It's a long story, I just need to get it off my chest.
Hi there,
I am newly diagnosed as of January 2024 and have started my first DMT Mavenclad in April 2024. Note - I am 32
I feel like I am going crazy worrying and being anxious about things I cannot control.. My now husband and I have been together for 14 years, he also has MS, he was diagnosed before we met and was already on rebif. We were not at a point in our lives that we were ready to start a family, when we did start to discuss family planning his neuro wanted him to start on lemtrada. He completed his treatment 2020/2021, we got engaged in 2022 and then started planning our wedding so family planning was put on pause.. then I began having episodes of extreme vertigo, dizzy spells and difficulty keeping my balance. We got married in August 2023, my family doctor ordered an MRI just in case because the vertigo was happening more often and for longer periods and worsening severity, we were shocked to find lesions, I'm sure you all know the procedure after that.. š«£
The point of my story/rambling.. I cannot try to conceive until the fall of 2025 after treatment and washout period.. I also have PCOS.
Why am I so worried about pregnancy? And all the things I cannot control going wrong š I feel like I am out of my mind, with what ifs. I hate to think negatively.. but I just cannot help it ??
Has anyone conceived after Mavenclad?
Is anyone else in a similar situation ?
I know that he two of us having MS seems to be a shocking situation to most of our doctors (we now share neuro appointments to save time)
I also want to add... My husband is an incredible support, I already had the knowledge being his support but it is very different when it is yourself and he gave me such care, grace and understanding.
Again sorry for rambling, just looking for some insight.. to hear your story.. I feel like all I talk about with my husband is MS, because it is "new" for me.. I'm sure he's tired of my rambling too š
Thanks for listening !
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Welcome and good luck with everything! I'm sure you'll find lots of support, advice and people to bounce things off on here š
I don't have any experience with mavenclad, but I have been in similar place where I wanted children and my only option was copaxone. Copaxone you can use whilst pregnant also, so it seemed necessary for what I wanted. Wondering if that's an option for you? I had my little boy after coming off that but unfortunately after pregnancy my MS is very active and I've been told I need to be on a dmt. I've been advised kesimpta or ocrevus and I'm nervous because as much as I have only just had my son, I do want more children and I'm 31 now, so time is never on our side after 30. I feel your worry though! Might be worth searching here 'mavenclad and pregnancy?' - someone may have asked similar questions.