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Just need to VENT! 1 year ago I started to feel really run down. Test after test was normal, except for high antibodies of Epstein Barr (I had mono real bad 25 years ago), and my doc said it was likely a reactivation. But, the symptoms never stopped. Exhaustion alone evolved into pain everywhere...

I am no closer to a diagnosis then I was back in December after my MRI. I however was diagnosed with Pelvic floor dysfunction which my dr said it is neurological. Since my last visit with my neurologist I've had new and worsening symptoms. Such as burning tingling and numbness in my leg, arm face, b...

Hi there, *update in comments* .... This is a bit of a long rambly first post so thankyou for taking time to read it 🙃 I'm in need any advice relating to what to ask/say in my first neurology appointment today. I am scared/relieved to have found this network as I go through the process of findin...

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

Sat writing this while sat on my bed on the acute medical unit at the hospital. I had 2 seizures on Sunday night which they dont think is related to the MS. I'm waiting for the results of an MRI scan done yesterday which shows changes, but I'd like to speak to my neurologist but I'm not sure if he's...

Hi I'm new to the forum but have been following for a while. Just wondered how any of you received your lp results and how long after? My brain mri showed demylination and the report states Ms however my neurologist disagrees with my report. On examination they found mild left limb weakness and when...

Hello all - long time lingerer but first time poster! I’ve just been ‘officially’ diagnosed with MS but was CIS for nearly two years so Dr wants me on some dmds as my last MRI had A couple more lesions. I have been offered Aubagio and Tecfidera (as well as some injectables - ummm no thanks!) and m...

Hi at the moment I am in limbo, I am 37 and started with pain in my hips which went on for a very long time on and off but became worse I was constantly tired and had numb feet and toes so I went to gp who referred me to the neuro I had a spinal mri which was clear in jan, since then my pain has bec...

Hi guys My name is Maura up until April I was very fit active 37yr old working long hours in a very physical job.In April I started getting abnormal sensations in my right foot Foot mainly felt numb and heavy by end of May both feet were like that all the time.I presented to A&e twice but as I c...

Afternoon to you there, I'm looking for advice from you lovely people as I am finally going to see a neurologist in a few weeks and need to know how best to prepare myself. I have all sorts of symptoms for last 15 years. It just lately they're all teaming up together and affecting my life so Dr says...

I was diagnosed with CIS in November, and last Wednesday my feet went numb and I became incredibly fatigued again. I am being sceduled for another MRI but I already feel like I know what the answer is going to be. I had no idea what MS was until about 3-4 months ago and it’s scary to think that now ...

Hey guys lovely to meet you all . I am just wondering if you can help me. I’ve had brain and cervical spine mri I have received the letter today. It says there are 3 areas of periventricular white matters changes on the right side of my brain and a small area on the cervical spine. I’ve got...

Hi, I got a letter from the neurologist today that my repeat MRI brain and cervico-thoracic spine with contrast is unchanged compared to the scans in Dec 2015. I will have repeat blood tests and she will see me in Jan. So the initial diagnosis of CIS is correct? But the tingling in my limbs is al...

hi, I had what has now been confirmed as a CIS in May last year, my MRI shows multiple t2 hyperintensites and I have headaches, tingling and numbness on my right side, I also have bladder issues, fatigue and insomnia. The neurologist sent me to a psych because he thinks it's functional neurological ...

Hi Guys, in Limbo land at the moment waiting for MRI scan on Aug 4th. Started with pins and needles in both hands and feet a couple of years ago, various blood test, diagnosed with coeliacs last October, this year pins and needles came back, last 2 months has progressed worse. :-(

I’ve been referred to see a neurologist and my appointment is the end of August. It seems a long time away. I have a two year progression of various symptoms: Right sided numbness and tingling One loss of use of right hand-quickly recovered Spinal pain and inflammation Unexplained severe herniati...

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

Don’t know where to start. Still waiting to discuss any treatment with the neurologist so very much in limbo land. No support at all from my wife although she thinks she’s being considerate and caring, but she isn’t. My 16yo daughter just worries about her own issues and my director said he doesn’t ...