Shift.ms

19 Dec 2018 17:11Last reply 20 Dec 2018 07:04

Progress...

Well after a few near breakdowns and a boat load of stress finally been given a solid diagnosis (rrms) last mri shows no signs of activity and also been told I’m going to be starting my Ocrevus treatment in January! Buzzing does not even come close! Today is a good day 🤙🏻

7

@lizelliott

14 Jan 2019 07:07Last reply 20 May 2025 16:12

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

34

@shiftms-polls

22 May 2024 15:58Last reply 15 May 2025 16:40

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 179

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@Annabella

11 Nov 2022 12:48Last reply 8 May 2025 04:38

Secondary Progressive

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

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@Teddy123456

23 Feb 2025 14:57Last reply 7 May 2025 22:42

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app

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@ksch

27 Apr 2025 23:10Last reply 30 Apr 2025 00:23

Had anyone tried or is taking Mavenclad? My current me isn't doing what it should, ms is progressing. Anything i should know?

First posted on the Shift.ms app

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@Shelleyjo1969

23 Apr 2025 03:17Last reply 24 Apr 2025 09:38

Copaxone or tec fidera? Have had some progression sence i switched from copaxone

First posted on the Shift.ms app

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@Markie59

22 Apr 2025 16:41Last reply 22 Apr 2025 17:06

Looked since 2012 to find out what was wrong. In 2020 I was diagnosed with PPMS. Been fighting since. What puzzled me is as soon as I was diagnosed the progression has been off the wall very quick.

First posted on the Shift.ms app

2

@Padthai1

22 Apr 2025 08:27Last reply 22 Apr 2025 16:41

Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app

44

@Lifesucks

21 Apr 2025 16:43Last reply 21 Apr 2025 23:53

Just saw sm negative… Let us change it, how long has it been without progression on your DMT

On another place someone said how quickly they were disabled after Ms. What about you guys, how long has it been that you haven’t had progression while being on a DMT! I’m starting treatment sooon, and am in desperate need of it.

First posted on the Shift.ms app

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