Shift.ms

29 Jun 2025 16:12Last reply 30 Jun 2025 02:08

Heat…

Hi, I am new here and was diagnosed with MS in Jan 2025. I am on vacation at the moment and having a hard time with the heat. I always feel like I am overheating and my body just doesn’t want to move forward… I’ve been cooling myself off with a cooling towel… any other tips? I was an on the go perso...

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@mslifelondon

26 Jun 2025 18:44Last reply 27 Jun 2025 06:23

Hi Been diagnosed for over 1 year, 2nd MRI showed no change so continued to treat Holistcally, symptons have got worse since Xmas and looking for advice on what prevention medication people advise to try, also some meds for the constant aches, any advice would be appreciated

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@Vickim654

26 Jun 2025 12:26Last reply 27 Jun 2025 17:52

Switch treatment or hold off ??

Hey everyone (sorry long post) Looking for advice, opinion or just really something. I completed mavenclad treatment in 2023 and have been having regular monitoring - all ok. I recently had mri and results have shown a new lesion - this was obviously a kick in the butt but after meeting with my c...

Coatbridge, United Kingdom

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@dcgreen714

23 Jun 2025 14:29 EditedLast reply 24 Jun 2025 17:18

Hello

Hi everyone, I’m new here 👋 I was diagnosed in December 2024, my first symptom was numbness in my legs back in 2021-22, then optic neuritis in 2023 had landed me in the hospital and so began my MS journey. During that time I was just a few wks shy of moving from upstate NY to the UK for school - it...

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@sharons

21 Jun 2025 20:33Last reply 22 Jun 2025 18:30

I've just been diagnosed even though I've been attending the MS clinic for a few years. My neurologist has suggested I research dmt on the ms website and look at the various treatments. Any advice on DMT?

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@Flwatts

17 Jun 2025 20:49Last reply 17 Jun 2025 21:41

Electric shock pains

Has anyone got any tips for electric shock type pains? I went to MS nurse who said they were struggling as their only nurse prescriber had retired. They couldn’t see my neurologist for two weeks so advised me to go to my GP for advice. I went to my GP who told me it’s specialist medication and needs...

Walkerith, United Kingdom

@aaandrew

17 Jun 2025 12:42Last reply 17 Jun 2025 16:19

Mobility fun

Hi, hope you're doing ok today. Has anyone had any success with improving their mobility, either by exercise, lifting, doing more, doing less , etc? I try to do more but the more I do the less I feel I'm able to do. Maybe it's a recovery thing or I'm not following the right regimen. Any tips/ad...

First posted on the Shift.ms app

@Sophieee

11 Jun 2025 20:42 EditedLast reply 12 Jun 2025 10:27

Potential Issues with kesimpta?!

HELLO! I’ve been on kesimpta for 17 months, and ever since joining, I’ve had many weird and wonderful issues arise. Such as my legs, they’re suddenly weaker, painful, and tired. I’ve had non stop bladder problems, always in immense pain, and uncomfortable. My speech has gone out the window. I’ve no...

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@Biteme71

11 Jun 2025 17:34Last reply 12 Jun 2025 03:38

Ramification of torticollis nonsense and what happens when you have side effects with botox . After my latest round of Botox that I have every 3 months to deal with the torticollis new nonsense I now am choking every time I try to swallow something or God forbid eat something. This is not the diet plan I was looking for 🤦 I called the MS center for some advice on swallowing or rather navigating the new nonsense and then cold a different neurologist to try to get a second opinion. Of course I can't be seen until freaking August. No I don't want to go to the emergency room it's not an emergency simply going to the emergency room cost more money than my God damn mortgage. Luckily if I eat small bites of tiny things I'm able to choke down some food and cream of wheat works but damn it not cool. On the other hand my husband made a really cool attachment to a scooter we have so that we can hook my Walker onto it so that when we go on vacation I can take the walker with me at the beach when we drive around. It's the little things I'm such a lucky woman to have such a fabulous husband 🤩 and yes attitude is everything do what you can how you can when you can and everything else can f*** off 🤣

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@FelixKai

11 Jun 2025 09:38Last reply 12 Jun 2025 16:30

Any advice?

I've seen stories about other people who have gotten diagnosed at a young age, but do any of you have advice for it? I've spent the last 5 years going from Dr to Dr in multiple different states to find out what was wrong as my health was rapidly declining and only recently (last August) found out I ...

First posted on the Shift.ms app

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