#limbo land - Shift.ms

6 Feb 2024 06:37 EditedLast reply 6 Feb 2024 14:13

Limbo land

Hi all. I thought I would post. I’ve been stuck in limbo land since a flurry of neuro symptoms starting most noteable in sept 2022. My symptoms started to improve by December 2022. My mri in March 2023 showed multiple small lesions to the periventricular and subcortical areas. All inactive at the ti...

Calgary, Canada

2

@chatt99

6 Feb 2024 06:37

Limbo land

Hi all. I thought I would post. I’ve been stuck in limbo land since a flurry of neuro symptoms starting most noteable in sept 2022. My symptoms started to improve by December 2022. My mri in March 2023 showed multiple small lesions to the periventricular and subcortical areas. All inactive at the ti...

Calgary, Canada

@R-F-J

25 Jul 2023 16:23 EditedLast reply 26 Jul 2023 17:41

In limbo land

The last few weeks have been hard as I face severance at work on medical grounds, plenty to worry about, so a few (well maybe more than a few) words to explain it all..... At present I am in limbo land, waiting for dates and final decisions regarding my future. Ill health retirement or severance o...

#FightingMS - My journey

I have Primary Progressive Multiple Sclerosis (PPMS) and this is my journey

fightingms.uk

Bristol, United Kingdom

6

@bryandnorman

4 Mar 2023 00:17Last reply 21 Jul 2023 17:16

Limbo land

Just need to VENT! 1 year ago I started to feel really run down. Test after test was normal, except for high antibodies of Epstein Barr (I had mono real bad 25 years ago), and my doc said it was likely a reactivation. But, the symptoms never stopped. Exhaustion alone evolved into pain everywhere...

Rio Rancho, United States

6

@bryandnorman

3 Apr 2023 01:50Last reply 3 Apr 2023 11:45

Limbo land symptoms

Curious if anyone gets really painful calves especially high up in the back of the knee. It’s like achey, stiff, and makes it hard to walk normally. I’m also really curious if anyone experiences like an isolation of symptoms like one week or 3 fatigue is the worst and then maybe the next week or two...

2

@bryandnorman

3 Apr 2023 01:50

Limbo land symptoms

Curious if anyone gets really painful calves especially high up in the back of the knee. It’s like achey, stiff, and makes it hard to walk normally. I’m also really curious if anyone experiences like an isolation of symptoms like one week or 3 fatigue is the worst and then maybe the next week or two...

@Eileenp

18 Jun 2021 02:57Last reply 4 Mar 2023 00:10

Limbo Land

I am no closer to a diagnosis then I was back in December after my MRI. I however was diagnosed with Pelvic floor dysfunction which my dr said it is neurological. Since my last visit with my neurologist I've had new and worsening symptoms. Such as burning tingling and numbness in my leg, arm face, b...

3

@Elliepapillon

15 Feb 2023 10:58 EditedLast reply 22 Feb 2023 16:56

Limbo land rant incoming... Please help!?

Hi there, *update in comments* .... This is a bit of a long rambly first post so thankyou for taking time to read it 🙃 I'm in need any advice relating to what to ask/say in my first neurology appointment today. I am scared/relieved to have found this network as I go through the process of findin...

10

@mutley64

23 Oct 2021 22:55 EditedLast reply 25 Oct 2021 07:07

Limbo land and diagnosis

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

7

@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

10

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