#k - Shift.ms

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All of us ms'ers getting to know each other better:

Hello, I have a question here for anyone that reads it and is willing to answer, to get to know all of us better. Where are you from originally? I was born in Michigan and lived in New York for a large portion of my life. I went to high school in Virginia Beach and went to undergraduate in New York...

First posted on the Shift.ms app

@LadyKay

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Steroids keeping me awake

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...

@shiftms-polls

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Women MSers, let us know what you think! 🤔

We're partnering with @rachelhorne - prominent journalist, researcher and founder of the Rachel Horne Prize for Women's Research in MS - on a new video series about women's health and MS. Together, we want to know more about your experience of discussing women's health questions with your MS team. ...

Do you feel confident talking to MS healthcare professionals about, possibly uncomfortable, women's health issues such as menstruation, contraception, sex, pregnancy and/or menopause? Whether you agree, disagree or have a lot more to say on the subject, please tell us your story in the comments below 👇

Total answers: 322

@JoeWren

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Recent diagnosis, Kesimpta or tecfidera?

Diagnosed only last week, I have an appointment with the MS nurse on 11/12/23 after the neurologist at my diagnosis appointment gave me a choice between kesimpta or tecfidera. I’m really unsure which way to go, does anyone have and input that might help me make my final decision please?

Forfar, United Kingdom

@CasaBlanca

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I am getting 5 options for medication from my neurologist. What are your thoughts. Ocrevus, Kesimpta, Tysabria, Fingolimod,or Mayzent.

First posted on the Shift.ms app

@AlexNB

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Can I ask a venting/fear question? I asked my boyfriend to move out. It is not a healthy relationship and I am too old to deal with immature bs. I am terrified of being alone. Not literally, I love having a person. I love the co tact I love the laughter and knowing that there is someone there if you fall lol. Now here I am a single broke 55 year old. Who would want to start a relationship with that, oh yeah and I have MS. Sigh

First posted on the Shift.ms app

@bigdill306

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Hey everyone 👋 I’m Dylan, a 38-year-old guy living with MS out here in Saskatchewan. I run a legal weed dispensary (yes, I’m that guy), and I use dark humor, sarcasm, and a whole lot of cannabis to get through the weirdness that is life with MS.I figured it was time to find a space with people who get it the fatigue, the brain fog, the “oh cool, my leg’s just doing its own thing now” moments. I’m just here to connect, share some laughs (the darker the better), and not feel like I’m the only one in the snow belt dealing with this.If you're in or around Saskatchewanor even if you're not say hi. I don’t bite. Unless it's a bad MS day and my jaw spasms. (Kidding. Mostly.)Looking forward to getting to know some fellow weirdos on this ride

Saskatoon, Canada

First posted on the Shift.ms app

@ColettePage

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Kanavance cbd oil

Is anyone using Kanavance cbd oil? What’s their experience of it? Wondering whether to give it a try? I can get the ‘real‘ maccoy but that has THC in and I’m hesitant and don’t want the high feeling.. Col P 😳🙃🙂

@Padthai1

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I’m going out for a walk now, walking in stick in hand basically for balance, I have been known to have a few falls ! How about you guys, do you have many falls or any?

First posted on the Shift.ms app

@Lauren21

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DMT decision - Ocrevus, Kesimpta, Tysabri...ooh my!!!

*Update - my JC virus came back positive. Although very low, Tysabri wouldn't be recommended so it looks like my decision is a little easier. Kesimpta or Ocrevus 🙈 I am now the happy owner of a BRIGHT SHINY left sided optic neuritis episode, confirmed by MRI. 💥🎉 Thankfully, I can now move up to...

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