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Registered Company: 06000961

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@Underdog 

EditedLast reply

Underdog

Immunosuppressed and fighting colds - any tips

Hello fellow MSers, does anybody have any tips on fighting colds while we take certain DMTs which lower our immune system? I had Omicron about 4 months ago and thankfully recovered, but since then I have started Kesimpta and have just finished my first month of injections. For the last 3 weeks I ha...
  • Symptoms
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  • Blurred vision
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9

@facemanfacey 

EditedLast reply

facemanfacey

Covid Jab Vs Immunosuppressed

I'm a lucky boy and get to have my second covid jab today. My first one after starting Ocrevus. I heard its a wild ride. Post your experiences here for the lurkers and information seekers x
Grimsby, UK
  • Ocrevus
  • Treatment
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  • Work and play
8

@facemanfacey 

Last reply

facemanfacey

Immunosuppressed advice.

So I guess with Ocrevus I'm immunosuppressed now. I'm not really getting a solid answer from any medical professionals in how seriously I need to be with this. Wash my hands and wear a mask? Stay away from snotty kids? Become a hermit? Any advice is good advice. Would also take silly answers to wi...
  • Treatment
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7

@MiloBear 

Last reply

MiloBear

Immunosuppressed Risks

I recently had my first dose of Ocrevus and I'm doubting my decision for medication. I'm concerned about the increased risks of hospitalisations, infection and overall poor health. For those who have been on Ocrevus for a long time, have you noticed an increase in poor health or infections leading t...
Bridgend, United Kingdom
  • Ocrevus
  • Treatment
  • Which DMT
  • Mental health
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7

@scribe 

scribe

Webinar: vaccines & immunosuppressed (with Prof G)

Hi all, MS expert Professor Gavin Giovannoni aka Prof G from Barts is taking part in this webinar from the ZOE COVID study team (they run the big UK COVID symptom app) talking about vaccines and immunosuppressed people, including MSers. It's going out on 28th October at 3pm but will be on youtube fo...
  • Healthy living
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@Clairemcgowan81 

Clairemcgowan81

immunosuppressed or immunocompromised?

Hi all, I'm taking kesimpta, does this mean I'm immunosuppressed or immunocompromised. Also, If I've had my childhood measles vaccine will I still have immunity?
Glasgow, UK

@andysot 

Last reply

andysot

Tattoos and MS

Does anyone have any idea whether having tattoos is a bad idea for MSers? I've been told to avoid them whilst on steroids as we are immunosuppressed and 'sitting ducks' for infection. I've also been told to check the metal content as I have regular MRIs but just looking for some peace of mind befo...
  • Symptoms
  • Steroids
32

@DominicS 

Last reply

DominicS

RSV Vaccine

Apparently for pregnant women and older adults only. I'm not an expert, though I wonder why immunosuppressed people are not included like they are for Covid and Flu. Does anyone know? https://www.nhs.uk/vaccinations/rsv-vaccine/
  • Work and play
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19

@Farah94 

Last reply

Farah94

Anxiety around immunosuppression

Hi everyone, I'm looking for advice about Ocrevus and immunosuppression, and would love to hear people's honest experiences. I’m newly diagnosed with RRMS and have agreed on Ocrevus with my neuro team. This is what I wanted and I feel confident in my choice; my doctors feel the same as my lumbar ...
  • Diagnosis
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13

@DominicS 

Last reply

DominicS

What A Difference 24h Makes!

After watching C4 News last night Mrs S and I turned to one another, exchanged a look and decided to step it up a gear. She is immunosuppressed with mercaptopurin for Crohns disease. The more we can get done today and tomorrow the better. We live in a flat. Today I am picking up a 99.9% filtering...
  • Symptoms
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11
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