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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Skullsandhearts 

Last reply

Skullsandhearts

Hair thinning question

Okay so I was just diagnosed in November 2024. Since then and a little before that ( but it had stopped ) my hair was falling out. Not bald spots. Just super bad thinning. So many people I have met that have MS say it's common. That and the itching. But my neurologist says neither are related. I sta...
First posted on the Shift.ms app
21

@norfolkgal 

Last reply

norfolkgal

Hair loss

My hair is getting thin. Every time I shower I have to clear the plug hole for all the water to drain & the same every time I brush my hair, brush needs clearing. That's not including the few over the course of the day. I think it's since I started Gilenya last December, certainly getting mo...
  • Treatment
  • Gilenya
  • Which DMT
20

@dulcheisa 

Last reply

dulcheisa

Hair loss

Anyone deals with hair loss?
First posted on the Shift.ms app
18

@AmberCharissa 

Last reply

AmberCharissa

Will I lose my hair?

I read on another MS forum that with Ocrevus many were experiencing significant hair loss?? I haven't yet because I'm only my two half doses in. Dose 2 is in May. Anyone have experienced this with tips to lessen that side effect in the future? Thank you!
First posted on the Shift.ms app
17

@lw2208 

Last reply

lw2208

Tecfidera hair loss

Hiya. Im due to start tec soon. Reading the side effects they seem they can be quite bad however i can probably manage these. The one thing im really worried about is hair loss. Anyone suffered this and if so how bad??? Im trying not to be vain but i have thin hair as it is and my hair is a big part...
  • Treatment
  • Tecfidera
15

@michael 

Last reply

michael

Aubagio and hair loss

I am starting on Aubagio tomorrow and wanted to ask peoples experience? I took Avonex for 10 years, ( luckily no progression? Just hated injecting myself so am giving Aubagio a go. My main concern is the hair loss, how thin does it get, I'm 40 and proud to have thick hair, sorry if that sounds vain.
  • Aubagio
  • Treatment
  • Avonex
  • Symptoms
  • Diagnosis
15

@Noshin 

Last reply

Noshin

Hair loss and Tecfidera

Hi MSers, This is my first post- I think this is an really helpful forum where you are connected to a 'family' who can actually help you by their first hand experiences. Any way I'm beginning to feel quite down because I've lost more than half my hair. I've been taking the necessary vitamin supplem...
  • Tecfidera
  • Treatment
  • Vitamins and supplements
  • Healthy living
  • Diet
15

@KLouise 

Last reply

KLouise

Tecfidera hair loss

Hi everyone, I've been on tecfidera for about ten months now and for the last few months I've been experiencing noticeable hair loss - every time I wash or brush my hair I lose a handful. Has anyone else experienced this? I've noticed a few Internet posts about it, but when I told my MS nurse she sa...
  • Diagnosis
  • Disclosure
15

@rachhh 

Last reply

rachhh

Losing your hair on Tysabri?

Hi folks, I've now been on Tysabri for 3 months and for the past 6 weeks or so I have been losing hair like CRAZY! My doctor says this is not a "known side effect" but I've been reading a bit and there are many people that seem to experience this. I'm sure it's not a "known side effect" because of...
  • Work and Study
  • Symptoms
  • Treatment
  • Tysabri
  • Mental health
14

@supermum1983 

Last reply

supermum1983

Hair on face but not!!

Ive read about it there is a term for it, cant find it 🤣i feel like theres a hair on my face but there isnt, must look nutty when im rubbing my face... anyone else experience this?
  • Diagnosis
14
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