#not - Shift.ms

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Not sure it’s my Ms or my learning disability needs 🧐

Feels like I’m a horrible person as I hate ppl who are annoying!!! But I get along with people who are nice to me 😁. Them annoying people are part of the family and feel like I can’t talk to them anymore!!! Hate feeling like this as it makes me ☹️. I haven’t got friends my age anymore as they all m...

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13

@ruari

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MRI - no noticeable changes

I’ve had MS officially for 20 months now and started Kesimpta 16 months ago. I got results from my second MRI since starting treatment and pleased to say they noticed no significant changes. I’m very happy about this and proud of myself because although the treatment is a big factor, I believe my he...

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4

@Tasia004

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This group honestly makes me feel like I'm not crazy and I'm not alone or an OutKast.

MS has me feeling so very isolated and limited body wise. I'm tired of this !! I want me back I want my body back. I'm so angry !! I have children this is not fair

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5

@cazz174

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Really struggling at the moment, had a bad fall over 2 weeks ago, I fell on my right side nothing broken but I have a huge haematoma which I'm told could take months to heal. I have footdrop in my right foot and my ankle is now puffy. Anyone else affected like this?

, United Kingdom

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1

@Glamluvs5H8MS

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True story really. I am going to stay with my oldest son, here home my other son is overwhelmed, he doesn’t feel comfortable being too far from me🥹 his other siblings have minimized what he seeing maximally! We talk and I do understand his feelings, they are valid! So I’m me meeting my 2 granddaughters who are both under 4 so I am excited yet I have zero income😫 my flight and thing were gifted to me. I’m am grateful for that. I wanted to get to meet my granddaughters before anything else happens. I have hired counsel to assist me in obtaining Disability, I apply a few times and was denied. I can’t even afford my medication. Not looking for sympathy, I guess, just wanted to be more clear, I ABSOLUTELY hate MS and what it’s done to my confidence, yeah I don’t trust myself,& I before this all I was actually looking forward to turning 50! Yeah made it to 50 but I don’t like how I feel and how unsure I am now about the things I was MOST confident about doing, not so much these days and it makes me ANGRY cuz I didn’t plan this nor have the resources to live with this confidently. Praying for a steady body to keep doing what it HAS been doing for 49 years!! Health care is NOT caring these days and I can only say, timing has been my lack for some time now. I digress have a awesome MS’n day everyone. 💜🫶🏾🤟🏾💪🏾🤞🏾✌🏾

Fort Worth, United States

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9

@BiggKenn

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So? How are you feeling mentally?How’s your energy? If it’s not where you would like ,how can we get it there ? 🙏🏾

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5

@ToriB3

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I’m Tori :) My head still hurts from all the information I’ve received in the last few days. I went into the MD for a weeklong bout of vertigo(which I’ve never had before) and nausea. She did an MRI as a precautionary scan to make sure it wasn’t a stroke and that is when they found the lesions and such. He is 80% certain MS is what I have, but he has to do blood work to rule out MOG and NMOSD before starting treatment. Why can’t I just KNOW! He said I have textbook MS lesions but there is a larger lesion than typical for MS so he said that is what he wants to check out! I’m very grateful they got me in so quickly but that’s big news to sit with maybe or maybe not :(

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11

@JmeKnight

Not knowing where else to start...

...I'll go with suddenly feeling as if I'd been shot in my right knee. I was 19, traveling with my husband in the lower SW United States, maybe New Mexico. The pain came out of nowhere. A simple step, and the expression on my face told my husband that something was terribly wrong. He ran to me an...

First posted on the Shift.ms app

@Randyadams

I guess people have been complaining. Im sorry if offended anyone that was not my intention. I need a ms buddy . Lost my wife may 20th of 2024. I again apologize. I guess i will watch what I say

Diamond Bar, United States

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@Angelwings79

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Not today MS

I was gonna wash my hair - but then I got tired 🎶 I was going clear out my room today - but then I got tired 🎤 I was gonna have a picnic in the park - but then I got tired, then I got tired, because I got tired 🎤 dada dahh dah dahh dah Sunday morning antics when overwhelmed, hot and fatigue is...

First posted on the Shift.ms app

7

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