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Hi My consultant is changing me from Gilenya to Vumerity. Has anyone out there have experience of taking Vumerity? And the side effects? Thanks Helen

Hello all, I’m on my second bout of Covid but the first one whilst diagnosed with RRMS. I got Paxlovid prescribed on Day 1 and have been in bed for 3 days as I find the best thing for me to do is as little as possible when I don’t feel well. The Covid nurse (North Lancashire/South Cumbria) told me ...

My neuro wants to start me on Tec as I’ve not done well with other DMT’s and he wants me on something. I’m also JC virus positive, bringing the risk of PML into the picture. Anyone out there made the decision to go ahead on a DMT after testing JC positive? Knowing the risk of PML in the equation? No...

I wonder so people change their MS treatment after a length of time? I’m on Gilenya 11 years

Hi Everyone! Has anyone had any issues since their Tecfidera has been move to the generic version of the medication? I've been on the generic version for around 3 weeks now- since moving to the new medication I've been flushing literally every night, even after taking an antihistamine and aspirin ...

Hello all, Has anyone tried plasmapheresis? I do not tolerate steroids well and this was the other option provided to me to treat my flare/relapse (optic neuritis now in my other eye). Trying to make a decision so all experiences are welcome. Thank you!

Hi. I’m wondering if the guidance has changed around fingolimod/RRMS and Covid risk? I’ve not been invited for a spring booster and when I looked on the vaccine info site MS is no longer listed as a condition that is considered ‘vulnerable’. Has anyone else previously been invited for all boosters ...

Hello! 😊 I’m almost at the end of my two year period of taking Tysabri (Natalizumab). I have high levels of the JC virus, therefore, I’m afraid to continue taking Tysabri after the two year mark. Has anyone been in this situation, and what was your experience? Did you stop the infusions completely ...

Hey all, I’ve been on Gilenya since I was diagnosed about 10 years ago. It’s been mostly effective - had an eye thing about 4 years ago which came good. And at the moment am going through a period with some foot numbness and the MRI I had last week showed a new lesion. Yay for me. I don’t feel overl...

i have taking this drug for just over a year the problem when i first started takijng it was more my mental state which bad enough but the few months is terrible burning at first in my stomach then burning all over the next day all my joints really hurt its stopping me doing execising which i need t...