#betaferon - Shift.ms

23 Jul 2013 12:21Last reply 29 Jul 2013 10:17

Travelling With Meds

Hi. What's your experience of travelling with Meds? It's always a big concern for me. I'd love to hear some ideas for keeping meds cool whilst travelling etc. My experiences are the following: 1) Camping in the UK a couple of years ago. Spent most of the long weekend moving my bag of meds (Betafer...

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@kimcarlson

14 Jun 2013 10:42Last reply 19 Jun 2013 14:58

Your medication how does it effect you? Did you have to change medication?

I know everyone's MS is different and probably their reaction to the medication is too. I was just diagnosed with MS in Dec. 2012. It seems like since I started taking Betaferon, I am so sleepy and also find it hard to concentrate and remember things. Yes, before I started the medication, I probabl...

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@hkittypink

2 May 2012 10:09Last reply 7 May 2012 05:13

How come I suddenly feel like this!

Hi all, Not been on here a while, i suppose because everything's been OK, so I'm sorry for that. Just been feeling really down and scarred again. I've been on Betaferon for over 2 years and not had any relapses *touch wood* since early 2009 (before diagnosis) but my symptoms have progress (toi...

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@Anawith1n

2 Dec 2015 16:36Last reply 2 Dec 2015 21:30

MS is not my friend anymore. :(

Yes 16 years with this so called friend MS. It's been playing up lately, well his angry WHY? Well he hates the MEDS I've taken betaferon 1 month HATED IT. Nothing for 15 years was happy. Gylenya for a year he was happy for the 1st few months, the unhappy, had to get off them. Copaxone 2 months co...

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@Sternschnuppe

19 Oct 2014 10:38Last reply 19 Oct 2014 12:02

Really, MS?!?

I was diagnosed with MS in March this year. However, my medical history goes back to 1997. Back then, I was diagnosed with Uveitis. Ever since then my doctors suspect that I might have MS, but MRI and other test results have always been negative. Mid-2011 I saw double. Again MRI and other tests, b...

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@FXMS

12 Sep 2018 06:18Last reply 12 Sep 2018 20:34

βIFN-1a/1b while waiting Ocrevus?

Hey! My neurologist thinks Ocrevus is the best choice for my early PPMS. Because of insurance paperwork, I have to wait until march-june 2019 to get it though. Is there any benefit in starting treatment with βIFNs (Rebif or Betaferon/Betaseron) for less than a year? Or would you wait to start Ocr...

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@Anawith1n

24 Apr 2014 21:23Last reply 24 Apr 2014 22:32

MS was given to us for a reason.

Hi guys thank, one thing is be positive and happy, we got this disease for a reason! I did not take any meds for 15 years only for the first month when I got diagnosed with MS I was on betaferon for a month. Got the worse side effects so I was out off taking anything for 15 years.Last month I decide...

1

@meg

7 Jan 2015 18:23

Diabetes and MS

I've been noticing how many like me have both diabetes and MS. As they are a both autoimmune diseases I suppose it's hardly surprising. When the Betaferon stopped working for me and I was going through the tests to see what alternatives were suitable, I decided to try Kelinek's diet advice. Vegan p...

@lorag

13 Nov 2019 14:30

Anxiety freezing injecting needles

Does anybody else Start to freeze and get panic attacks when injecting themselves with medication? I’ve been on betaferon for over 6 months now and have started to freeze when using a auto injector. This has happened to me before when I was in Avonex and Rebif. I have been on tablet meds 3 differe...

@Phillip

24 Sep 2015 13:50Last reply 5 Mar 2021 16:41

Best Treatment for Relapsing Remitting

I am a 25 year old man from Ireland. I was diagnosed with Relapsing Remitting MS in September 2015. I have been six treatments to choose from 1) Tecfidera 2) Plegridy 3) Avonex 4) Rebif 5)Copaxone 6) Betaferon. If anybody is on any of these and has any advice or recommendations I would be delighted ...

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@hkittypink

11 Apr 2010 22:00Last reply 16 Apr 2010 13:04

So confused

I was diagnosed last August/September. Maybe it's just been head in the sand for me. But here's where I'm at - I'm scarred for the future - home, work and HATE doing betaferon with avengence. Wish I could turn back and not go to the GP, not tell people at work. I would still be me...

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@Yorkel505

21 Feb 2021 17:31 EditedLast reply 21 Apr 2021 00:06

Moving to Mavenclad after one dose of Lemtrada

Hello all, Brand new here. I guess I wanted to share my situation and get some words of encouragement! I have been living with RRMS since 2006. Started with betaferon for 10years, hated the injections. Then got moved to Gilenya for 3 years which unfortunately didn't cover me very well. I had two rel...

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@Numpty

26 Jun 2016 13:48Last reply 1 Jul 2016 19:47

Not on Treatment

I was dianosed in 2001 and was started on Betaferon straight after, but had to stop after several years because the sides effects started getting bad. I wasn't offered any alternative after that and my new nueroligist has told me there are no new treatments. I've been drug free since 2010, but it's ...

Symptoms

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@Rodrigo_Molina

6 Nov 2020 01:34Last reply 9 Nov 2020 22:22

On relapse

Currently on a relapse, but I was kinda expecting it. Due to the covid Public health has been overflow for some months now I had to suspend my betaferon.

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@hkittypink

15 Dec 2010 23:00Last reply 16 Dec 2010 12:42

Low Blood Count

Hi Just had a call from my nurse saying I have a low blood count and I am to stop Betaferon immediately for 1 month. Anyone else had this? Worried that I might relapse and will have to chang drugs, just when I'm getting use to this one. Feeling bery unfestive right at this moment. x

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@GillyMoore

7 Feb 2021 10:49Last reply 7 Feb 2021 15:50

Diagnosed after childbirth

Hi everyone, I am very new to this.... I was diagnosed back in October, four days after giving birth to my first child. I had no symptoms only double vision in August which they diagnosed as a small stroke. After giving birth, my left leg went numb for a few hours. I thought it was down to childbirt...

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@cherish

1 Oct 2015 04:54Last reply 1 Oct 2015 08:22

Extavia......

Morning all. I think I've been on shift for around 4/5 months and never came across anyone on extavia? Is it bcoz it's known as another name too? Maybe it's also known as interferon? But havnt seen anyone on 'interferon' neither. Lol. Or is it the 'betaferon'?

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@huseyinpeker

1 Oct 2020 12:52Last reply 1 Oct 2020 17:28

rebound risk when moving from gilenya to mavenclad

Hello, armful of love from turkey .. my wife has been sick with ms for 15 years. He used betaferon and copaxone in the early stages of his disease, and when these treatments were not effective, he switched to tysabri. He used tysabri for 3 years. Although we were very pleased, we had to quit when t...

Düzce, Türkiye

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@Kylie1982

23 Dec 2013 01:19Last reply 5 Jul 2015 15:42

Tecfidera reviews wanted! Anyone else on this?

Just wondering if anyone else out there has made the switch to Tecfidera? I used to be on Copaxone but hated the needles so have switched to the pills! They're not going so well at the moment! I'm on week 3 and have terrible cramping in my stomach, nausea, headaches, bloating, indigestion and reflux...

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@f3ng5hu1

12 Dec 2012 15:01Last reply 24 Dec 2012 16:37

Dmd's too early?

Hi all, sorry not been about much just been really busy with the holidays drawing near. I saw a lady Doc at the hospital yesterday for a review. My on and off symptoms have slowed down a lot, my main ongoing problem is my right leg which is decidedly dodgy most days especially when walking any...

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