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Recent activityNewest posts

@DanR 

17 Dec 2019 17:38Last reply 21 Mar 2024 22:47

DanR

Aubagio washout using Colestyramine

Hello all, I wanted to write this post as I haven’t seen any others about it... so I came to the conclusion with my neuro to stop taking aubagio due to hair loss/thinning. We decided I needed to come off it ASAP so I can start a new treatment (we’re looking at tecfidera) in order to start new treatm...
  • Treatment
  • Aubagio
  • Tecfidera
  • Work and play
  • Disclosure
  • Diagnosis
  • Hot and cold
  • Symptoms
3

@AmyJonty 

19 Dec 2022 13:19Last reply 29 Mar 2023 19:22

AmyJonty

Ocrevus and washout period before pregnancy

Hello! I was wondering if anyone had any advice regarding the washout period for Ocrevus? Before trying for a baby. Has anyone had any experience of getting pregnant after Ocrevus? And how long did you wait before ending treatment and trying? The advice I was given originally was 12 months and have ...
  • Ocrevus
  • Treatment
  • Pregnancy
  • Work and play
  • Disclosure
  • Diagnosis
  • Family and children
  • Symptoms
  • Lemtrada
  • Relapsing remitting
5

@julie1975 

29 Mar 2023 12:03

julie1975

Aubagio washout

Finally started my Aubagio washout today after going to the Queen Elizabeth Hospital in Birmingham this morning. Had the first dose as soon as I got back and I have to say it's not bad tasting at all. I was expecting it to be really fowl after reading other people's accounts of it. I just hope I tol...
  • Treatment
  • Aubagio
  • Symptoms
  • Diagnosis
  • Tecfidera
Deleted

@julie1975 

9 Mar 2023 12:06

julie1975

Aubagio washout

Well, I've now stopped my Aubagio tablets and waiting on the washout. Does anyone know in the uk, how long it takes to come through? Already been nearly 2 weeks since my last Aubagio tablet. Waiting on a call from the QE hospital in Birmingham. MS nurse has emailed them. Still nothing. Just want it ...
  • Aubagio
  • Treatment
  • Symptoms
  • Relapses
  • Diagnosis

@leanne411 

11 Nov 2016 15:28Last reply 23 Dec 2021 07:27

leanne411

Gilenya washout

Hi I have just been agreed to start Lemtrada in Feb. I have to have a wash out from Gilenya for three months which is really stressing me out. Doc won't prescribe an injectable to take for protection during this time. Anyone else been in this situation, did you relapse? Did you get prescribed anyt...
  • Gilenya
  • Treatment
  • Relapses
  • Symptoms
  • Lemtrada
4

@claref 

27 Jan 2019 12:36Last reply 17 Oct 2019 06:04

claref

Tecfidera- washout period?

Hi all, I'm in the process of changing from Tecfidera to Copaxone, so that we can try for a baby. Within my team, I've had varying answers to how long I should be off Tecfidera before trying to conceive. Ranging from 1 month - 6 months. Just wondering what advice you've all had? Thanks in adv...
  • Treatment
  • Copaxone
  • Tecfidera
  • Work and play
  • Family and children
5

@diagonalline 

7 Dec 2018 16:28Last reply 14 Dec 2018 08:04

diagonalline

Tecfidera washout - starting Lemtrada

Question for people who were on Tecfidera and then started Lemtrada: How long were you off Tecfidera before you started Lemtrada? Did you have to wait for you lymphocytes to return to normal? I currently see 2 different MS Neurologists and I’ve been given 2 different answers - so I’m interested in h...
  • Treatment
  • Lemtrada
  • Tecfidera
2

@emmadarl 

23 Oct 2018 16:53Last reply 23 Nov 2018 20:53

emmadarl

Aubagio Wash Out

What can I expect from the wash out after being on Aubagio? Is it going to disrupt my life? Am I going to be running to the loo all day at work? Should I expect vomiting and diarrhoea? Any advice welcome.
  • Healthy living
  • Exercise
  • Symptoms
  • Bladder and bowel
  • Treatment
  • Work and play
  • Aubagio
5

@rebornspirit 

25 Feb 2016 14:16Last reply 26 Feb 2016 11:16

rebornspirit

Fatigue during Tysabri Washout Phase?

Hi everyone. My last Tysabri infusion was Jan 4. I'll be starting Lemtrada on March 7. I was never one to feel tired prior to each Ty infusion, but I'm wondering if this washout thing is different. I mean today, my thoughts are running so slow, and making decisions is like a total no go. And eac...
  • Healthy living
  • Exercise
  • Symptoms
  • Fatigue
  • Lemtrada
  • Tysabri
2

@Namcha 

22 Jan 2025 03:59Last reply 22 Jan 2025 16:58

Namcha

Drug Switch

Hi! Has anyone switched from kesimpta to ocrevus. If yes, what was the washout protocol followed?
Warangal, India
4
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