Shift.ms
Donate
Learn about MS
MS symptoms
MS symptomsA guide to MS symptomsWhat are the early signs of MS?Understanding visible and invisible symptoms of MSMS HugMS and optic neuritis
MS diagnosis
MS diagnosisBeing diagnosed with MSWhat is MS?Different types of MSIs MS hereditary?Late onset MS and treatment
MS treatment
MS treatmentGetting treatment for MSCoping with MS fatigueExercising with MSUnderstanding MS relapseHSCT treatment for MS
Living with MS
Living with MSAfter diagnosis: living with MSMultiple sclerosis and mental healthWorking with MSMS, sex and relationshipsA guide to MS benefits in the UK
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • MS Latest
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2026 Shift.ms

Looking for
something specific?

  • Picked for you
  • Browse topics
  • Find MSers

Topics

  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Healthy living
  • Research
  • Disclosure
  • MRI
  • Browse all
Sort 2630 results by
Recent activityNewest posts

@Marlon_Dagg 

Last reply

Marlon_Dagg

Progress...

Well after a few near breakdowns and a boat load of stress finally been given a solid diagnosis (rrms) last mri shows no signs of activity and also been told I’m going to be starting my Ocrevus treatment in January! Buzzing does not even come close! Today is a good day 🤙🏻
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Symptoms
  • Mental health
  • Treatment
  • MRI
  • Ocrevus
7

@shiftms-polls 

Last reply

shiftms-polls

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 183

  • Diagnosis
  • Disclosure
  • Treatment
  • Work and play
  • Symptoms
39

@skylerchantel 

Last reply

skylerchantel

progressive relapsing ms

So I was reading my neurologist report on my last visit and instead of rrms he used the name progressive relapsing ms. So just a question cause Google just makes it harder to make sense of, what exactly is that? And anyone here have that diagnosis?
First posted on the Shift.ms app
4

@izzleplop 

Last reply

izzleplop

Progress with no symptoms?

I recently had an appointment with my neurologist, sadly new lesions have appeared for the first time in years (I knew it would happen at some point but still upsetting to hear). I’m currently on Tysabri which I think neutralised the symptoms of a relapse luckily but has anyone else had a similar ex...
First posted on the Shift.ms app
8

@adeacon 

Edited

adeacon

I was diagnosed with primary progressive and mass in 2000. I currently live in the Nurse at 66 years old because none of my limbs work. I paint with the paintbrush attached to the brim of my head check out my website alandeacon.com if you want to see me in action there is a television interview on there from one year ago

First posted on the Shift.ms app

@SamuelJS 

Last reply

SamuelJS

MS drug fenebrutinib shows ‘unprecedented results’ in trialsBTK inhibitor tested in relapsing, primary progressive forms of disease

https://multiplesclerosisnewstoday.com/news-posts/2025/11/13/ms-drug-fenebrutinib-shows-unprecedented-results-trials/
First posted on the Shift.ms app
1

@redridinghood12 

Last reply

redridinghood12

Has anyone ever experienced Sciatica as a relapse before? I’m in progressive, don’t know if this is the right group or not seeing if most are still in RR

Federal Way, United States
First posted on the Shift.ms app
1

@JoshuaOct2024 

Last reply

JoshuaOct2024

Please comment on your treatment for Primary Progressive Multiple Sclerosis. Trying to understand what options are out their and the success of them.

First posted on the Shift.ms app
5

@PepperMS 

Last reply

PepperMS

I would love some feedback from people who have had RRMS and have progressed to SPMS. I was recently rediagnosed. I know MS is different for each individual but I’m wondering what I might expect the future to be like for me.

First posted on the Shift.ms app
10

@DocLobster 

EditedLast reply

DocLobster

PIRA (Progression Independent of Relapse Activity)

Hello. Quick questions. Long Post. Sorry. This is my first time posting here. Q1: Can anyone tell me what’s up with PIRA (or Smoldering MS as it’s referred to in some literature). Q2: Has anyone with long term RR MS (I was diagnosed 35 years ago) experienced progression as they age (I’m 62 in a co...
First posted on the Shift.ms app
4
PreviousNext page