#k - Shift.ms

@Kiko41

23 Jul 2025 17:12Last reply 23 Jul 2025 17:13

Have a question folks : anyone on one of the weight loss injections like mountjaro while taking kesimpta?

First posted on the Shift.ms app

1

@kassidymills

23 Jul 2025 16:29Last reply 23 Jul 2025 16:39

First Kesimpta

Common reactions for first Kesimpta?

First posted on the Shift.ms app

2

@bigdill306

22 Jul 2025 21:08Last reply 23 Jul 2025 16:25

Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

First posted on the Shift.ms app

30

@amandalynn96

21 Jul 2025 22:07Last reply 23 Jul 2025 13:22

Has anyone else have a lot of trouble with their insurance companies denying medication that would help your MS? I've been waiting for what seems like forever and keep getting denied. New things have been starting that effect everything I do.

First posted on the Shift.ms app

15

@Tking68

18 Jul 2025 08:07Last reply 23 Jul 2025 12:35

Keep loving Jesus he will get you through it all

Amen

Indianapolis, United States

23

@Jpetridish

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app

9

@Melanatedmsmom

20 Jul 2025 16:35Last reply 21 Jul 2025 01:16

Does anyone know where I can get a diagnosis card? We are traveling soon and I think it would help with getting around

First posted on the Shift.ms app

9

@Sarahplus3

6 Jun 2025 02:27Last reply 19 Jul 2025 17:03

Hey guys does anybody know good vitamins for rrms I’m on a dmt and other drugs but I’m trying to be as healthy as I can

First posted on the Shift.ms app

23

@Lauren21

6 Jul 2025 12:06 EditedLast reply 17 Jul 2025 20:26

DMT decision - Ocrevus, Kesimpta, Tysabri...ooh my!!!

*Update - my JC virus came back positive. Although very low, Tysabri wouldn't be recommended so it looks like my decision is a little easier. Kesimpta or Ocrevus 🙈 I am now the happy owner of a BRIGHT SHINY left sided optic neuritis episode, confirmed by MRI. 💥🎉 Thankfully, I can now move up to...

43

@Jimmy369VT

16 Jul 2025 16:23Last reply 16 Jul 2025 23:57

After reading some of the stories on here, and realizing, I am not the only one actually means a lot to find some people that understand what I am going through. I just don’t understand why the doctors neurologist are just using me as a test subject and treating me like a science project And some of the stories are similar to what I am still going through how does anybody else deal with their bladder issues? I have a family member that does self catheterization, but I’m not doing that, but it is kind of embarrassing when you do have an accident in the middle of Walmart I’ve been using briefs to prevent it from happening again.

First posted on the Shift.ms app

8

Shift.ms is better if you're logged in

Topics