Shift.ms

1 May 2025 17:19Last reply 3 May 2025 12:18

Discriminated against by Mind charity, pushed into unemployment

Hi all, Hope you’re all doing okay and sorry for the long post 🧡 I’m sharing my experience to raise awareness and hopefully get some support from those who understand what it’s like to live with MS. I’ve been battling multiple sclerosis for a while now, and while it’s hard enough dealing with my ...

London, United Kingdom

@Clairemcgowan81

3 Feb 2025 06:20

immunosuppressed or immunocompromised?

Hi all, I'm taking kesimpta, does this mean I'm immunosuppressed or immunocompromised. Also, If I've had my childhood measles vaccine will I still have immunity?

Glasgow, UK

@justmelove

16 Jan 2025 22:58Last reply 17 Jan 2025 02:56

Sick (again)

I can never seem to fight off sickness myself, either need antibiotics or steroids or I just continue to get worse. I try to remind myself that I'm on an immunosuppressant and have a medical condition that suppresses my immune system, but I always feel so down and defeated by going to the doctors. ...

@Abz671

14 Jan 2025 21:38Last reply 15 Jan 2025 07:09

New lesions so new DMT, advice below?

So I’ve been on Tecfidera and tolerating it very well but I found out today my first MRI on it showed new lesions meaning a change in DMT. The choices I’ve been recommended are Mavenclad or Tysabri. I understand Tysabri is more effective but I’m 24 years old and I don’t want to be in a hospital ever...

First posted on the Shift.ms app

@ppraka66

5 Oct 2024 18:51 EditedLast reply 6 Oct 2024 14:21

Decision to go on medication

Hi , i am 40yrs old and have recently been diagnosed with MS where I had a flare last year, what am confused upon is medication .. how to decide if I really need to be on medication or maintaining a good healthy lifestyle can help me sail through .. very confused and afraid and have no idea how thes...

First posted on the Shift.ms app

@radwithms

22 Sep 2024 22:55 EditedLast reply 26 Sep 2024 15:28

about that really long cold…

Regarding to my last post I went to the A&E to get checked out and guess what? It turned out I had Covid 19+ pneumonia and a lower respiratory tract infection😭I genuinely forget I’m immunospurssed sometimes because that combination truly made me laugh out of shock. No wonder I felt so sick AND ou...

First posted on the Shift.ms app

@paolalav

17 Sep 2024 20:39Last reply 21 Sep 2024 02:57

RRMS and Psoriasis

Hi - this is a tricky question so not sure how many responses I will get ! Anyone happen to be on a biologic drug for psoriasis or athritis and been prescribed an MS drug that has not conflicted with the biologic ? If so what has worked? I’m newly diagnosed and wish to remain on the biologic but ...

First posted on the Shift.ms app

@DominicS

3 Sep 2024 09:40Last reply 6 Sep 2024 19:11

RSV Vaccine

Apparently for pregnant women and older adults only. I'm not an expert, though I wonder why immunosuppressed people are not included like they are for Covid and Flu. Does anyone know? https://www.nhs.uk/vaccinations/rsv-vaccine/

@Laura94

21 Jul 2024 10:43

Post-infusion infection - advice needed!

Hey all, I’ve been on Ocrevus for almost five years now with almost no problems - until this year. I had my most recent treatment in February, and since March I’ve been struggling with persistent UTIs, which have spread to my kidneys and uterus, and more recently had to be hospitalised for pelvic in...

London, United Kingdom

@Lottesmith

18 Jul 2024 17:38

Two immunosuppressants and a whole lot of illness

I've been diagnosed with MS for 4 years now, first presentation was in 2015 however and it's taken til this year (2024) to find a good treatment. I say good treatment because not only do I have MS but I have other diagnoses too and all other treatments have worsened my symptoms of other conditions. ...

Edinburgh, United Kingdom

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