Looking for
something specific?

So I guess with Ocrevus I'm immunosuppressed now. I'm not really getting a solid answer from any medical professionals in how seriously I need to be with this. Wash my hands and wear a mask? Stay away from snotty kids? Become a hermit? Any advice is good advice. Would also take silly answers to wi...

Hello fellow MSers, does anybody have any tips on fighting colds while we take certain DMTs which lower our immune system? I had Omicron about 4 months ago and thankfully recovered, but since then I have started Kesimpta and have just finished my first month of injections. For the last 3 weeks I ha...

Hi all, MS expert Professor Gavin Giovannoni aka Prof G from Barts is taking part in this webinar from the ZOE COVID study team (they run the big UK COVID symptom app) talking about vaccines and immunosuppressed people, including MSers. It's going out on 28th October at 3pm but will be on youtube fo...

Hi everyone. I’m hoping you’ll be able to help. Where I live there isn’t a big MS community. I find myself a bit confused and no one to ask really😞 I got diagnosed in October 2018 with RRMS. I’m on tecfidera since. In December last year I had my MRI and my neurologist told me I’ve got 2 new lesio...

Hello all My ms nurse has advised I use hormonal contraception now I am on ocrevus (I’m in a committed relationship but had a bad experience with the pill/many pills and stopped a while back). I’m considering getting the mirena coil fitted as it’s a low dose of localised hormones, but am concerned ...

Hi everyone So the Uk has announced the spring covid booster for those over 75 or immunosuppressed. I was diagnosed in November and not yet started treatment. I can't seem to find out if I am eligible but thinking I am not. I thought I would see what happens if I tried to book an appointment, and ...

hey folks, anyone been offered evusheld to prevent covid in UK? it was MHRA approved on 22 March, looks good as it's not a vaccine that needs an immuine response, so bang on for immunosuppressed people seeing posts here from U.S. and France saying had it/been offered due to taking MS immunosuppre...

Hey, just wondering about how cautious I should be whilst having Ocrevus? I don’t fancy having a cough/cold for a prolonged time, but I do want to socialise with people. The hospital did not give me any specific advice about being immunosuppressed. Should I carry on as normal, and hope for the best?...

Hi Not having a great 2022! Having been unwell for four weeks, with fever, extreme fatigue, sore throat my GPs have now just tested my blood for a symptomatic reoccurrence of EBV which I obviously had symptomatically when I was a teenager and then it lies dormant, but apparently it can reoccur in t...

B cells oh B cells you’re great at telling the T cells to attack bad things but leave me alone. Not doing medical words (cause remembering them is an issue) I look at the flu and COVID jabs v Ocrevus as this. In your immune system live B Cells and T Cells. The B cells telling the T cells what to a...

Spotted this interesting-looking webinar from the British Society for Immunology on "COVID-19 vaccines: how effective are they in people with weakened immune systems?" Might be of interest to some here, especially if you're on an immunosuppressing DMT. https://www.immunology.org/events/covid-19-v...

Hi everyone, Looking for some help/advice as I’m feeling pretty confused! I’m newly diagnosed (April this year) and waiting to start treatment on Ocrevus. I’ve had my pneumonia jab in preparation, but now my nurse has advised me to also have my Covid booster jab before starting, to help top up my ...

Hi everyone, I'm looking for advice about Ocrevus and immunosuppression, and would love to hear people's honest experiences. I’m newly diagnosed with RRMS and have agreed on Ocrevus with my neuro team. This is what I wanted and I feel confident in my choice; my doctors feel the same as my lumbar ...

From the Guardian’s COVID news feed - Covid-19 vaccines offer high levels of protection for those with underlying conditions Covid-19 vaccines offer high levels of protection for most people with underlying health conditions or who are immunosuppressed, Public Health England (PHE) has said. New d...

Bonjour (Rodney?), - BoJo HAS IT - really, you're not dreaming. I hope Rishi doesn't. Far from perfect but an order of magnitude better than the Buffoon. IMHO. - If you haven't seen the latest news our esteemed leader, the Tousled Haired Buffon, has tested positive for Covid-19. Whilst I wouldn't t...

After watching C4 News last night Mrs S and I turned to one another, exchanged a look and decided to step it up a gear. She is immunosuppressed with mercaptopurin for Crohns disease. The more we can get done today and tomorrow the better. We live in a flat. Today I am picking up a 99.9% filtering...

After watching C4 News last night Mrs S and I turned to one another, exchanged a look and decided to step it up a gear. She is immunosuppressed with mercaptopurin for Crohns disease. The more we can get done today and tomorrow the better. We live in a flat. Today I am picking up a 99.9% filtering...

I was talking to my GP and asked him how I could ensure 111 or an Out Of Hours (OOH) service know the extent of my immunosuppression. He said: << "I'd suggest if you're happy what we could do, is turn on your additional information sharing. it means that if you have call 111/OOH GP they have...

If you are in the minority with me, those who enjoy going "Full Nerd", then get stuck into this. P. 12 para 4 and 6 make no mention of immunosuppressed patients and I wonder if that is because the use of such medicines is not widespread in China? Enjoy, https://www.who.int/docs/default-source/...

In October 2019, after a year battle of back and forth to many specialists and countless tests and MRIs, I was finally confirmed a diagnosis of RRMS. I have many symptoms for example numbness in my left leg and numbness/burning in pelvic region. My vision is blurred and see tracers and colour spots....