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Started Kesimpta yesterday (long winded and not upbeat)

I don't really have anyone to talk to about this but I started Kesimpta yesterday and it was my third day of uni (three hours from home) and my parents came to spend the day and drop off some things but the moment I got back to my accomodation it really hit me and it was like the worst flu I've neve...

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6

@LEWISHAVERLY

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To everyone living with MS, I want you to remember this today: you are so much stronger than the days that make you feel weak. ❤️Some days, simply getting out of bed is a victory. Some days, your body may not cooperate, your energy may disappear, or symptoms may make you wonder how you will keep going. And that is okay. You don't have to be strong every second. You don't have to pretend that everything is fine.Give yourself permission to rest. Give yourself permission to have difficult days. But when tomorrow comes, remind yourself that your diagnosis does not define the beautiful person you are.MS may have changed some parts of your journey, but it does not get to decide the value of your life, the dreams in your heart, or the love you deserve.Take life one day at a time. Celebrate the small victories. Be gentle with yourself. Keep hope alive, even when the road feels uncertain.And on the days when you feel like giving up, remember: you have already survived every difficult day that brought you here. That means there is still strength within you, even when you cannot feel it.To every MS warrior reading this—keep going, keep believing, keep taking care of yourself, and never forget that your story is still being written. 🌷💙You are not your MS. You are a warrior, a survivor, and a person worthy of hope, love, and brighter days. 🙏❤️

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@binkii

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Does anyone else start losing their voice when they're stressed out or not feeling good?

I've noticed that whenever I feel stressed, I start losing my voice. It starts breaking and talking starts to take so much energy, I have to really push the words out. Does anyone else experience this?

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69

@LEWISHAVERLY

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💙 A Word of Encouragement for My MS Family 💙Today, remind yourself that you are stronger than the days that try to convince you otherwise. Living with MS can bring uncertainty, exhaustion, pain, and moments when you simply wonder, “How much longer can I do this?”But look at you—you’re still here. Still trying. Still pushing forward. And that matters. 🌷Don’t feel guilty for resting. Don’t compare your journey to someone else’s. Some days you may accomplish a lot, and other days getting through the day may be your biggest achievement. Both are victories.Take today one step, one breath, and one moment at a time. Be patient with yourself and celebrate every little bit of progress.You are not your diagnosis. You are still you—with dreams, strength, purpose, and so much life ahead. Keep going. Better days are possible. ❤️💪

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3

@LEWISHAVERLY

Living with MS can be challenging, but small daily habits can make a real difference. 💙• Listen to your body. If you're exhausted, rest. Don't feel guilty for slowing down.• Take your medications as prescribed and keep your appointments, even when you're feeling well.• Stay active within your limits. Gentle stretching, walking, swimming, or exercises recommended by your healthcare team can help maintain strength and mobility.• Stay hydrated and eat regularly. A balanced diet and enough fluids can support your overall health.• Manage heat and stress. If either makes your symptoms worse, plan ahead—use cooling methods, take breaks, and avoid overexertion.• Protect your sleep. Keep a regular sleep routine and address problems that repeatedly interfere with rest.• Track your symptoms. Write down new or worsening symptoms, how long they last, possible triggers, and any medication changes. This can make conversations with your healthcare team much easier.• Ask for help when you need it. You don't have to prove your strength by doing everything alone.• Don't ignore significant changes. New or worsening neurological symptoms should be discussed with your MS team, especially if they're unusual for you or don't settle.Most importantly, don't compare your MS journey with someone else's. What works for one person may not work for another. Take it one day at a time, work with your healthcare team, and give yourself grace. 💙

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@Angelwings79

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It's ok, not to be OK

So, I've picked up the pocket book of the same name. By Claire Chamberlain. Let's skip the bit where it was given to me in 2011 😳 😔 😆. As I venture to read a page a day. Along side my usual I know I'm crazy singing antics while in doors.😂 I do firmly believe that we are not alright! But at times...

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2

@LEWISHAVERLY

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