#not - Shift.ms

@SugaBug1971

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These flare ups are the worse I notice when I turn my heat up I get one easily

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3

@delki

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I am not getting any thoughts about my situation right now. I cannot comprehend on what’s happening. It’s just scary and frustrating. I am so lost and I feel like no one understands me. I just had another episode of ON nearly after a year. I am just scared. I am an international student in WA and it’s so expensive. The tests and everything. I cannot keep going. I am just so so so lost.

First posted on the Shift.ms app

6

@Jodikan

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I’m losing my health insurance next month so I applied for medical but it looks like medical dos not cover kesimpta. Anyone have this happen?? I called the drug company and they said they will only help if someone has no insurance at all 😩 having medical makes me ineligible for medication assistance :(

First posted on the Shift.ms app

24

@Roman89

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Hi my name is Ramon I’m new here and I was recently diagnosed with MS and I’m still trying to learn more about it right now I’m doing infusions every 28 days and I still haven’t noticed any difference of feeling any better I’m going on my 4th infusion and I’m still feeling numbness in my side legs and feet along with a really bad pain like I’m walking on fire and pins at the same time has anyone else experienced this

Gardiner, United States

First posted on the Shift.ms app

10

@FredT77

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Shortness of breath... has anyone on here have had this come out of nowhere? It happened to me lastnight went to the hospital they did chest x-rays and CT scan with dye bloodwork.. and nothing showed at first they believed I may have either the flu or pneumonia but nothing... can this be from the MS?

UPDATE: Just seen my primary doctor she says that I have an enlarged heart and the start of pneumonia... So gonna get started on antibiotics for the pneumonia and now have to call to set up to see a cardiologist for my heart..

First posted on the Shift.ms app

18

@jlucret71

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How long did it take to get started on Kesimpta once your doctor put in the order? Been a week and insurance needs a prior authorization so called the doctors office to make sure they send it in but have not heard back. Does it take some time to process and then waiting for a nurse to call me to schedule the first dose so been waiting to get started already to see if it helps especially since been going through rough symptoms and therapy!

First posted on the Shift.ms app

3

@jimlyo

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Anyone have sharp pain in their thigh . Kind of burning or like needle in my thigh ? Not sure if it’s an MS thing or neuropathy ?

First posted on the Shift.ms app

10

Unpublished

@miamakoval

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Hi there! I'm Melissa, one of the Welcomers here on Shift.ms. I get in touch with our new members to welcome you to the community and answer any questions you may have. I found Shift.ms not long af...

First posted on the Shift.ms app

1

@St1gzy

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MS Is a Dog Fight — And I’m Not Done

MS tried to slow me down… and for a while, it landed some heavy blows. Because MS is a dog fight — messy, unpredictable, and some days you feel like you’re swinging blind. And honestly? It feels like I sat down during lockdown… and never fully got back up. Life hit hard. Stress, kids, fatigue, work...

First posted on the Shift.ms app

6

@Ambrose

Looking back and trying to spot early signs About 10 / 15 years ago I had quite a few unexplained cases of uncontrollable shaking, I went to the dr and he called it rigers but otherwise was not very helpful. I didn't think much of it at the time as I was working hard in a cold workshop. But looking back now could it have been an early sign. Not that it matters now, I am where I am. Just interested if anyone else has a similar story

First posted on the Shift.ms app

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