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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Richthefence 

Last reply

Richthefence

Hello all, I haven't been on here for quite some time. I don't have any treatments anymore, but I am so knackered after work so was wondering if you had any suggestions for energy levels? Thanks in advance.

First posted on the Shift.ms app
3

@Angelwings79 

EditedLast reply

Angelwings79

I know I'm crazy, but I'm not 🤣

I refused a bad day today. I woke up in a bad mood, headache (been lasting days)stiffness and pain. I was annoyed!!!Then I had to have words with MS, "not today" I said out loud 🤣 😂 I have been making up random songs, and tunes out loud, sometimes just noises to loosen my jaw, I nearly put a scoop...
First posted on the Shift.ms app
5

@Fabreezy21 

Last reply

Fabreezy21

Does anyone else kind of struggle staying calm when people ask “dumb” questions about living with ms?

First posted on the Shift.ms app
58

@ToriB3 

Last reply

ToriB3

I’m Tori :) My head still hurts from all the information I’ve received in the last few days. I went into the MD for a weeklong bout of vertigo(which I’ve never had before) and nausea. She did an MRI as a precautionary scan to make sure it wasn’t a stroke and that is when they found the lesions and such. He is 80% certain MS is what I have, but he has to do blood work to rule out MOG and NMOSD before starting treatment. Why can’t I just KNOW! He said I have textbook MS lesions but there is a larger lesion than typical for MS so he said that is what he wants to check out! I’m very grateful they got me in so quickly but that’s big news to sit with maybe or maybe not :(

First posted on the Shift.ms app
7

@Angelwings79 

EditedLast reply

Angelwings79

Fighting to keep my independence

New symptoms have been coming on thick and fast. 8 conditions all overlapping MS. In 2.5years my life has changed drastically. 80% cognitive, but coping better as im not going crazy and assessment confirmed cognitive decline. Now my mobility! I've fought this since 2015 pre diagnosis doing little th...
First posted on the Shift.ms app
5

@Donnalew 

Last reply

Donnalew

Kesimpta

Hi I had my first injection at 11am this morning and I know it can give cold like symptoms which I have shaking but sweating but I have also been sick. Does this pass quickly does anyone know
First posted on the Shift.ms app
4

@victoriaxxoo 

Last reply

victoriaxxoo

Kesimpta side effects!

Hi All, it’s my first time here. I’ve had MS since 2001 and have been offered a DMT. I think Kesimpta may suit me best but I am terrified of possible side effects. I hate the unknown and whilst I think this medication could be beneficial, I’m just so frightened. Thanks for any advice you can share.
6

@damien81 

Last reply

damien81

All of us ms'ers getting to know each other better:

Hello, I have a question here for anyone that reads it and is willing to answer, to get to know all of us better. Where are you from originally? I was born in Michigan and lived in New York for a large portion of my life. I went to high school in Virginia Beach and went to undergraduate in New York...
First posted on the Shift.ms app
145

@Drgreth 

Last reply

Drgreth

Kesimpta question

I was taking off my DMT last November I'm getting ready to resume but instead of every month probably quarterly or whatever other month because my immunoglobined ig level has gone too low apparently is there anybody else out there that does less of a k e f i m p t a
First posted on the Shift.ms app
1

@Mikeontheroad 

Last reply

Mikeontheroad

Kaempferherzen - Fighting hearts

Anyone going to the Kaempferherzen meeting in Kassel Germany on 25th July? Seems like a privately organised full day. event for people with chronic illnesses including MS.
First posted on the Shift.ms app
2
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