New diagnosis
My dad died in 2001 from ms, 5 years after diagnosis. Last August I was diagnosed with ms by a private neurologist. I was then referred to nhs neurologist who I saw in November. Since then I’ve had an mri and am waiting for a lumber puncture. I’ve had great help from the nurse, physio and OT but I’m sorry to say that the neurologist has been in my opinion lacking. I’m going through a lot of stress and depression due to the constant waiting and delays. The latest is that my referral for a lumber puncture has been lost.
When I was first diagnosed (with rrms) I had problems in my left hand that has since ‘spread’ to my left leg. The latest, since two weeks ago is vision problem. Optician today verified my eyes are not moving ax fast as they should. I honestly feel hopeless. I know there are DMTs that will help but right now it honestly feels like the neurologist doesn’t care at all and that the best thing is I die or am too sick to be able to receive expensive DMTs
Hi, I was about to reply to this post and saw your reply to mine. I’m sorry you’re going through this. I hope you can get some answers/support soon - I totally understand your frustration.