#not - Shift.ms

@lulagm2001

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I was diagnosed with MS 6 months ago. Because the neurologists said it was an aggressive type they stared me on B-cell therapy 2 months later. I know that because I’m in the middle of treatment it’s very unlikely that I’m having a relapse. It’s so hard to know what is happening with my body because it’s all so new. I feel like there is something definetly wrong with my body but it feels mole like aches that the fist episode which was mainly numbing of the legs. It’s so hard to know when to seek medical attention. I feel like my symptoms seem so random now but I feel like something is not right. How do you all decide when you just let it run it course or when to go to the hospital

First posted on the Shift.ms app

1

@adeacon

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I had a great day today. I finished painting my pilot, wood, and bluebird not real happy with the bluebird, but you gotta start somewhere else five

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2

@Tia

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Anyone not on DMT ? What are you using?

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23

@memories25

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I'm loosing my balance often now. My vision is not getting any better. I take my drops. I walk to my mail box everyday the distance is about two car length. I'm just looking for comfort

First posted on the Shift.ms app

2

@BoujieMsBlue69

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Spent the past few days getting ready to have our apartment fogged and the guy doesn't show up until after 4pm. Nope nope. Rescheduled for next week. We are having rain showers of and on and I'm in no mood to stay up all night and airing out the place into the evening. They were supposed to be here at 9am. Fast food for dinner because everything else is boxed up. Just going to watch the Olympics until I'm ready to go to bed for the night. Not the worst day but definitely not happy.

First posted on the Shift.ms app

3

@MarianW

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Not seeing positive effects from Ocrevus. Had 2 treatments. Any words of wisdom?

First posted on the Shift.ms app

7

@nexas

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Jef, had MS for 40 + yrs. I was a social worker for 18 yrs. No I'm worthless. I have no wo wife no change ldren. Family but not liked by family members due to causing demize of f entire family as a result of me I think

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12

@jamieerogers

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I was diagnosed with MS in June 2025. Has anyone else found they catch everything that goes around? I work from home and honestly rarely leave as my MS is not controlled. But I literally am catching everything. Last month it was walking pneumonia and now bronchitis. I live in Iowa but we have had a mild winter. I am guessing my family is being the germs into our house. Has anyone else experienced this and if so how do you manage it? I eat very clean and already take a bunch of vitamins and drink a gallon of water daily. Would an air purifier help do you think?

First posted on the Shift.ms app

3

@Fuzzibunni

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Short waves of pins and needles... ms or not

For the last month or two I have woken up most days with pins and needles in my left leg I feel it just when I start moving my leg and goes in seconds. The last week I have been getting random waves of pins and needles in left leg when I am walking... by waves I mean it comes and goes suddenly lasti...

First posted on the Shift.ms app

2

@MSbean

Edited

Learning it’s ok to not be ok (and getting help!)

I was just diagnosed in August after a year of unexplained symptoms and many diff types of dr and having to research my own symptoms just to advocate and demand more labs and referrals for next steps after normal labs kept getting doors shut in my face. After a long year of starting to think I wa...

First posted on the Shift.ms app

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