Shift.ms
Donate
  • Forum
  • Find MSers
  • Buddy Network
  • Films
  • Blogs
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

© 2021 Shift.ms

HomeNotificationsWrite PostInbox
No description set
Found 320 results (page 2)

@kimcarlson

14 Jun 2013 10:42Last reply 19 Jun 2013 14:58

kimcarlson

Your medication how does it effect you? Did you have to change medication?

I know everyone's MS is different and probably their reaction to the medication is too. I was just diagnosed with MS in Dec. 2012. It seems like since I started taking Betaferon, I am so sleepy and also find it hard to concentrate and remember things. Yes, before I started the medication, I probabl...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Fatigue
  • Treatment
  • Betaferon
  • Work and play
  • Work and Study
4

@hkittypink

2 May 2012 10:09Last reply 7 May 2012 05:13

hkittypink

How come I suddenly feel like this!

Hi all, Not been on here a while, i suppose because everything's been OK, so I'm sorry for that. Just been feeling really down and scarred again. I've been on Betaferon for over 2 years and not had any relapses *touch wood* since early 2009 (before diagnosis) but my symptoms have progress (toi...
  • Diagnosis
  • Healthy living
  • Mind and body
  • Symptoms
  • Balance
  • Brain fog
  • Fatigue
  • Mental health
  • Relapses
  • Spasticity
  • Treatment
  • Betaferon
  • Work and play
  • Work and Study
4

@Anawith1n

2 Dec 2015 16:36Last reply 2 Dec 2015 21:30

Anawith1n

MS is not my friend anymore. :(

Yes 16 years with this so called friend MS. It's been playing up lately, well his angry WHY? Well he hates the MEDS I've taken betaferon 1 month HATED IT. Nothing for 15 years was happy. Gylenya for a year he was happy for the 1st few months, the unhappy, had to get off them. Copaxone 2 months co...
  • Symptoms
  • Relapses
  • Steroids
  • Treatment
  • Betaferon
  • Copaxone
  • Which DMT
  • Work and play
  • Travel
3

@Sternschnuppe

19 Oct 2014 10:38Last reply 19 Oct 2014 12:02

Sternschnuppe

Really, MS?!?

I was diagnosed with MS in March this year. However, my medical history goes back to 1997. Back then, I was diagnosed with Uveitis. Ever since then my doctors suspect that I might have MS, but MRI and other test results have always been negative. Mid-2011 I saw double. Again MRI and other tests, b...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Mental health
  • Relapses
  • Treatment
  • Betaferon
  • Tecfidera
  • Which DMT
3

@FXMS

12 Sep 2018 06:18Last reply 12 Sep 2018 20:34

FXMS

βIFN-1a/1b while waiting Ocrevus?

Hey! My neurologist thinks Ocrevus is the best choice for my early PPMS. Because of insurance paperwork, I have to wait until march-june 2019 to get it though. Is there any benefit in starting treatment with βIFNs (Rebif or Betaferon/Betaseron) for less than a year? Or would you wait to start Ocr...
  • Diagnosis
  • Treatment
  • Betaferon
  • Rebif
  • Primary progressive
  • Ocrevus
2

@Anawith1n

24 Apr 2014 21:23Last reply 24 Apr 2014 22:32

Anawith1n

MS was given to us for a reason.

Hi guys thank, one thing is be positive and happy, we got this disease for a reason! I did not take any meds for 15 years only for the first month when I got diagnosed with MS I was on betaferon for a month. Got the worse side effects so I was out off taking anything for 15 years.Last month I decide...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Fatigue
  • Treatment
  • Betaferon
  • Gilenya
  • Which DMT
  • Work and play
  • Positives of MS
1

@meg

7 Jan 2015 18:23

meg

Diabetes and MS

I've been noticing how many like me have both diabetes and MS. As they are a both autoimmune diseases I suppose it's hardly surprising. When the Betaferon stopped working for me and I was going through the tests to see what alternatives were suitable, I decided to try Kelinek's diet advice. Vegan p...
  • Healthy living
  • Diet
  • Mind and body
  • Symptoms
  • Bladder and bowel
  • Mental health
  • Relapses
  • Treatment
  • Betaferon
  • Gilenya
  • Work and play
  • Going out

@lorag

13 Nov 2019 14:30

lorag

Anxiety freezing injecting needles

Does anybody else Start to freeze and get panic attacks when injecting themselves with medication? I’ve been on betaferon for over 6 months now and have started to freeze when using a auto injector. This has happened to me before when I was in Avonex and Rebif. I have been on tablet meds 3 differe...
  • Symptoms
  • Hot and cold
  • Mental health
  • Treatment
  • Avonex
  • Betaferon
  • Rebif

@Phillip

24 Sep 2015 13:50Last reply 11 Oct 2020 13:33

Phillip

Best Treatment for Relapsing Remitting

I am a 25 year old man from Ireland. I was diagnosed with Relapsing Remitting MS in September 2015. I have been six treatments to choose from 1) Tecfidera 2) Plegridy 3) Avonex 4) Rebif 5)Copaxone 6) Betaferon. If anybody is on any of these and has any advice or recommendations I would be delighted ...
  • Treatment
  • Relapsing remitting
  • Diagnosis
  • Newly diagnosed
  • Rebif
  • Copaxone
  • Avonex
  • Which DMT
  • Tecfidera
  • Relapses
67

@hkittypink

11 Apr 2010 22:00Last reply 16 Apr 2010 13:04

hkittypink

So confused

I was diagnosed last August/September. Maybe it's just been head in the sand for me. But here's where I'm at - I'm scarred for the future - home, work and HATE doing betaferon with avengence. Wish I could turn back and not go to the GP, not tell people at work. I would still be me...
12

@Numpty

26 Jun 2016 13:48Last reply 1 Jul 2016 19:47

Numpty

Not on Treatment

I was dianosed in 2001 and was started on Betaferon straight after, but had to stop after several years because the sides effects started getting bad. I wasn't offered any alternative after that and my new nueroligist has told me there are no new treatments. I've been drug free since 2010, but it's ...
  • Symptoms
8

@Yorkel505

21 Feb 2021 17:31 EditedLast reply last Saturday at 18:16

Yorkel505

Moving to Mavenclad after one dose of Lemtrada

Hello all, Brand new here. I guess I wanted to share my situation and get some words of encouragement! I have been living with RRMS since 2006. Started with betaferon for 10years, hated the injections. Then got moved to Gilenya for 3 years which unfortunately didn't cover me very well. I had two rel...
  • Treatment
  • Lemtrada
  • Relapsing remitting
  • Mavenclad
  • Gilenya
  • Diagnosis
  • Healthy living
  • Tysabri
  • Disclosure
  • Work and play
8

@Rodrigo_Molina

6 Nov 2020 01:34Last reply 9 Nov 2020 22:22

Rodrigo_Molina

On relapse

Currently on a relapse, but I was kinda expecting it. Due to the covid Public health has been overflow for some months now I had to suspend my betaferon.
  • Relapses
  • Symptoms
  • Healthy living
  • Mental health
  • Treatment
  • Coronavirus
4

@hkittypink

15 Dec 2010 23:00Last reply 16 Dec 2010 12:42

hkittypink

Low Blood Count

Hi Just had a call from my nurse saying I have a low blood count and I am to stop Betaferon immediately for 1 month. Anyone else had this? Worried that I might relapse and will have to chang drugs, just when I'm getting use to this one. Feeling bery unfestive right at this moment. x
2

@GillyMoore

7 Feb 2021 10:49Last reply 7 Feb 2021 15:50

GillyMoore

Diagnosed after childbirth

Hi everyone, I am very new to this.... I was diagnosed back in October, four days after giving birth to my first child. I had no symptoms only double vision in August which they diagnosed as a small stroke. After giving birth, my left leg went numb for a few hours. I thought it was down to childbirt...
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Symptoms
  • Tecfidera
  • Which DMT
  • Numbness
  • Disclosure
  • Blurred vision
  • MRI
2

@cherish

1 Oct 2015 04:54Last reply 1 Oct 2015 08:22

cherish

Extavia......

Morning all. I think I've been on shift for around 4/5 months and never came across anyone on extavia? Is it bcoz it's known as another name too? Maybe it's also known as interferon? But havnt seen anyone on 'interferon' neither. Lol. Or is it the 'betaferon'?
  • Treatment
  • Rebif
  • Positives of MS
1

@huseyinpeker

1 Oct 2020 12:52Last reply 1 Oct 2020 17:28

huseyinpeker

rebound risk when moving from gilenya to mavenclad

Hello, armful of love from turkey .. my wife has been sick with ms for 15 years. He used betaferon and copaxone in the early stages of his disease, and when these treatments were not effective, he switched to tysabri. He used tysabri for 3 years. Although we were very pleased, we had to quit when t...
Düzce, Türkiye
  • Gilenya
  • Treatment
  • Work and play
  • Mavenclad
  • Ocrevus
  • Fun drugs
  • Pregnancy
  • Relationships
  • Copaxone
  • Tysabri
1

@Kylie1982

23 Dec 2013 01:19Last reply 5 Jul 2015 15:42

Kylie1982

Tecfidera reviews wanted! Anyone else on this?

Just wondering if anyone else out there has made the switch to Tecfidera? I used to be on Copaxone but hated the needles so have switched to the pills! They're not going so well at the moment! I'm on week 3 and have terrible cramping in my stomach, nausea, headaches, bloating, indigestion and reflux...
  • Symptoms
  • Dizziness
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Tecfidera
  • Work and play
  • Fun drugs
  • Going out
  • Plegridy
  • Extavia
72

@f3ng5hu1

12 Dec 2012 15:01Last reply 24 Dec 2012 16:37

f3ng5hu1

Dmd's too early?

Hi all, sorry not been about much just been really busy with the holidays drawing near. I saw a lady Doc at the hospital yesterday for a review. My on and off symptoms have slowed down a lot, my main ongoing problem is my right leg which is decidedly dodgy most days especially when walking any...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Rebif
  • Which DMT
  • Plegridy
  • Extavia
32

@namansareen88

15 May 2012 06:46Last reply 26 Dec 2012 10:15

namansareen88

First Avonex injection almost killed me!!!!!

So I took my first Avonex injection yesterday. I was on Rebif before and it used to hurt like hell. The fact that I was meant to take it thrice a week didn't help either! I took the Avonex yesterday and even though I was sorta freaked out after reading the literature, it didn't hurt at all!! I was e...
  • Symptoms
  • Blurred vision
  • Fatigue
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Plegridy
  • Extavia
32
PreviousNext page