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Gilenya (fingolimod) is a disease modifying treatment (DMT) for active relapsing remitting multiple sclerosis. It is prescribed as a daily pill and clinical trials have shown it can reduce relapses by around 50% compared to a placebo. Why not share your experience of Gilenya MS treatment or ask other MSers about theirs?

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@sharon12345

31 May 2025 11:56

Siponimod

Hi has anyone here had to change from Gilenya to Siponimod? I’m having a lot of falls

First posted on the Shift.ms app

@JoLou50

21 May 2025 13:43Last reply 22 May 2025 11:18

Ocrevus and Crohns

Been on O for 3 years with 0 issues. Now recently diagnosed with Crohns - believed to be as a result of that medication. Can no longer have O - and back to choosing a new DMT. Mavenclad Tecifidara Ponvory Gilenya What a minefield! Any suggestions or recommendations?

Northampton, United Kingdom

@Diva40

16 Apr 2025 16:43Last reply 16 Apr 2025 17:16

Coming off Gilenya

Hi. I have to come off Gilenya after 10 years, I stay in Scotland, there are lots more medications around. I would need tablets, any recommendations? Also interested to hear how people got on coming off Gilenya . Thanks

First posted on the Shift.ms app

@Diva40

16 Apr 2025 06:37 Edited

Morning, I have to come off Gilenya after 10 years, I stay in Scotland, there are lots more medications around. I would need tablets, any recommendations? Also interested to hear how people got on coming off Gilenya . Thanks

First posted on the Shift.ms app

@StevenB73

29 Mar 2025 18:16

Questions

I have had MS for over 28 years and I have been on Betaseron, Copaxone, Avonex, Steroid IV Infusions and I am now on Gilenya. I have a Baclofen pump and a port. If anyone has any questions please feel free to reach out to me. I am all ears and open to helping others cope with their diagnosis of MS.

Phoenix, United States

First posted on the Shift.ms app

@HelenG

4 Sep 2024 09:19Last reply 20 Sep 2024 21:07

Vumerity and side effects?

Hi My consultant is changing me from Gilenya to Vumerity. Has anyone out there have experience of taking Vumerity? And the side effects? Thanks Helen

First posted on the Shift.ms app

@Flennyz

15 Aug 2024 06:57Last reply 15 Aug 2024 19:04

Covid and relapse risk increase

Hello all, I’m on my second bout of Covid but the first one whilst diagnosed with RRMS. I got Paxlovid prescribed on Day 1 and have been in bed for 3 days as I find the best thing for me to do is as little as possible when I don’t feel well. The Covid nurse (North Lancashire/South Cumbria) told me ...

First posted on the Shift.ms app

@rustyhalo70

6 Aug 2024 22:11Last reply 7 Aug 2024 12:16

JC Positive and Tecfidera

My neuro wants to start me on Tec as I’ve not done well with other DMT’s and he wants me on something. I’m also JC virus positive, bringing the risk of PML into the picture. Anyone out there made the decision to go ahead on a DMT after testing JC positive? Knowing the risk of PML in the equation? No...

First posted on the Shift.ms app

@Letslivelife123

30 Jul 2024 22:03Last reply 2 Aug 2024 23:55

Treatment

I wonder so people change their MS treatment after a length of time? I’m on Gilenya 11 years

First posted on the Shift.ms app

@motorhead

22 Jul 2024 13:26Last reply 26 Apr 2025 20:32

Generic Tecfidera

Hi Everyone! Has anyone had any issues since their Tecfidera has been move to the generic version of the medication? I've been on the generic version for around 3 weeks now- since moving to the new medication I've been flushing literally every night, even after taking an antihistamine and aspirin ...

London, United Kingdom

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