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I'm having an active flare up and have been placed on 500mg of methylprednisolone daily for 5 days, and am using paramol and tiger balm to try keep the pain at bay. I've been looking into CBD oil as I used to be a heavy cannabis user around 4 years ago, before my diagnosis was confirmed, and did fi...

I have been really forgetful lately and ironically it always happens on my “good days”. It’s becoming more noticeable lately and I’m getting a little worried. I was in the store and my alarm went off for my medicine and I didn’t have anything to drink. Idk about you but ever since this lovely illnes...

so i work for the public service. they bang on about diversity and inclusion but actually its the complete opposite. so being an idiot i told my managers i have ms. they started spamming my neurologist for more information.im now on a performance improvement plan. if i ever mention i have a health...

After Mr Musk ruined Twitter, I’m here to find my old MS pals and gain some new ones. I was diagnosed six years ago, I’ve been on Ocrevus and now Kesimpta (which I don’t find helpful at all). I’m working on my PhD looking at foot and lower limb health in people with MS (I’m a Podiatrist). I’m here f...

I am having some serious cyst issues which I've just decided to rename cystues. 😂 Seriously though I have had issues with sebatous cysts popping up randomly on my neck low around my collar bones and in my armpits for about a decade now. Before I knew what they were I just used to drain them myself ...

I was just diagnosed in July. My first symptoms and lesions were in 2019 but I was in limbo until a lumbar puncture recently for diagnosis. Partly because symptoms overlap chronic migraine and FM which I have. So my neurologist was looking for something strictly MS. I did get drop foot but that wa...

Hi. This has probably been covered before but I’m struggling to get any answers from my specialists on this problem. My arms and legs are very painful and I can’t seem to get any relief from it. Paracetamol only works for a little while then it comes back with with ten fold. I’m just wondering if an...

Hey folks! , I don't know about you, but sometimes I tend to forget that I was was diagnosed with a life alternating medical condition. Right now I'm still on the stage of clinically isolated syndrome, but my cognitive abilities are not what they used to be and that is affecting my work. Hindsight b...

I'm not yet diagnosed but I'm pretty sure I've got RRMS and am currently experiencing a flare up of symptoms. I've been on the waiting list to see an NHS neurologist since January, I've got an appointment in December which will be the first time I've been seen by a specialist. I guess I want to kno...

I have some weridness in my thumb over the last week. I seem to be getting pins and needles in it but when I move my thumb down and blood goes to it its fine but when it is faced the other way the pins and needles come back. Could this be CIS / MS related or more trapped nerve related? Also I am c...