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I'm awaiting a buddy, and a diagnosis. Since a head injury my FND Functional Neurology Disorder has struck out with tendon pain in all joints and mobility when I'm fatigued I walk with a shuffle. I'm under North Wales Head Injury Team as my Neurology consultant is about to retire in Shrewsbury, an...

An article I published on LinkedIn the other day: Or... Why Aren't MS Patients Worth It? Recently, I was sent a genetic test that won much acclaim at ECTRIMS 2023. The test is simple, fast, and unequivocal. Why is it important? As one of the 2.5 million plus Multiple Sclerosis (MS) patients in th...

Has anyone else had a meningioma found incidentally when having an MRI scan to look for leisons?

Hello! I just had a spinal tap done last week after stopping Tysabri and in preparation to start Ocrevus. For the last 5 days I feel better than I have in years. I vaguely remember my MS nurse telling me it is possible to have fewer symptoms post spinal tap for a short period of time but that conver...

I have my 2 hour routine MRI tomorrow! Any tips??

Hi all, me again! So, I have been having symptoms since January and was diagnosed in March. Since March I have had full immobility and numbness on my whole body including half my face. My question is how long does this initial flare up normally last. All the drs keep saying I’ll get out of this “acu...

Hi all, recently diagnosed about 3 weeks ago and have been suffering really badly with nausea and vertigo. On a cocktail of different meds which help slightly but not completely. Was wondering if anyone else had the same, I am still in the middle of a relapse and have only just been discharged from ...

So, I just discovered this word, ALLODYNIA. I believe "cold allodynia" is exactly what I'm feeling. It started very slowly and subtly around 10 years ago. Now, I can barely stand to go in the grocery store. Just the slightest exposure to cool air sends my whole surface area into painful icy cold bur...

Since December I've been in and out hospital.ive had two lot's of steroids through i.v . countless m.r.i 's .Still waiting to see a m.s doctor .i can't go back to work as I'm unsteady . I'm bored now

HI. I have had MS like symptoms since February 2019. I had several mri's and a lumbar puncture. I have seen two neurologists and the second one ordered nerve conduction studies. All other tests have been clear and if the ncs is clear I will be diagnosed with FND. But I can't help being dissatisfied ...