ve heard many times that sclerosis isn’t really about forgetting things. Like, sure, maybe I forgot to wash a mug a couple of times — no big deal, that happens. But just recently, I forgot I was frying eggs in a pan 💀
First posted on the Shift.ms app
16

@boat 

Last reply

boat

Not sure what to choose. Ocrevus or Mavenclad?

For me Mavenclad is better cuz you don't need to take it all the time and effect lasts for ~8 years. But I will only get in January in the best case, worst is March. I also can start Ocrevus next month but I don't like infusions at all, and its every 6 moths for 6 hours, which is horrible tbh. Side ...
First posted on the Shift.ms app
9

@Biteme71 

Last reply

Biteme71

Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

First posted on the Shift.ms app
3

@christypogue 

Last reply

christypogue

Im looking for advice? I will be 57 this month and I met with neurology nurse practitioner today. I have spinal stuff going on that could explain my numbness in my arms and the tingling but what led me to them is my frequent falling. I've fallen 3 times in 8 months. Once in the shower. Second time at a childcare center because I work with behavioral children and I fell broke my wrist and I thought I did something to my neck, bit through my lip. Then several weeks ago I just face planted in the garage and broke my nose. The mri did show lesions but I'm pretty old to be diagnosed. Im not sure I want to be diagnosed at this age? Should I even pursue it? Im so confused? Im not one to stick my head in the ground but I also don't want to sit around and get worse. I have other symptoms and I've fallen many times before here and there and just chalked it up to me being clumsy. I could use some advice?

First posted on the Shift.ms app
14

@MarcBerg828 

Last reply

MarcBerg828

Hello. So just got diagnosed with MS after a 2 week stay in the hospital at the end of April. And the last 2 weeks on both arms in my elbow area at pretty numb to the touch and my left arm hurts when I try and pick something up. Not sure if it's related or not. Have to set up a appointment with neurology after I get a referral from my PCP which I'm getting on Thursday afternoon!!!

First posted on the Shift.ms app
4

@CindyMH 

Last reply

CindyMH

Hello everyone 😊. A little about myself. I was diagnosed with MS (after experiencing a few different symptoms (🤔maybe in a period of 3 months or so 🤷🏼‍♀️). This happened November 2008 at the age of 30. After being discharged from the hospital, I went to see a neurologist who started me on daily injections. I don’t recall too much, however I remember the Dr telling me newly diagnosed patients will have a relapse in about 2 years. I was on injections (which injections 🤷🏼‍♀️) less than a year (due to insurance). About 2-3 years later, I again have insurance. I recall hearing anything you take or do to yourself can trigger your “MS”. So because of that, I refused to be back on meds/injections. My way of thinking (maybe not the healthiest) was “It’s been close to 4 years and I haven’t had a relapse or suffered from it. Fast forward ➡️, almost 16 years later I have never experienced anything to do with MS since the time I was diagnosed. I’ve doubted (and still do) of my diagnostic was correct. A few years ago I had some tests done on me and according to Dr- I still show cloudy patches bla bla bla. I’m very thankful and blessed with myself but I’ve also wished and prayed MS didn’t exist. I wish everyone the best, NEVER lose hope or faith and always be thankful you don’t have it worse 🥰.

First posted on the Shift.ms app
6

@Hilsabeans 

Hilsabeans

Clothing! I need advice on clothes that will not bother me; specifically pants/shorts.

I have lots of nerve sensitivity on my right leg - hip down to the foot. Certain fabrics feel like sandpaper. When the fabric feels good but continually rubs against my skin, it feels like sandpaper. And when I wear compression shorts, my tight thigh muscles are on fire.
First posted on the Shift.ms app
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