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Hi guys, I have my first infusion booked for next week ; ;(soooo nervous about it) but this week picked up this hideous cold / flu from my child , I can’t get out of bed eyes streaming nose running head banging. I’m guessing if I rest up I should be able to feel ok next week. My question is shoul...

I was diagnosed 8 years ago. I had no symptoms, but I was at work one day, and suddenly I realised I hadn't been too the loo since 6:00 that morning and it was now 2:30 ! At the end of the working day I phoned my husband to get me an appointment at the doctors. No appointments, so knowing things wer...

IMy nane've just joined. I was originally diagnosed 1996 to include SLE Lupus, MCTD. Both gone untreated and rediagnosed June 2023. I've begun seeing a neurologist but no treatment has been offered. I was hospitalized may 23, 2023 due to renal failure and had lost ability to walk more than a step or...

2 nights ago I was sitting and watching something on my phone when all of the sudden my vision went crazy. It was like I was looking through a prism but still couldn't make out what I was seeing. I immediately closed my eyes not because it hurt but it was like my eyes were being forced shut. I freak...

Im wondering if anyone has some advice or info about this whole disease as ive just been told they are 99% certain that i have it and are waiting for my MRI date anyone got any info or help etc.

Hi just wondering, im seeing a neurologist next week, does it mean waiting for diagnosis or will i be told on the day, thanks

I’m a new member needing a bit of a rant 😀. I,m 49. Lost my hubby to cancer at the start of the year. Starting treatment MS. Yes I have bad sad days, but on the whole I am coping well. My mobility is poor, but am fiercely independent and hope to stay the same for as long as possible. I work f...

Hiya I’m 20 I was diagnosed with ms when I was 16 and was on Tysabri then moved onto Ocrelizumab. Unfortunately it wasn’t the right treatment for me and I wasn’t well on it I am now just about to start Kesimpta and feeling quite nervous about it could anyone tell me what it’s like?

Hi everyone, I have rrms, I have had mri for years. I find myself this year highly anxious regarding going in the mri. So unfortunately I cancelled my mri in October, due to really bad anxiety regarding the head coil and mri. I have had numerous headaches mostly when I wake up in the morning. I say ...

So, a bit of a backstory on my situation.. I was diagnosed in November 2021 with RRMS. I received my diagnosis after having numbness and tingling in both arms and legs and suffering optic neuritis which pretty much completely took my vision in my left eye. Luckily I got my vision back and it’s just ...