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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Balance
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@Kirstie_Hawkins 

EditedLast reply

Kirstie_Hawkins

Relapses and RRMS

Hello. I was diagnosed in 2019 with RRMS and really only had the initial balance and optic issues and then 2 months later a numb face. Can people who have had no relapses for 4 years have one out of the blue? I thought with RRMS you might have a relapse every year. I am worried that my luck might...
London, United Kingdom
  • Diagnosis
  • Relapsing remitting
  • Symptoms
  • Relapses
  • Newly diagnosed
  • Balance
  • Numbness
  • Exercise
  • Healthy living
  • Blurred vision
2

@Sweetcorn 

Last reply

Sweetcorn

Flare ups, relapses, daily symptoms

Does anyone else find that they rarely have totally symptom free days, which are worsened by (extra!!) tiredness or stress? And during relapses, 'old' symptoms tend to flare up, too?
  • Symptoms
  • Relapses
  • Mental health
  • Mind and body
12

@Hollyp 

Last reply

Hollyp

Advancing symptoms, no new relapses?

Hi, I was diagnosed with MS summer 2019. At that point I had had some minor symptoms such as numbness in my hands and feet and some blurred vision. Optic neuritis led to my diagnosis. Since then my day to day experience has got progressively worse. I have struggled to walk any distance at times and ...
  • Symptoms
  • Diagnosis
  • Exercise
  • Blurred vision
  • Healthy living
  • Newly diagnosed
  • Fatigue
  • Hot and cold
  • Relapses
  • Spasticity
5

@dipetar 

Last reply

dipetar

Not on DMT, no relapses, left leg fades

Any advice? Generally I have relapses - one every three years, and I am not on DMT. This year, my left leg slowly fades away. Stairs, walking for a longer period now becomes a challenge.
  • Which DMT
  • Treatment
  • Exercise
  • Healthy living
  • Relapses
  • Symptoms
  • Diagnosis
  • Work and play
2

@Griggsy 

Last reply

Griggsy

Cold sores and relapses??

Hey friends! So I am just wondering what peoples experience and/or knowledge of cold sores is with regards to MS relapses? I can feel my first cold sore brewing since my diagnosis and I’m feeling super fatigued. Not sure if the cold sore is a symptom of me being a bit run down, or if the cold sore i...
  • Symptoms
  • Hot and cold
  • Relapses
  • Diagnosis
  • Healthy living
  • Exercise
2

@frankicesca 

Last reply

frankicesca

So many relapses, will it ever slow down?

I've got a soft diagnosis of "very likely RRMS". They've done the lumbar puncture and two MRIs and Ive got an appointment to go through all the results on Monday with neurology. It's all happened since February (though I now recognise first relapse was December) so still getting to grips with it al...
Kent, UK
  • Relapses
  • Symptoms
  • Diagnosis
  • Mental health
  • Relapsing remitting
  • Numbness
  • Which DMT
  • Going out
  • Treatment
  • Disclosure
6

@remys 

EditedLast reply

remys

Should I report relapses to the NHS?

I'm relatively new to MS, diagnosed in 2020 initially with "very mild benign RRMS" when actually by 2022 new MRI shows 2 legions on the spine and 2 on the brain (the spine were there originally in 2020 and missed). I've been wary of "everything becomes MS" from the diagnosis and I tend to avoid "bo...
  • Diagnosis
  • Symptoms
  • Relapses
  • Newly diagnosed
  • Relapsing remitting
  • MRI
  • Treatment
  • Which DMT
  • Brain fog
9

@shiftms-films 

Last reply

shiftms-films

Relapse Stories By MSers | How you identify your own relapses

As part of #WorldMSDay 2019 Shift.ms released #Relapses24x24 - 24 stories of relapses as told by MSer's. We've stitched these stories together so you can see the various stages MSer's go through with relapses. What we learnt from these stories is that if you're experiencing symptoms that are not nor...
  • Symptoms
  • Relapses
  • Work and play
  • Diagnosis
  • Disclosure
  • Work and Study
  • Relapsing remitting
  • Healthy living
1

@Bryony 

Bryony

Severe Headaches and Relapses

Hi! Not sure if anyone else has experienced this but before my first relapse I had the most horrific headache, photophobia - unable to move for 24 hours and then relapsed approx 2 weeks later. I’ve just been discharged from hospital as I had another one this week and they kept me in overnight, CT s...
  • Relapses
  • Symptoms
  • Hot and cold
  • Treatment

@AndreaG 

Last reply

AndreaG

Worsening Disability in Absence of Relapses ‘Underestimated’ in MS

An article which appeared MS News Today: A substantial amount of disability worsening happens independently of relapses in people with multiple sclerosis (MS), including those in earlier stages of relapsing-remitting disease, a study in a large patient database reported: https://multiplesclerosisnew...
  • Relapses
  • Work and Study
  • Work and play
  • Relapsing remitting
  • Symptoms
  • Research
  • Diagnosis
  • Which DMT
  • Numbness
  • Treatment
1
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