Looking for
something specific?

Hello! I was wondering if anyone had any advice regarding the washout period for Ocrevus? Before trying for a baby. Has anyone had any experience of getting pregnant after Ocrevus? And how long did you wait before ending treatment and trying? The advice I was given originally was 12 months and have ...

Hi I have just been agreed to start Lemtrada in Feb. I have to have a wash out from Gilenya for three months which is really stressing me out. Doc won't prescribe an injectable to take for protection during this time. Anyone else been in this situation, did you relapse? Did you get prescribed anyt...

Hello all, I wanted to write this post as I haven’t seen any others about it... so I came to the conclusion with my neuro to stop taking aubagio due to hair loss/thinning. We decided I needed to come off it ASAP so I can start a new treatment (we’re looking at tecfidera) in order to start new treatm...

Hi all, I'm in the process of changing from Tecfidera to Copaxone, so that we can try for a baby. Within my team, I've had varying answers to how long I should be off Tecfidera before trying to conceive. Ranging from 1 month - 6 months. Just wondering what advice you've all had? Thanks in adv...

Question for people who were on Tecfidera and then started Lemtrada: How long were you off Tecfidera before you started Lemtrada? Did you have to wait for you lymphocytes to return to normal? I currently see 2 different MS Neurologists and I’ve been given 2 different answers - so I’m interested in h...

What can I expect from the wash out after being on Aubagio? Is it going to disrupt my life? Am I going to be running to the loo all day at work? Should I expect vomiting and diarrhoea? Any advice welcome.

Hi everyone. My last Tysabri infusion was Jan 4. I'll be starting Lemtrada on March 7. I was never one to feel tired prior to each Ty infusion, but I'm wondering if this washout thing is different. I mean today, my thoughts are running so slow, and making decisions is like a total no go. And eac...

Hi everyone I have stopped taking Gilenya today in order to start the 1 month 'wash out' period required before changing to Kesimpta (I have treatment failure on Gilenya having just had a relapse). Has anyone else been through the Gilenya wash out period? I'm fearful of having some sort of rebound...

problems with wound healing while on Aubagio hello, im kinda new here.. My question is does anybody else have problems with wound healing. I had a total hysterectomy October 2020, and have had a variety of issues all dealing with the fact that it just wont heal. Had a 2nd surgery to remove scar tis...

hello, im kinda new here.. My question is does anybody else have problems with wound healing. I had a total hysterectomy October 2020, and have had a variety of issues all dealing with the fact that it just wont heal. Had a 2nd surgery to remove scar tissue that was turning gangrene September 2021,...

Hi everyone! So I stopped Tecfidera cold Turkey this past Monday. My neurologist said no washout period was required between coming off of Tecfidera and starting Ocrevus. Was anyone else’s anxiety through the roof after stopping Tecfidera? I had restless legs, shakes, agitation and extremely high an...

Been to see my ms nurse this morning about my treatment. Hopefully will be starting Kesimpta soon after the washout for Aubagio and blood tests. Has anyone done the washout to get Aubagio out of your body?

Hi there I am hoping to start a family. In preparation for this and for personal reasons I decided to stop taking my Tecfidera and my 5 other prescribed medications. I of course have been advised of the risk of relapse which i understand. I have been offered Ocrevus which I am extremely grateful fo...

Hi all - in April I agreed with my neurologist to switch from tecfidera to tysabri due to increased activity in my MRI. I’ve done the various tests that need to be done before starting Tysabri, but am still waiting for confirmation of when I’ll start, I’m conscious that I’ve been told I’ll have a mo...

Hi Everyone. I was diagnosed with RRMS 16 and a half years ago. Everything was plodding along but then I changed medicines and in the washout from Fingolimod, suffered a catastrophic 'rebound' relapse and wound up in hospital for 2 months. That was late last year Nov '19 - late Dec '19. Since leavin...

So I have a date in January and on that date I find out if I am one of the patients who is going to receive a Stem Cell Transplant or the DMT side of the randomised clinical trial, the Ocreveus Infusion. Having learnt a lot about Stem Cell therapy over the last few weeks, I now appreciate how fortu...

I won’t deny that mostly I’m just posting this to get it off my chest. My last mri showed 3-4 new lesions despite no apparent symptoms, so the decision was to stop Gilenya and try something else. Obviously I had to wait for the Gilenya to wash out the system and get heaps more tests before decidin...

I won’t deny that mostly I’m just posting this to get it off my chest. My last mri showed 3-4 new lesions despite no apparent symptoms, so the decision was to stop Gilenya and try something else. Obviously I had to wait for the Gilenya to wash out the system and get heaps more tests before decidin...

Hi all, haven't be on here for a long time! So long in fact I needed to reset my password (but let's be honest that's not always a long time). I am starting Ocrevus on Monday... I feel like I have been waiting forever... I stopped Aubagio on Christmas eve last year, started washout drinks and half w...

Hi, first post. I was diagnosed almost 7 years ago, in 2013. Initially, I was diagnosed with PPMS, this was changed to RRMS a year later after a big relapse that made it difficult to speak and walk. Almost straight away, I was put on Baclofen and began 2 years of Tysabri. Eventually, I was able to w...