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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Oliviamn 

Last reply

Oliviamn

Progress

I was diagnosed a little under two years ago; At 16. When I was released from my lengthy hospital stays I had appointment after appointment and I’m finally been able to go far in between. See less doctors and it feels so freeing.
First posted on the Shift.ms app
5

@Marlon_Dagg 

Last reply

Marlon_Dagg

Progress...

Well after a few near breakdowns and a boat load of stress finally been given a solid diagnosis (rrms) last mri shows no signs of activity and also been told I’m going to be starting my Ocrevus treatment in January! Buzzing does not even come close! Today is a good day 🤙🏻
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Symptoms
  • Mental health
  • Treatment
  • MRI
  • Ocrevus
7

@thomassivems 

thomassivems

Progress is being made

Add a few greens to my diet trying to get off this MS medication about to lift some weights Instead more positive you may not be able to control a lot of things but you can’t control what you think and what comes out of your mouth.
First posted on the Shift.ms app

@shiftms-polls 

Last reply

shiftms-polls

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 185

  • Diagnosis
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44

@tonyjuventus 

Last reply

tonyjuventus

I was diagnosed with MS just over a year ago, and it all started from waking up one morning for work and my left hand felt like I slept on it all night, since that moment it progressively gotten worse to the point where my three fingers were curled into my palm and I had no use of them and the pain was incredibly intense. It hasn't changed since. It's been a year now, and it's still the same, I have been to my neurologist since being diagnosed and have done different treatments and medications but still haven't had any improvements. So, at this point, I'm just lost and hoping to connect with anyone who has been in the same situation or anything

First posted on the Shift.ms app
1

@swenut76 

Last reply

swenut76

Hi, I have secondary progressive MS now. For the last several months I’ve been having gut problems. I am fully aware that 60-70% of us.

First posted on the Shift.ms app
4
Unpublished

@JenShi 

Last reply

JenShi

Mobility progression

Hi everyone My name is Jenny and I'm a high school student. After seeing two of my teachers struggle with a loss of control after they lost the ability to walk at the age of 27, I decided that I will create an app that will help them with understanding their gait progression. With a team mate, we d...
First posted on the Shift.ms app
1

@diegorfloresm 

Last reply

diegorfloresm

I recently received very positive news from my neurologist regarding my diagnosis of Multiple Sclerosis. Based on my progress and stability, he has determined that I no longer need to continue medication at this time and is moving my status from Level 2 to Level 1. This is a very encouraging development and reflects the stability of my condition.While I am grateful and optimistic about this progress, I would be lying if I said I don’t occasionally have some “what if” thoughts. That said, I trust the medical guidance I’ve received and understand that this decision was made after careful evaluation of my health and long-term stability. Overall, I am very thankful for the positive direction things are moving!

First posted on the Shift.ms app
3

@skylerchantel 

Last reply

skylerchantel

progressive relapsing ms

So I was reading my neurologist report on my last visit and instead of rrms he used the name progressive relapsing ms. So just a question cause Google just makes it harder to make sense of, what exactly is that? And anyone here have that diagnosis?
First posted on the Shift.ms app
4

@izzleplop 

Last reply

izzleplop

Progress with no symptoms?

I recently had an appointment with my neurologist, sadly new lesions have appeared for the first time in years (I knew it would happen at some point but still upsetting to hear). I’m currently on Tysabri which I think neutralised the symptoms of a relapse luckily but has anyone else had a similar ex...
First posted on the Shift.ms app
8
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