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@MiloBear 

Last reply

MiloBear

Immunosuppressed Risks

I recently had my first dose of Ocrevus and I'm doubting my decision for medication. I'm concerned about the increased risks of hospitalisations, infection and overall poor health. For those who have been on Ocrevus for a long time, have you noticed an increase in poor health or infections leading t...
Bridgend, United Kingdom
  • Ocrevus
  • Treatment
  • Which DMT
  • Mental health
  • Symptoms
  • Money
7

@facemanfacey 

EditedLast reply

facemanfacey

Covid Jab Vs Immunosuppressed

I'm a lucky boy and get to have my second covid jab today. My first one after starting Ocrevus. I heard its a wild ride. Post your experiences here for the lurkers and information seekers x
Grimsby, UK
  • Ocrevus
  • Treatment
  • Healthy living
  • Work and play
8

@facemanfacey 

Last reply

facemanfacey

Immunosuppressed advice.

So I guess with Ocrevus I'm immunosuppressed now. I'm not really getting a solid answer from any medical professionals in how seriously I need to be with this. Wash my hands and wear a mask? Stay away from snotty kids? Become a hermit? Any advice is good advice. Would also take silly answers to wi...
  • Treatment
  • Ocrevus
  • Family and children
  • Work and play
  • Symptoms
7

@Underdog 

EditedLast reply

Underdog

Immunosuppressed and fighting colds - any tips

Hello fellow MSers, does anybody have any tips on fighting colds while we take certain DMTs which lower our immune system? I had Omicron about 4 months ago and thankfully recovered, but since then I have started Kesimpta and have just finished my first month of injections. For the last 3 weeks I ha...
  • Symptoms
  • Treatment
  • Which DMT
  • Healthy living
  • Diagnosis
  • Blurred vision
  • Rebif
8

@scribe 

scribe

Webinar: vaccines & immunosuppressed (with Prof G)

Hi all, MS expert Professor Gavin Giovannoni aka Prof G from Barts is taking part in this webinar from the ZOE COVID study team (they run the big UK COVID symptom app) talking about vaccines and immunosuppressed people, including MSers. It's going out on 28th October at 3pm but will be on youtube fo...
  • Healthy living
  • Coronavirus
  • Work and play
  • Exercise
  • Going out
  • Treatment
  • Work and Study
  • Travel

@justmelove 

justmelove

Doctor "Let Down"

I went to my PCP today and asked some questions (about my skin, oddly enough) that only amounted to the answer that it's probably because of being immunosuppressed, and that because I'm immunosuppressed, it isn't likely to resolve. Just feeling a little down today. Anyone ever have those moments b...
  • Hot and cold
  • Numbness
  • optic neuritis
  • Mental health
  • Diagnosis
  • Exercise
  • Brain fog
  • Steroids
  • Healthy living
  • Disclosure
Deleted

@facemanfacey 

facemanfacey

MS awareness week starts today!

Today is the start of MS awareness week, my first one. I thought I'd share with you guys my awareness post I shared on Facebook; my first MS coming out post in a sense. as a disclamer (i wrote one on my post at the end) I had to over simplify some aspects so I didn't bore the life out of people, so...
Grimsby, UK
  • Diagnosis
  • Symptoms
  • Brain fog
  • MRI
  • Relapsing remitting
  • Healthy living
  • Hot and cold
  • Treatment
  • Exercise
  • Newly diagnosed

@Miby 

Last reply

Miby

Ocrevus side effects

Hi everyone. I’m hoping you’ll be able to help. Where I live there isn’t a big MS community. I find myself a bit confused and no one to ask really😞 I got diagnosed in October 2018 with RRMS. I’m on tecfidera since. In December last year I had my MRI and my neurologist told me I’ve got 2 new lesio...
Las Palmas de Gran Canaria, Spain
  • Diagnosis
  • Ocrevus
  • Treatment
  • Disclosure
  • MRI
  • Work and play
  • Newly diagnosed
  • Relapsing remitting
  • Primary progressive
  • Tysabri
2

@amsut 

Edited

amsut

Hormonal contraception/iud and OCREVUS

Hello all My ms nurse has advised I use hormonal contraception now I am on ocrevus (I’m in a committed relationship but had a bad experience with the pill/many pills and stopped a while back). I’m considering getting the mirena coil fitted as it’s a low dose of localised hormones, but am concerned ...
  • Ocrevus
  • Treatment
  • Symptoms
  • Work and play
  • Fun drugs
  • Relapsing remitting

@Kanga 

Last reply

Kanga

Spring covid booster

Hi everyone So the Uk has announced the spring covid booster for those over 75 or immunosuppressed. I was diagnosed in November and not yet started treatment. I can't seem to find out if I am eligible but thinking I am not. I thought I would see what happens if I tried to book an appointment, and ...
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Healthy living
  • Coronavirus
  • Which DMT
11
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