#k - Shift.ms

@PriyaC

EditedLast reply

I have read that approximately 3-10% of people with MS are oligoclonal band negative ( from the lumbar puncture/spinal fluid results). With my own lumbar puncture next week, it would be really interesting to know how many people that have a firm diagnosis of MS were oligoclonal band negative and positive and whether this has affected symptoms to date/new lesions etc. If you were oligoclonal band negative, how were you diagnosed? MRI findings and symptoms? Or other tests? I think my neurologist mentioned that if I am oligoclonal band negative, they may consider doing something called a CTPET scan…

First posted on the Shift.ms app

2

@IrishNoodl3

Last reply

Hair loss on Kesimpta

So I've searched on the old posts through here on Kesimpta and hair thinning/hair loss, and it seems to be a thing. My nurse said hair loss is not a side affect on Kesimpta and its stress. But I think it is related and maybe not enough reported cases. How are you Kesimpta jabbers finding it?

, United Kingdom

First posted on the Shift.ms app

9

@prettytragedyy

Last reply

I know this may seem off topic

So since my boyfriend told his mom about my ms. She told him how I am sick and he should basically leave me after 8 years of relationship.

First posted on the Shift.ms app

23

@lailai93

EditedLast reply

I don’t know if this ms or pms

I’ve had backache, diarrhoea, constipation, cramps. My TOM hasn’t shown but no other symptoms I do also have pcos. I’m not sure if this a ms symptoms or lady issues. Sorry about the tmi just want answers as it’s so uncomfortable

First posted on the Shift.ms app

2

@Stacyrigg99

Last reply

Ok insurance denied OCREVUS but they approved kesimpta. Problem is I don’t have the extra $2800 a month that it’s gonna cost me. Anybody know of a way to get help with the cost of meds!!! This is ridiculous!! I mean that’s $33,000 a year!!.

Appomattox, United States

First posted on the Shift.ms app

36

@chats21

Last reply

I take Kesimpta 2023 💪🏾

First posted on the Shift.ms app

1

@nesha71

Last reply

First kesimpta

Okay so nurse has just left after going through the first injection....feeling okay at mo but been warned I could feel crap later ...was just wondering how other people's first injection went

Charing, United Kingdom

First posted on the Shift.ms app

29

@Drgreth

Last reply