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Well after a few near breakdowns and a boat load of stress finally been given a solid diagnosis (rrms) last mri shows no signs of activity and also been told I’m going to be starting my Ocrevus treatment in January! Buzzing does not even come close! Today is a good day 🤙🏻

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

For those of you well established on Ocrevus, has it exasperated your symptoms in any way or present anything new? I recently had an infusion following a 7 month delay and am now experiencing bladder incontinence (new), leg tremors (not new, but much worse), a funky eye brow tremor and a general ...

Are you the type of person who wants to know all of the facts about progression as early as possible, or would you rather cross that bridge when you get to it? There can be a lot of disparity surrounding the topic of progression, so let us know your thoughts down below 👇 Sharing your opinions c...

Sorry for this not sure if it's been mentioned before but for you guys with progressive Ms I read about a drug called MD1003 which appears to be high dose vitamin h, looks good so far, might give some here a lift

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...