Shift.ms

@Jimmy369VT

16 Jul 2025 15:55

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

First posted on the Shift.ms app

@jumpingJacks

1 Jul 2025 21:36 EditedLast reply 16 Jul 2025 16:59

28 Days Later, 28 Years Later: The MS Edition

They didn’t catch a virus. They caught MS. It started with a tingle. Then came the mysterious fatigue no one took seriously. By 28 days in, society hadn’t collapsed but a concerning number of people were falling over for no reason, losing feeling in random limbs, and quietly Googling “why does my e...

First posted on the Shift.ms app

@elfypedia

14 Jun 2025 10:33Last reply 16 Jun 2025 18:32

Its my birthday!!

First birthday since diagnosis - I'm off out with some friends for a lunch and some drinks and I'm HOPING it doesn't wreck me too hard haha! All limbs crossed that I can manage the whole time with as little pain as possible😂 Its also storming up a treat in Scotland so I'm probably going to get ver...

First posted on the Shift.ms app

@Benk

2 Jun 2025 17:47Last reply 2 Jun 2025 18:34

New to this

Hi I thought I would introduce myself Firstly, thank you for letting me in to your community I have not yet been diagnosed but I have been referred to a MS specialist team by my neurologist due to having legions in both my spinal cord and brain, as well as fatigue, PEM,memory issues, spasticity in...

First posted on the Shift.ms app

@Smith2512

26 May 2025 17:57Last reply 27 May 2025 01:09

Burning legs and feet

Does anyone use cold compression socks or cooling blankets for burning sensations in lower limbs? Wanting to know what’s best. I know lots of people take Gabapentin but I am really struggling to get a doctors appointment and the pain is keeping me up at night!

First posted on the Shift.ms app

@cobou

27 Apr 2025 19:44Last reply 28 Apr 2025 13:40

I'm frustrated

I'm losing motivation to keep going on. life is so dull and everyday is the same routine. it seems like I will never be able to live again. everyone around me have the energy and joy to travel, work, and enjoy going to outings. I'm here unable to be happy, laying in bed in the dark because everythin...

First posted on the Shift.ms app

@Lifesucks

23 Apr 2025 13:10 EditedLast reply 23 Apr 2025 18:36

Anyone else have this symptom? Waking up with numb tingling limbs?

This has to be related to my Ms. Every single day I’m waking up with numb tingling nerve pathways or limbs. For instance my hands are numb and my arms my whole nerve pathway and then I shake it off and it goes away. And same for my feet I have fuckinf tingling feet every single time I wake up. I wak...

First posted on the Shift.ms app

@Lifesucks

18 Apr 2025 15:16 EditedLast reply 19 Apr 2025 03:56

Still in the first stage of grief

I seriously am doubting having Ms even though I have lessons and a diagnosis and will be on DMT soon. I genuinely am keep excusing my very obviously Ms symptoms. I upped my Zoloft dose and my limbs went numb in seconds during night and my whole body tingled for thirty minutes, 7 months later I quit ...

First posted on the Shift.ms app

@Lifesucks

17 Apr 2025 23:42Last reply 18 Apr 2025 00:20

In deep denial about having Ms I genuinely don’t believe I have it

I’m 18, I had symptoms since 11 but had my first MAJOR relapse at 17. I had tingling that traveled through my body for 30 minutes and my limbs got numb writhin second of being bent. I have lesions in my brain and my neuro said I have Ms. But I genuinely don’t think I do at times. I still search up...

First posted on the Shift.ms app

@Lifesucks

17 Apr 2025 17:45Last reply 17 Apr 2025 18:44

Anyone have Ms for years without disability?

I’m 18 and my symptoms are pretty bad. I wake up multiple times a night with numb limbs and get constant facial spasms and twitches. These symptoms occur every single day non stop. I’m scared on what will happen in my future. Anyone have any stories?

First posted on the Shift.ms app

Shift.ms is better if you're logged in

Topics