#not - Shift.ms

@JeanetteMS

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I have severe muscle spasms in both legs. Baclofen does not work, any strength, any dose frequency. My neuro is suggesting a Baclofen pump which is surgically implanted in the back. Has anyone out there tried this? Looking for ANY feedback. Thanks!

Newport Beach, United States

First posted on the Shift.ms app

1

@HotMiSS

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18 month wait for appointment is just too long! When my MRI scan showed that B cell therapy is not helping my MS, they recommended that Tysabri or Stem Cell therapy would be better. I was excited, after saying for years that Ocrevus, then Kesimpta wasn’t helping & my walking was getting worse. Then they gave me an appointment in 18 months from now to discuss this! I am so angry at the NHS just now! Their waiting list culture and excuses is just not acceptable any more!

First posted on the Shift.ms app

7

@thecoon123

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Lesions on brain gone nothing wrong with brain

Boca Raton, United States

First posted on the Shift.ms app

1

@brittnic714

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High but not high.

I have been feeling high all day even tho I’m not. I want this feeling to go away. I don’t mind being high but this is a diff feeling

First posted on the Shift.ms app

5

@roroat2025

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Has anyone stopped eating sugar over the past 6 months to a year, and noticed having less symptoms?

First posted on the Shift.ms app

4

@blueyeguy

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I’ve mentioned this to my neurologist a few times in recent years. My jaws are very difficult to open anymore. Like the ‘hinge’ is old and rusty. Eating is a chore and brushing even harder. I drink a lot of Ensure or Boost as a result. Anyone with similar symptoms?

1

@KendraO

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MS not so friendly hug

I'm currently healing through an ms hug episode. How long does this thing last for bc I've had it for 2wks already and it's consuming my days. Not to mention these muscle relaxer are not even helping the pain smh

First posted on the Shift.ms app

4

@jpaige1975

Hi Everyone 👋🏾 if anyone has experienced slight fevers and fell down always remember "lift assist" when calling 911. They then know to send the correct paramedics that it's not a life/death situation after answering their questions regarding bleeding, being unconscious, etc.. over the last 7-8 years this has happened to me and a high temperature is only 99-100 so not extremely high but it still took a toll on me. That's why I now have 2 sets of canes and walkers. And definitely do not have a friend, family member, etc to try to catch you while falling because dead weight is almost impossible to prevent and they can hurt themselves while trying to help

Lincoln, United States

First posted on the Shift.ms app

@Jamiecarr

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I am not let ms ruin my life without q fight I'm vitamin and the foot drop machine works too

First posted on the Shift.ms app

7

Unpublished

@Patriciar1014

It’s not about me

290 / 500 This isn’t just about me. It never has been. ⸻ I watched my Father live with MS. I watched what it took from him… slowly… quietly… piece by piece. The things people don’t think about. The things people take for granted every single day. I saw what strength really looked like. Not lo...

First posted on the Shift.ms app

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