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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Recent activityNewest posts

@Marlon_Dagg 

Last reply

Marlon_Dagg

Progress...

Well after a few near breakdowns and a boat load of stress finally been given a solid diagnosis (rrms) last mri shows no signs of activity and also been told I’m going to be starting my Ocrevus treatment in January! Buzzing does not even come close! Today is a good day 🤙🏻
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Symptoms
  • Mental health
  • Treatment
  • MRI
  • Ocrevus
7

@AlexanderM 

EditedLast reply

AlexanderM

Scared of disease progression even with DMT (long read)

I’m relatively new to this whole MS thing having gotten recently diagnosed and I haven’t had enough time to process this given that I’ve been distracting myself with work so much. To my detriment at times. My diagnosis has been a bit weird and quite dramatic but I’ll just vent here and hopefully s...
First posted on the Shift.ms app
10

@Liwia 

Last reply

Liwia

How reliable is google with MS progression and symptoms ?

Hello. I have a partner with MS and we are both in our 20s planning a future together . He’s got RRMS for 9 years now and he’s got rare relapses with fatigue and balance being the main issues, only brain lesions. I was using Google to understand how our future would look with his MS journey. I was ...
  • Symptoms
  • Relapsing remitting
  • Balance
  • Diagnosis
  • Work and play
  • Fatigue
  • Family and children
  • Relationships
  • MRI
  • Relapses
First posted on the Shift.ms app
16

@homegirl 

Last reply

homegirl

Really Fast Progression

Hi, I am newly diagnosed. I am struggling with how fast and how severe symptoms can appear. Especially when is comes to speech and mobility. I don't know what I'm looking for, but I think I'm just looking to see that I'm not alone with this.
First posted on the Shift.ms app
7

@lizelliott 

Last reply

lizelliott

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
  • Balance
35

@Lenz 

Last reply

Lenz

Good Afternoon Everyone my name is Lensey I have secondary progressive multiple sclerosis

First posted on the Shift.ms app
3

@Maryam4887 

Last reply

Maryam4887

I was diagnosed with Multiple Sclerosis (MS) back in 2018. Since then, I’ve been managing my condition with medications, specifically Baclofen and Pregabalin. Fortunately, I don’t need any other treatments at the moment. While the right side of my body remains weak and I walk with a cane, I am able to carry out all of my daily activities, including driving, spending time with friends, and fully enjoying life—ups and downs included.I recently started exercising, and I feel much better. I truly believe that with consistent physical activity, I can return to a more normal state, though I know I have a long road ahead of me.Thank you for your ongoing support. I’m grateful for the strength and progress I’ve made and look forward to the journey ahead.

First posted on the Shift.ms app
4

@shiftms-polls 

Last reply

shiftms-polls

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 179

  • Diagnosis
  • Disclosure
  • Treatment
  • Work and play
  • Symptoms
37

@Annabella 

Last reply

Annabella

Secondary Progressive

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...
  • Diagnosis
  • Symptoms
  • Secondary progressive
  • MRI
  • Pain
  • Treatment
  • Spasticity
31

@Teddy123456 

Last reply

Teddy123456

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app
5
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