Diagnosis finally comfirmed
After 18 long years, being diagnosed at 16, then having the diagnoses changed at 20, then reconfirmed as MS last week I am now starting to look at my symptoms for what they are rather than me just struggling with life.
I was put on Duloxetine 60mg daily a few months ago as a neuropathic pain killer and my neurologist would like to start me on treatment ASAP.
He has given me some options to research then consider and I wanted to ask for some informed advice and opinions. He has given me a few but suggests the high efficiency route which leaves Ocrelizumab and Ofatumumab.
Also, my mental health is awful, depression and anxiety being an ongoing thing for me since I was 16.Fatigue is another huge factor for me in my daily living.
Is there anything I that can be done to help ease either of these?
I am seriously struggling with my daily life, fatigue going hand in hand with my poor mental health and some days I just don't have the energy or get up and go to do anything and rarely leave the house.
I've had to step back from my job as a nursery nurse as I've been unwell since January, but I dont think childcare is suitable for me to go back to and having to try to think about what I want to do when I am able to go back to work feels impossible.
Any thoughts, opinions or advice would be amazing.
Thank you for reading.
https://youtu.be/T2wYmbCjZMM?si=Bc9A818gsBV9_VTn https://youtu.be/E4eMh3y0vrY?si=eKqyCMd-1tWvcJ-i
Wow that must have been so hard, not getting a diagnosis for such a long time, no wonder you’re struggling. Great that you’re looking at DMTs. They don’t solve everything but at least progression should slow down (or stop). I don’t have an opinion on the DMTs - I’m on Teriflunomide and I think it’s helping me. but it looks like you’ll get one of the ‘big guns’, which is great! I also struggle with fatigue (mine is on and off, often seems to hit me randomly). Stuff that has helped me: Meditation; doing exercise (even a short walk) in small chunks; getting outside; eating healthily (avoiding sugar, trying to eat lots of veg). I wonder if you could do some kind of online/remote work (That’s what I do). OK this was a rather long post! All strength to you my dear. I’m in South Africa so rather far away, but happy to chat if that helps.