#not - Shift.ms

@ToriB3

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I’m Tori :) My head still hurts from all the information I’ve received in the last few days. I went into the MD for a weeklong bout of vertigo(which I’ve never had before) and nausea. She did an MRI as a precautionary scan to make sure it wasn’t a stroke and that is when they found the lesions and such. He is 80% certain MS is what I have, but he has to do blood work to rule out MOG and NMOSD before starting treatment. Why can’t I just KNOW! He said I have textbook MS lesions but there is a larger lesion than typical for MS so he said that is what he wants to check out! I’m very grateful they got me in so quickly but that’s big news to sit with maybe or maybe not :(

First posted on the Shift.ms app

7

@yorelversusms

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feeling good trying not to overdo it

everytime i have a good day i try and use every spoon possible because i don’t know the next time ill feel good. but when i overdo it im sore and in bed for the next 3 days. need help pacing myself

First posted on the Shift.ms app

2

@corr89

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Hi guys been to the dentist this week and I have peridontal disease and have to get 2 teeth out due to an infection,I have researched it and usually people with ms is twice as likely to get it?and from what I've looked up I seem to gather from it that it can effect your ms symptoms if the infection is not removed...

First posted on the Shift.ms app

15

@ShawtyL54

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Hi everyone, I hope you all doing okay & staying strong. I have alot going on & I feel like crap. I been stressing but Lord knows I try not to because it's not good for my health. My oldest son was in a bad car wreck on Ma 16, 2026 & it took a toll on me when I went to the hospital & seen him with that breathing tube in his mouth. Hearing the doctor saying he can't breath on his own devastated me. God heard my prayers & gave my son another chance. He showed him grace & mercy...my son had to have surgery/ in his hip 2 plates & 12 screws. He's going through Rehab Therapy now. I stayed at the hospital with him for bout 14 days & never left his side. The hospital then transported him to a inpatient Rehab Therapy Facility I stayed that day & went hope to rest. I having been feeling the best. I need to go see my Neurologist but my car a/c went out & I can't stand to be in the heat very long. It takes 1hr. 10 min. to my Neurologist. It's sad but I don't have anyone to take me. My oldest son towed out his car & my baby son drive trucks over the road/ he drive his car to Atlanta truck spot & leave it there while he work. I'm concerned & honestly worried about my health for 1 my vision is blurry going in & out/ the pain in my right eye is excruciating it was like that before I think it's optic neuritis. I think I have another UTI, and my memory done got worser, and my whole body especially my legs are aching so bad. It sucks having MS & you don't have a support system or anyone to help me when I'm down & out. I just pray God hears my prayers...Still I'm there for my mom with dementia, my son because he still needs my help...but I look around & nobody has me. One of my sister's have cancer & still I go by & check on her & call her but hopefully she will be fine she done with chemo, had surgery, and next step radiation. I tell God I see why you allowed me to go through the things I went through in life...even though I'm going through I'm still fighting & staying strong. If, nobody else don't got me I got me & I know God got me. He didn't bring me this far to leave me. I'm just going to stand still and wait on God like always...he might not come when I want but he's a on time God. He amazes me everytime!🙏🏿❤️🙌🏾

First posted on the Shift.ms app

11

@khoracebrooks

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Not feeling enough

Over the past few weeks I been battling depression I’m usually positive about having ms and moving forward but I been in a 5 year relationship and I found out about multiple females since last year in September there’s nothing worse then making someone whose already sick and trying feel lower than t...

First posted on the Shift.ms app

1

Deleted

@port

EditedLast reply

I am new to this forum and welcome any advice from people about how to help family understand. Difficult here with my adult child and feeling misunderstood and not able to help him through suffering but also feel like he may think I’m faking or drama queen. I am also concerned about how He is having to live with Ms too. It’s really hard. I’m usually a good communicator but we’re tangled up. I welcome any ideas people might share. Thank you.

First posted on the Shift.ms app

10

@kala21

EditedLast reply

I’m experiencing neuropathic nerve pain in my legs and feet 😔 Its so mentally draining I’m finding it hard to cope with because I got to stay active to keep my mind sane and because I can’t do that right now I’m not coping at all. I’m having bad thoughts and I don’t normally get this low or depressed. How do you all manage this?

Aberdare, United Kingdom

First posted on the Shift.ms app

9

@ninaseen

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Dosage of training is not easy to figure out.

I'm not sure if I'm the only one doing this but I hike a mountain every weekend, go to the gym and wipe myself out there, I train, cycle, move as much as I can - just because of the thought of who knows how much longer I'd be able to do all of that. Is it smart? Maybe not cause I sometimes have to ...

First posted on the Shift.ms app

15

@Bibi0420

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I have a youtube channel about books and just thinking about to extend to show my daily life with MS (bad and good days) but I’m a little bit scared, how to start, it is ok or not!

First posted on the Shift.ms app

5

@CamilleMinnie

EditedLast reply

I got myself a brand new spin bike. (Not a peloton!)

I got myself a brand new spin bike to start my at home fitness journey It is from a Canadian company called Ascend and it is their S2 Magnetic Spin Bike. Right now I'm riding about 10 minutes a day.

1

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