#k - Shift.ms

13 Aug 2025 05:10

I have questions but does anyone have any opinions

Has anyone started treatment and doesn’t feel like the treatment isn’t doing anything good for you and feel like symptoms are getting worse. I feel like that’s where I’m at. I feel like I should have just stayed on the Solu-Medrol It was helping me more then the meds I’m on now I know no one on her...

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@jamoranto

13 Aug 2025 04:07Last reply 13 Aug 2025 04:55

Eat up this summertime still. It's hot we know.

https://youtu.be/ev9GGwCrB4s?si=BEwViasUAPpf_Ap8

Langley, Canada

@kassidymills

12 Aug 2025 02:38Last reply 13 Aug 2025 02:29

Headache

Best ways to help with knots in your neck and massive headaches with things at home instead of medication??? Anything would be so helpful.

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@kimholden

12 Aug 2025 02:15Last reply 12 Aug 2025 22:45

Not yet diagnosed, what's it gonna take?

I've been miserable for many years. Somedays I just hurt all over, every inch of my body. I have degenerative disc disease, chronic low platelets, high blood pressure, benign positional vertigo, I have my neck fused, my left hip replaced and my lower back fused. I need both knees replaced ASAP, and ...

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@evaa

11 Aug 2025 20:18Last reply 13 Aug 2025 01:26

Rituximab

Hello everyone I was diagnosed with Ms 6 years ago and they keep my doctor said that I need to change the treatment to OCREVUS but i found it so expensive here in Morocco also there is no insurence that reimburse it here. I added some small researches and I found that RITUXIMAB is working on a simi...

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@jumpingJacks

11 Aug 2025 17:36 EditedLast reply 11 Aug 2025 22:27

RRMS SPMS Treatments Ranked by How Well They Stop Relapses That Cause Damage to Your Brain, Spinal Cord & Optic Nerves

Relapses in MS are attacks where your immune system wrongly attacks important nerves inside your central nervous system (CNS) that means your brain, spinal cord, and the nerves connecting your eyes to your brain. These attacks cause damage that can lead to disability. The right treatments help stop...

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@89scott

11 Aug 2025 16:04Last reply 12 Aug 2025 07:25

Friends

Anyone find it hard to make friends or keep the ones you've actually got since getting MS

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@RhiaRoo

11 Aug 2025 12:33Last reply 11 Aug 2025 22:24

Ocrevus bloods

I have my regular ocrevus appointment tomorrow. It seems the hospital messed up timings and I had my bloods taken 6.5 weeks ago rather than the required 2-4 weeks required. Does anyone know if I could still get the infusion? It's been a bit touch and go already as I've picked up a cough from my da...

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@kelbelx5

10 Aug 2025 20:55 EditedLast reply 11 Aug 2025 23:15

MRI results

(Edited to add: I had spinal tap few weeks ago and it came back positive for OCBs) I finally had my MRI for the brain and C spine (T spine is scheduled for next week). I read the report this morning, I haven’t spoken with my doctor yet, but they found lesions on both my brain and C spine that indic...

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@sasha999

10 Aug 2025 20:39

Offered a place in a CAR-T trial – anyone have experience?

So… Ocrevus didn’t work for me, Lemtrada was amazing but I can’t have any more, and now I’ve been offered a spot in a CAR-T trial. I know it’s still pretty experimental, but I’ve been reading about the KYV-101 stuff and it sounds promising. Has anyone here actually done it or know someone who has? ...

First posted on the Shift.ms app

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