@Amunet60 

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Amunet60

Socialising...???

My husband and I live in Cardiff, but don’t really know anyone here. We were more or less housebound from 2011-2019 due to illness. Then we shielded ourselves for a year because of Covid (and still got infected!!!). My husband has Secondary Progressive MS. I have ME/CFS (I'm maintaining 50% improvement from my worst period by 'pacing'). Just in case it’s relevant, I’m 44, he’s 63. I'd love to develop an online/IRL network that would enable people who are disabled - and/or isolated - to socialise. Being able to find coffee/gig/museum/gallery/rave/walk/motorsport event/samba/poetry-night buddies both in our own home villages/towns/cities and elsewhere, or get a group together to go to a festival would be great. I'm in the process of contacting festivals right now to see if 'accessible volunteering' exists...and to create it, if not. We’ve got tickets for Boom Fest in Portugal, but we’re not going to be able to make it. Hopefully, we can postpone our ticket and use it next year, by which time we’d have got together a gang of like-minded/bodied/souled folks (hopefully). Oxfam’s festival volunteering scheme has a ‘reasonable adjustments’ team, but you have to buy a ticket before you can speak to them to find out if they can make the ‘reasonable adjustments’ you require in order to be able to use your ticket!!! I found this article (link below) inspirational (anti-inflammatory snacks…love it!). "Crip Rave Is the Revolutionary Collective Prioritising Accessibility. Just a few changes can make the difference between disabled ravers choosing to stay home or going out for a transformative night. This Toronto collective is leading the charge." And, before anyone attacks me… From the article: “The term "crip" is like the word queer, a slur reclaimed by the community it was meant to hurt. Disabled activists started using it in the 1970s, and it's since become both an adjective and a verb. It describes a disabled view of the world where accessibility is the baseline assumption rather than something badly retrofitted onto existing spaces and ideas.” I'd love to hear people's thoughts!
@Cognitivechaos

Hello there - I can’t see any responses to your request/s… I have to admit to not really understanding what you were looking for in terms of replies, but that maybe because my head got muddled. So can you please clarify what you would like to know from other people on this ‘platform’… sorry if it’s obvious!

@Cognitivechaos

Ah perhaps it’s about socialising, as that’s what you titled your message? In which case is it about how to socialise? Who to socialise with? Where to socialise (other than somewhere sociable)? Why bother socialising (very unlikely)? A few random thoughts: I am an introvert, so I don’t feel a great need to socialise which is good as I live like a mute hermit! But an extrovert meds to socialise as much as they need to breathe! In other words, we won’t all feel the same about socialising. Then there’s what to socialise about - that’s easy for this ‘place’ as it’s based on MS - but maybe you want to socialise about something completely different?