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Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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@RoseRivera1214 

Last reply

RoseRivera1214

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app
3

@Skullsandhearts 

Last reply

Skullsandhearts

Hair thinning question

Okay so I was just diagnosed in November 2024. Since then and a little before that ( but it had stopped ) my hair was falling out. Not bald spots. Just super bad thinning. So many people I have met that have MS say it's common. That and the itching. But my neurologist says neither are related. I sta...
First posted on the Shift.ms app
21

@Krisi 

Last reply

Krisi

Steroids make your hair fall?

Hi I've been on 3 seasons of steroids but I have noticed that my hair is falling more than usual, nothing extraordinary because I have a lot of hair I tend to shed like my dog 🤣😅 but I don't know if it's hormone related or steroids related anyone with any thoughts about this? You have been all ver...
First posted on the Shift.ms app
2

@antoniette 

Last reply

antoniette

I was diagnosed at age 53. With optical nueritis. I used to be a hairs

Im in denial i would love some guidance...I look fine so i hear alot of people say ..You look fine.....deep inside I'm devasted and sad ,mad. MY Dr agrees npt to work. Ill take any advice thanks
Ewing Township, United States
2

@Sureth1 

Sureth1

I can put my cup on and do my hair and I am South Africa African. I can talk a lot and is very friendly.

First posted on the Shift.ms app

@AmberCharissa 

Last reply

AmberCharissa

Will I lose my hair?

I read on another MS forum that with Ocrevus many were experiencing significant hair loss?? I haven't yet because I'm only my two half doses in. Dose 2 is in May. Anyone have experienced this with tips to lessen that side effect in the future? Thank you!
First posted on the Shift.ms app
17

@Tasha_ 

EditedLast reply

Tasha_

Ocrevous and hair loss?

Hello, had my first full dose about a month ago. Realising my hair is coming out a lot.. is this a side effect? Also my skin is dry, is this maybe a side effect? Thanks in advance!
  • Treatment
5

@Ceire 

Last reply

Ceire

Hair Loss Tysabri?!

For all my Tysabri peeps - maybe so for the ladies - hair loss on Tysabri?! While it's not a known side effect, I have noticed my hair has gone so thin since I started on Tysabri! As well as that I am loosing a significant amount of hair on a daily basis, especially when washing my hair! Anyone expe...
First posted on the Shift.ms app
7

@Liwia 

EditedLast reply

Liwia

Partner’s hair loss

Hello. My partner is on ocrevus and he’s got MS. He’s been having quite a noticeable amount of hair loss over the past few months . Is this normal with MS or is it a sign of some deficiency that isn’t MS related ? I’d appreciate some advice since I’m learning to a understand his MS and how to help.#...
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First posted on the Shift.ms app
7

@ruhena2301 

ruhena2301

Hair loss / hair growth

Has anyone experienced hair loss or hair growth with ocrevus?
First posted on the Shift.ms app
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