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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
  • Tecfidera
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@melissag 

Last reply

melissag

Gilenya?

Hi guys, hope everyone had a great holiday! I just wanted to ask today if anyone had much experience with Gilenya, I'm having a lot of sensitivity to the copaxone shots I'm on an the MS nurse said the dr will most likely want to switch me to gilenya because of that. The shots leave me swollen, sore ...
  • Gilenya
  • Treatment
  • Copaxone
  • Research
  • Travel
  • Work and play
  • Symptoms
25

@Leogirl 

Last reply

Leogirl

Gilenya

Hi, I just wanted to ask how often anyone on Gilenya have MRI’s. I was previously on Tysabri and I had them every four months. I changed to Gilenya in 2016 and I have been having them every four months as well. After my last visit to the clinic I received an MRI appointment for a years time. I qu...
  • Diagnosis
  • Bladder and bowel
  • Hot and cold
  • Treatment
  • Gilenya
  • MRI
21

@gojira 

Last reply

gojira

Gilenya

Hello all! Just wondering if anyone would like to share any experiences with Gilenya. I am starting a study pretty soon between Copaxone and Gilenya. I dont know for sure what im getting yet but they said that its a 20% chance of Copaxone and 80% Gilenya. Reading the booklet they gave me on Gilen...
  • Treatment
  • Copaxone
  • Gilenya
  • Work and play
  • Work and Study
15

@bound2camp 

Last reply

bound2camp

gilenya

I have been taking gilenya for a year now for my RRMS. I have had no relapses, not sure if its the drug or just the way it would normally go for me. Is anyone else using it?
  • Diagnosis
  • Relapsing remitting
  • Symptoms
  • Relapses
  • Treatment
  • Gilenya
14

@Gillo 

Last reply

Gillo

Gilenya

Hi can I hear your thoughts on Gilenya, I'm due to start it soon, thanks
Dublin, Ireland
  • Gilenya
  • Treatment
14

@Diva40 

Last reply

Diva40

Gilenya

Hi has anyone had issues getting Gilenya ? Only have 10 left!!!! In touch with Lloyd’s pharmacy.....
  • Treatment
  • Gilenya
13

@Amy_Forrest 

Last reply

Amy_Forrest

Gilenya?

Hi guys. I have been taking gilenya for 1 year and 4 months now and I'm wondering how people are getting on with it. I'm terrified about PML and it's sending my anxiety through roof with panic attacks and what not. I'm thinking of coming of it as MS won't kill me but PML will and I don't want to tak...
  • Symptoms
  • Mental health
  • Treatment
  • Gilenya
  • Tysabri
10

@AmyS 

Last reply

AmyS

Gilenya

Hi, I have been on Tecfidera the last two years but due to continued symptoms and side effects my neurologist has suggested changing to Gilenya. I wondered what other people's experience of this is? Thanks
  • Symptoms
  • Treatment
  • Gilenya
  • Tecfidera
10

@frankielideo 

Last reply

frankielideo

Gilenya

hi guys, is there anyone on gilenya, i am due to start on this on tues in belfast and im strating to freak out over pml i was on rebif for a yr and a half and it seemed to take away my symptoms but gave me a fave fever and back shivers, i ttok a replase this time last yr owhile i was on it and that...
10

@Jose_Sanchez 

Last reply

Jose_Sanchez

Gilenya

After 4 days on Gilenya I feel like my ms symptoms are going away ,i can t believe it so so happy...
  • Symptoms
  • Treatment
  • Gilenya
9
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